Mary Oliver – Grow Mindfulness

How to Write with a Chronic Illness

At the recent Write Your Own Way Summit, Sandra Postma spoke eloquently about how to write with a chronic illness. Sandra is a book coach for writers with chronic illness. She is especially well-qualified for this role having studied journalism and literature at university and undertaken a Book Coach Certification with Author Accelerator. Sandra is able to draw on her own lived experience as a writer with several debilitating illnesses over many years.

She stated that the book coaching role helped to save her life and motivated her to create her own coaching business, Your Story Mentor. Sandra acknowledged the technical aspects of her prior training as a writer but stated that the book coaching course helped her to learn “how to coach a writer both on a craft and on an emotional level.”

Challenges for writers with chronic illness

In her Summit presentation and an interview with Savannah Gilbo for the Fiction Writing Made Easy Podcast, Sandra outlined the many challenges facing writers with chronic illness that exist over and above those experienced by other writers:

Symptoms – writers with chronic illness have to deal with fluctuating energy, brain fog, and times when they are mentally or emotionally not feeling well. Other symptoms may include constant pain, itching and/or swelling of joints (e.g. ankles, fingers, hands, arms) and debilitating symptoms such as migraines or breathing difficulties. Sometimes, it may be impossible for the writer to sit or even to get out of bed.
Low self-esteem – Sandra points out that there is a social stigma associated with having a chronic illness. There may be emotional baggage arising from a lack of social status (lacking a job or having to constantly isolate to manage disabling symptoms). Like many other writers, those with chronic illness feel that their voice is not worth hearing but for the chronic sufferers this self- story is amplified by the sense of not being an active contributor to family or society, but rather being a burden.
Momentum – a key element in writing is momentum, the ongoing impetus to pursue writing whether in the form of a blog, a short story, a novel, non-fiction work or a memoir. Momentum provides energy and motivation but for the writer with chronic illness this is continually punctuated by disability, so there is a loss of momentum as a result of the fluctuation of symptoms.

Feelings experienced by writers with chronic illness

What is not often appreciated is that such writers can experience genuine grief – from loss of identity, family, friends, social activity and work (with its attendant loss of both a meaningful role and income). This, in turn, impacts the sense of self-worth of writers with chronic illness.

There can be anger and ongoing frustration from not being able to do what you used to do with relative ease. Sandra points out that the anger can arise from the knowledge that you “have to surrender to this thing [chronic illness] that you didn’t choose and is with you for the rest of your life”. With this awareness, you can “lose trust in your own life”.

Sandra highlights the fact that you can lose a sense of agency, your underlying capacity to control your body, your thoughts, your responses to stimuli and your actions. This can lead to a sense of helplessness and hopelessness – the loss of a meaningful existence and the capacity to change your debilitating situation.

Strategies to use while writing with a chronic illness

In her Summit presentation and interviews, Sandra proposed a number of practical ways to deal with the emotions, blockages and challenges of writing with a chronic illness:

Break free – a starting point is to break free from expectations, your own as well as that of others. In an earlier post, I wrote about the tyranny of expectations – how they hold us back and lock us into ways of doing things.
Set your own pace – it is important to overcome rule-bound advice such as writing every day for a set time in a set place. You have to determine your own writing pattern based on your capacity at the time. It will be frustrating at times that you can’t write as much as you want, as often as you want or as fast as you want. You have to get to the stage where your are “at peace with your own pace”.
Write where you are comfortable – you don’t have to sit at a desk to write, sometimes “sitting” itself may not be possible (as in Sandra’s experience). You can lie down and use a mobile phone to write or use a dictation device. You will have to overcome the self-talk about what “proper writers” do.
Practice self-compassion – avoid “beating up” on yourself for failing to achieve what you set out to achieve or for not meeting others’ expectations. Self-compassion, kindness to yourself, can enable you to overcome the disabling effects of negative self-talk.
Write what you know – Sandra points out that people with a chronic illness have a “superpower” as writers. Because of their experience of pain and loss, they know about “deep emotions and feelings and the hardship of life”. These are the challenges that everyone meets in daily life, being part of the human condition. This gives writers experiencing chronic illness a distinct advantage. Savannah, in her interview with Sandra, maintained that such writers have “a rare edge that empowers them to connect with readers on a much deeper level”. As Sandra herself pointed out, “books are conduits of uncomfortable emotions and explorations of how to deal with them”.
Start small – if you start small, you can start “right now”. At the outset of her writing endeavours, Sandra found that she could not write a lengthy story such as a novel, so she started small by writing poems and short stories. She acknowledged in her podcast interview that it took “a long time to be right with that” and live with the belief that it is worth the effort. She found, however, by writing short stories across multiple genres, she improved her writing craft and gradually built the capacity to begin writing a novel. She recognised that this novel-writing would take at least three years. Sandra is adopting the “start small” principle with her novel writing by treating each chapter as a short story.
Write a reflective poem – sometimes it is helpful to write a reflective poem to get your feelings out into the open and to help you identify “next steps”. This process can also unearth hidden emotions that are acting as a blockage to your writing.
Join a support community – Sandra indicated that one of the things that helped her immensely was joining a support community. In an interview for CanvasRebel, she expressed her strong belief in “the power of the online community of other people with chronic illness sharing their stories and beliefs”. Her online community reinforced her strength in managing her illness and associated pain, made her feel as though she was “seen” and confirmed that her voice was unique and “deserves to be used and heard”. These personal outcomes have been my experience with the Creative Meetups, hosted by the Health Story Collaborative created by Annie Brewster, author of The Healing Power of Storytelling.

Sandra provides a free guide on How to Be a Writer When You Have a Chronic Illness on her website. She has also started an online support community for writers with chronic illness – The Mighty Spoonies Club. The name of the community is based on the “spoon theory metaphor” of chronic illness.

Reflection

I joined the online Creative Meetup group nearly two years ago and found that the supportive environment and writing exercises helped me “to access and release emotions” and to stimulate my creative expression in the form of poetry. An added benefit is that I am sub-consciously working on my memoir as I explore and share my life story.

Reflecting and connecting with others who are experiencing their own chronic illness has been very supportive. Their shared stories and insightful writing provides me with encouragement and practical strategies to deal with the challenges inherent in my chronic illness.

At our February 2025 Meetup, Jennifer Crystal, our facilitator, introduced a poem by Mary Oliver as a stimulus for our reflection and writing. The poem, The Uses of Sorrow, speaks of receiving “a box full of darkness” but being able to understand over time that “this, too, was a gift”. In our writing segment, we explored the “gift of illness”.

Illness provides a personal growth experience. I’ve had to revisit my assumptions, self-image and goals. Illness helped me to appreciate the small things in life that I often take for granted – that I can see, walk, run, play tennis, reflect, research and write.

It helped me to realise that my identity is not tied to an image of myself as a very fit, competent tennis player. Illness helped me to understand and accept the nature of the human condition – it’s vulnerabilities and frailties and undulating character.

I have been able to share with other people who are experiencing a healing journey. I’ve met some wonderful people who are wise, resourceful and resilient as a result of their experience of managing pain and losses.

Illness has helped me to become more compassionate towards others – to appreciate the pain, sorrow and distress that others are experiencing. It has helped me to keep things in perspective and to savour the present moment. It has forced me to be proactive, resourceful and engaged.

There are times when chronic illness has felt more like an unwanted gift – not desired or returnable. Despite these setbacks, there have been hidden possibilities that have helped me to flourish and enrich my life and my writing. As I grow in mindfulness through reflection, writing and storytelling, I am able to progressively develop agency, resilience and creativity.

I wrote the following poem after reflecting on the positive aspects of my illness and what it has contributed to my quality of life:

The Gift of Illness

Illness is a hidden gift,
with a rich lode of rewards,
that need to be mined,
in the fire of pain and loss.

Challenging assumptions,
reshaping identity,
acknowledging the human condition,
growing in awareness of self.

Opening to others,
appreciating life,
learning compassion,
disclosing feelings.

Discovering poetic expression,
rekindling creativity,
energising writing,
grounding in the present moment.

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Image by Leandro De Carvalho from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Breathing with Intention

In our October Creative Meetup we focused on the theme of “breath” catalyzed, in part, by James Nestor’s book, Breath: The New Science of a Lost Art. In our discussion, various poems about “breath” were highlighted. These included Mary Oliver’s poem, I Am Breathing and Rumi’s poem Only Breath where he notes, “first, last, outer, inner, only that breath breathing ”. The poems and James’ book reinforce the essential nature of breathing for human existence – at every moment that we are alive, we are breathing.

We consciously “hold our breath” for many reasons. It may be to swim under water, to steady ourselves before playing a tennis shot or as part of a mindful breathing exercise. However, we often hold our breath unconsciously when we experience fear, anxiety, anger or shock. This was made clear by an exercise we undertook as part of the Creative Meetup. We were asked to think of a time when we held our breath and explore what happened at the time in terms of bodily sensations and emotions.

What immediately came to mind for me was a car accident that I experienced when I was 12 years old. I was travelling with my family and my father was driving us home. At one moment, I looked out the side window of my passenger seat to observe a large car approaching on the left (we were in a small car on a main road). It was as if time stood still as I realised that the oncoming car was going to crash into us and instinctively I held my breath waiting for the impact. We were hit on my mother’s passenger side and ended up upside down at the foot of a four metre embankment. I can’t remember when I exhaled but I was aware that my breathing was erratic and I was in shock.

Learning to breathe with intention

James Nestor recounts how he undertook research with free divers in Greece. These divers were able to dive to incredible depths (up to 300 feet) while holding their breath (not assisted by any breathing apparatus). They could dive to depths that scientists thought were not possible for human beings. What James learned was that these divers considered breathing a conscious act (not unconscious as most of us breathe in our daily lives). For the divers, breathing is a mechanism to achieve depth in diving and they intentionally “coax their lungs to work harder” so that they are able “to tap the pulmonary capabilities that the rest of us ignore”. The divers suggested that anyone who is healthy can achieve what they achieve if they put in the time and energy “to master the art of breathing”.

In talking to a range of divers, James learned that there are multiple ways to breathe and that different ways to breathe “will affect our bodies differently”. The divers explained that various breathing methods can enhance our brains, lengthen our life span or improve our physical and mental health. Other ways we breathe can have the opposite effects. James discovered that the secret to nourishing our brains and enhancing our health is to breathe with intention.

James expanded his personal interview research with divers by exploring the published literature on breathing including books on regulating breathing that were 400 years old. As James points out, many cultures over the centuries have focused on the art of breathing and its benefits, e.g. Buddhists use conscious breathing to reach higher levels of awareness and to achieve longevity. The scientific literature reinforces the view that how we breathe can affect the systems of the body, e.g. our immune and digestive systems. Some of the research, for example, showed that “asthma, anxiety and even hypertension, and psoriasis” could be reversed or reduced by changing the way we breathe.

James’ conclusion from all his research is that we can use conscious breathing “to hack into our nervous system and control our immune response and restore health”. In his book , he sets about providing exercises to enable us to learn to breathe with intention so that we can reach our potential in terms of our mental and physical health.

Reflection

As I listened to the audiobook version of James’ book, Breath, I began to realise that intentional breathing as promoted by him could help me alleviate my MCAS difficulties – which are fundamentally a result of an over-reactive immune system. Calming my immune system through the breathing exercises contained in each chapter of James’ book could enable me to expand my food options, which at the moment are severely limited because of my food sensitivity responses (such as rash, hives, headaches, and nausea).

Many mindfulness teachers demonstrate that we can grow in mindfulness through conscious breathing which enables us to become grounded, calm the mind and body, expand our lung capacity and increase our focus and clarity of thinking.

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Image by John Hain from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Understanding and Appreciating the Interconnectedness of Nature

Mark Coleman in one of his nature meditation podcasts highlights the role of rain and its interconnectedness with other elements of nature and human life. He was recording the meditation while standing on a mountainside with mist, coldness and dampness resulting from recent rains. His meditation focused on rain and its beneficial effects for nature and humans.

He spoke of rains reducing the risk of fire, energising the earth and filling rivers inviting the annual migration of salmon from the sea to the rivers in California. He described the rain as “drops of interconnectedness” and explained how clouds evaporate and produce rain, hail and snow which feeds the creeks, rivers and ponds and brings new life to many living creatures. Mark spoke of the “gift of water” that we take so much for granted and he described the earthy smell after the rain has fallen and left its moisture on an otherwise parched earth.

Mark drew on Mary Oliver’s Poem, Last Night the Rain Spoke to Me, to highlight the interconnectedness of rain and the sky, trees, plant life and ourselves as humans living in nature under the stars. We see the life-giving nature of rain after it falls on dry and browning grass. It always amazes me how a seemingly dead stretch of grass can come to life and appear beautifully green after overnight rain. We can see indoor plants that are wilting with leaves that are browning or yellowing on the edges suddenly come to life and thrive when placed in the rain.

Rain, in Marks’ words, are part of the “fabric of connection” that is foundational to the natural world and our human existence. He reminds us that plants breathe out what we breathe in and breathe in what we breathe out – they are like our external, earthy lungs, enabling a vital relationship between humans and trees.

The Earth Law Center discusses other areas of interconnectedness that impact our human existence, e.g., the role of Krill in the marine ecosystem and fungi in the forest ecosystem. They highlight that a growing awareness of the interconnectedness of ecosystems and human life has helped people modify their behaviour and contribute to protecting the environment – they describe the new environmentally aware behaviours as “nature connectedness behavior” and list consumption of organic products and a vegan diet as elements of this enlightened behaviour.

Reflection

We pursue our busy lives so often without an awareness of our interconnection with nature and each other. As we stop, listen, and learn, we can become more conscious of this interconnectedness and its many dimensions. As we grow in mindfulness through nature meditation and experiencing silence in nature, we can begin to understand, appreciate, and value this interconnectedness. Otherwise, we can continue blindly damaging our life-giving ecosystems that we rely on for our very breath and continued existence.

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Image by Steve Buissinne from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group, and the resources to support the blog.

Finding Joy, Beauty and Healing through Nature in Challenging Times

Jon Kabat-Zinn when discussing mindfulness and resilience in difficult times stressed the need to be “still aware of beauty” in the midst of the challenges confronting us during the onset of the Coronavirus. He suggested that despite the incredible heartbreak of these times, inspiration abounds, particularly in the beauty and resilience of nature. Jon referred to the words of Thich Nhat Hanh, a Vietnamese Buddhist, who experienced his fellow monks dying from bombing raids by the Americans. Amidst the grief during the burial of his friends, Thich Nhat Hanh said, “Don’t forget to see the flowers blooming by the side of the road”. Jon reminds us to lift our eyes beyond the present pain and fear and to be aware of nature and all its beauty and healing power.

Wise@Work recently provided a webinar with Mark Coleman presenting on the topic of Beauty, Joy and Resilience in the Midst of Adversity: the Healing Power of Nature. Mark is a globally recognised meditation teacher, author of From Suffering to Peace: The True Promise of Mindfulness and the creator of the Mindfulness Institute. Mark has a particular focus on being healed through nature by finding beauty and joy in experiencing nature mindfully. He shares his unique insights drawn from mindfulness practices, research and experience in this area through his course, Awake in the Wild Nature Meditation.

Attending to nature and experiencing connectedness

What we pay attention to shapes our lives – our thoughts, feelings, mood and perspective. In challenging times, we tend to become absorbed in what we have lost, obsess about the news and feel a loss of agency in many aspects of our life. Our natural negative bias is strengthened, resulting in a continuous scanning of the environment (local and global) for threats, both real and imagined.

Mark maintains that we can restore our sense of equilibrium by paying attention to nature – attention being something that we can have agency over. Through mindful attending to nature we can experience joy, peace, beauty and healing – experiences that are uplifting and energising. He argues that as we become connected and aligned with nature, we can find our life purpose and delight in living or, as Jon Kabat-Zinn describes it, “waking up to what is” as the “laboratory of life unfolds”. Mark quoted the words of Mary Oliver’s poem, Mindful, to reinforce his view of the joy in nature.

Nature as a source of sensory awareness and joy

We can refocus our attention by beginning to notice nature as it unfolds daily before us and enlivens our senses – seeing the exquisite beauty of the sun rising in the morning over the water, listening to the echoing sounds of birds as they awake to another day, smelling the ground and grass after a night’s rain, touching a furry leaf or tasting freshly picked fruit, herbs or vegetables. There are many ways to tap into the beauty and healing power of nature – we just have to be alive to them and willing to create space in our lives to experience this unending source of joy.

Mark reminds us that we don’t have to go out into the wild or visit a rainforest to enjoy nature (the very words we use such as “enjoy” expresses nature’s potential). We can venture into our yard and observe the blossoms on the trees, notice the first seedlings emerging from recently planted grass seeds, feel grounded on the solidity of the earth, smell the earthiness of the soil and hear the wind gently rustling the leaves of trees and plants. We can even stay inside and connect with nature through pictures and images – the sunflowers in a field of grass, the small child leaning over to smell a flower in a rockery or the tall poplars lining an expanse of crops. If we study the painting of the girl, we can observe the colour of the flowers, the shape of the leaves, the fallen branches and the stone paving – things that we may not have noticed before.

Reflection

I have always found trees a source of meditation and an inspiration for poems because they reflect the paradox of human existence – suffering and joy, life and death, disconnection and closeness, weak and strong, flexible and inflexible.

Nature surrounds us and is there before our eyes, ears and other senses – if we would only pay attention. The time required is minimal and the rewards in terms of mental and physical health and overall wellbeing are great. Nature is a free, ever-changing resource.

As we grow in mindfulness through paying attention to nature and meditating on nature, we can experience a calmness, peace and joy amidst these turbulent times. Like our breathing, nature is a refuge readily available to us to enjoy, a source of connection to other living things and means of healing through alignment.

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Image by Jill Wellington from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.