The Trauma-Disease Connection – Lessons Learned

Dr. Aimie Apigian recently conducted a masterclass on the theme, How to Help the Body Live, Love and Let Go.  Her guest speaker for the interactive session was Dr. Gabor Maté, world-leading trauma physician and author of In the Realm of Hungry Ghosts: Close Encounters with Addiction.   Together they shared their clinical experiences and research and highlighted the lessons learned about the trauma-disease connection.

Gabor highlighted the impact of trauma on the body, reflecting the unity of mind and body.  He emphasised that the body is inseparable from all aspects of human existence, including the ecological and social environment.  He maintained that his new book, The Myth of Normal, provides insight into the lessons he has learned from “working with trauma in the body”.  In writing the book he also drew on thousands of articles and newspaper reports.  

Gabor contends that everyone has experienced some form of traumatic experience and that trauma embedded in the mind and body contributes to chronic illness.  In his view, healing begins with waking up to the body’s sensations as well as to “what the mind is suppressing”.  It is increasingly acknowledged that trauma is not the precipitating experience/event itself but the negative impact on a person’s mind, body and emotions – how the experience/event is internalised. 

The early experience of Aimie

In responding to Gabor’s question about what motivated Aimie to study diverse medical fields and to get into trauma healing, she told the story of her early experience in adopting 4 year old Miguel from the foster care system.  He had extreme behavioural problems and in his rages would try to kill Aimie.  Caring for Miguel and undertaking her third year residency as a doctor resulted in “severe fatigue”.   It was then that Aimie came across Gabor’s book, When the Body Says No: The Cost of Hidden Stress – the title of his YouTube presentation where he discusses the trauma-disease connection resulting from the unity of mind and body. 

Aimie’s response to her own trauma-induced health issues was to try to understand Miguel’s behaviour and her own mind/body response.  She undertook training in trauma healing and somatic healing through her functional medicine studies.  Aimie also completed master’s degrees in biochemistry and public health as well as “specialized training in neuro-autoimmunity, nutrition, and genetics for addictions, mental health, mood, and behavioural disorders”.  Her book on The Biology of Trauma looks at trauma’s impact at the cellular level and explores approaches to holistic healing from trauma.  The title of her book is also the theme of her podcasts and the focus of her training for other health professionals.   

Trauma’s impact

Both Aimie and Gabor stressed the holistic impact of trauma on a human being.  They described how someone who has experienced trauma develops a disconnection from themselves and their bodies.  In their view, trauma leads to a degeneration of the nervous system, a loss of energy and emotional issues such as depression and anxiety.  They point out that the various systems of the body are interconnected and interdependent – so trauma can affect the gut, the cardio-vascular system and the emotional system.

Reflection

As Aimie points out, trauma may result from adult experiences, not just adverse childhood experiences. She emphasised that given trauma’s influence on the whole person – body, mind and emotions – a range of healing modalities may be necessary.  For this reason she has undertaken extensive trauma training including Somatic Experiencing, Sociometric Relational Trauma Repair, NeuroAffective Touch and the Instinctual Trauma Response Model.

Mindfulness has a key role to play in healing from trauma.  As we grow in mindfulness, we can calm our nervous system, reduce our negative self-stories, get in touch with our bodies and  build the resilience to restore our health – thus, gradually breaking the trauma-disease connection.

Aimie offers a 6 week online program, The Foundational Journey, designed to provide a safe way to open up “stored trauma”.   The evidence-based program has a strong emphasis on the mind-body connection and provides tools that include somatic healing.

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Image by Daniel R from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Paying Attention to the Spaces Between

Chris Willard provided a 12-Minute Meditation podcast on the 15 August this year on the theme, A Meditation to Notice What’s Present and What Isn’t.   He noted that spaces are everywhere if we look and by paying attention to the “spaces between” we can grow in awareness of what is around us as well as what is missing.   Focusing on the spaces between grounds us in the present, enables us to see the potentiality in spaces and heightens out powers of concentration.   Bringing our awareness to these spaces enriches our creativity and deepens our appreciation of the magnitude of our world, the beauty of nature and the uniqueness of the people who are around us.

Chris Willard has a Doctorate in Psychology focusing on neuroscience and positive psychology.  He is an author, practising psychologist and consultant, a trainer and faculty member of the Harvard Medical School.  He specialises in teaching mindfulness to adolescents and young adults.  Chris’ books are readily available on Bookshop.org and his online courses can be accessed on his website.  He is the co-author with Olivier Weisser of The In-Between Book – designed as an interactive resource for children to develop mindfulness.  Chris is also a public speaker and videos of his talks can be found on YouTube.

Guided mediation

Throughout the podcast, Chris guides us in a meditation process designed to increase our ability to pay attention to the “space between”, both internally and externally.  At the outset he suggests that, after adopting a comfortable position, we focus on our breathing.  This initial process involves concentrating not only on our in-breath and out-breath but also on the spaces between these – learning to rest in our breathing space between our inhale and exhale.

Spaces between objects in a room

As we progress with this meditation, Chris turns our attention to the spaces between objects in our room:

  • the shape of objects
  • the form of spaces between objects
  • the dimensions of those spaces
  • how frequently the spaces occur
  • the patterns of spaces – small, large, irregular
  • intentional or unintentional spaces
  • the sense of openness or closure
  • the visual impression of clarity or clutter.

Spaces between thoughts and emotions

Viktor Frankl reminds us that there is a space between a stimulus and our response and in that space lies our freedom – we can choose how we respond.  Chris encourages us to explore this inner space:

  • what emotion arises with a thought?
  • what events have given rise to the link between the thought and the emotion?
  • how often do we employ the S.T.O.P. process to create space before we respond?
  • are we carrying resentment and its attendant adverse behaviours?
  • does our inner landscape reflect a stance of “victim or freedom”?
  • do we have space within for creativity, alternative actions/responses and creating meaning in our lives?

Spaces in nature

Chris is very conscious of the natural world and the spaces within.  He encourages us to explore our external world by observing the spaces in nature:

  • between plants
  • between trees
  • between leaves
  • between gardens and lawns
  • between water and land
  • between clouds.

Associated with this noticing is paying attention to:

  • the shape and colours of clouds
  • the merging of colours in the sky – yellow into green, red into purple, light into dark
  • the changing shape and spaces on the horizon
  • the crowded space of a worm farm
  • the flight of birds and formations
  • the sounds of nature and the gaps between
  • the bird calls and delayed responses
  • the movement of the wind and the spaces it creates.

Spaces in our interactions with others

Everyday we are in interaction with people close to us, our colleagues, associates and strangers.  We can become more conscious of the spaces between us and others by noticing:

  • how our assumptions and stereotypes leave no room for sustained engagement
  • how we listen by creating space for others to talk
  • the pace of our thoughts leaving no gap for deep listening
  • the absence of spaces in our interactions to truly get to know someone, their life history and their feelings.

Reflection

We can extend our focus on the “spaces between” by reviewing our day:

  • have we created space for reflection and review?
  • have we taken the opportunity to pause?
  • has there been  time set aside for walking and/or exercise, adequate sleep and rest?
  • have we made time for a life review to protect our attention?

Our awareness of space can be shaped by cultural influences and environmental conditions.  Often, we need to experience another culture/country to appreciate how we view the “space between”.  Following a trip to France, I became so much more aware of my own spatial environment in Brisbane – the space between cars, buildings, people and cities, the openness compared to the “constriction”.

Shelley Davidow in her memoir, Whisperings in the Blood,  describes how her grandmother found the environmental shift from America to South Africa disarming – “At night, Africa closes in around the house and bathes it in its foreignness”.  Associated with this sense of restriction are the shrieks of nightbirds, grunting of hippos, and the “distant drumming and singing”.  Her grandmother was overcome by the open spaces and the loss of “signs of human habitation and civilisation” – the city comforts, landmarks and buildings of various sizes and shapes.

As we grow in mindfulness by paying attention to the “space between’, we can enrich our lives and interactions, enhance our awareness of possibilities, and make room for innovation and creativity.  Consciousness of space can improve both our mental and physical health – we can avoid being consumed by the busyness of our life and the endless negative pattern of our thoughts.

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Image by Albrecht Fietz from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Cultivating Gratitude Through Nature

Georgina Miranda facilitated a meditation on the theme of Awaken to the Flow of Gratitude in Nature.  In her guided meditation on the 12-Minute Meditation podcast on 12 July 2024, Georgina takes us through a meditation practice that can be conducted anywhere in nature – it could be in our backyard, the local park, or our favourite place in nature.  People typically have some favourite place where they experience nature – it could be at the beach, in the mountains or by a river or creek.  Georgina encourages us to use nature to reset, to open ourselves to our unity with nature and to let a sense of gratitude flow through us as we experience its stimulation of our wonder and awe.

Georgina is an author, activist, mountaineer, transformation and leadership facilitator.  She helps individuals and organisations globally to move beyond their comfort zone, expand their awareness and “shift mountains within themselves and the world around them”.  Her activism focuses on protection of nature and our planet, and protection of women against violence.  Through her social enterprise, She Ventures, she works consciously to “unleash the untapped potential of women around the world”, offering consulting, coaching and inspirational events designed to achieve self-realisation and effect positive global change.

Georgina herself uses nature, and especially her mountain climbing, as a way to move beyond life’s challenges and to achieve a different perspective on whatever is troubling her.  For her, nature provides a “reset” – enabling a movement from emotional turbulence to emotional regulation and calm.

Guided meditation process

Georgina suggests at the outset that we take our place in nature – wherever that may be in terms of accessibility and convenience.  She encourages us, for the purposes of this meditation practice, to avoid treating the activity in nature, e.g. walking, as an exercise (an act of “doing”) but as a mindful moment (an act of “being”).  The focus is on connection with nature through our breath and sensory awareness.

Georgina begins by having us become aware of our own breath – its pace, its temperature (hot or cold) and its evenness or fluctuations.  She reminds us of our connection with nature through our breath – our outbreath is nature’s inbreath.  Also, we draw vital oxygen from the plants and trees that surround us. 

Georgina then leads us on a sensory journey.  We are invited to take in the sights that surround us at a macro and micro level – the broader terrain and the proximate features of nature.  We can notice the undulations in the landscape or the flow of waves breaking on the shore; the small plants and larger trees; the cultured lawns and the wild bush.  On a closer look, we can view the colours that surround us, taking in plants, water and sky (with the colours of clouds – black, white, blue and grey).  With a closer inspection, we can observe the leaves (their form, distribution and colour), the veins coursing through the leaves and the lines or markings that are visible to the naked eye.   We could be watching dragonflies flutter above tall grass, grasshoppers gnawing on leaves of citrus trees, butterflies flitting through the air with no apparent goal, birds descending on bottlebrushes to draw nectar, Pelicans gliding gracefully across the Bay in search of schools of fish, or ladybirds landing on roses in our garden to feed on aphids.  

We can take in the smells that surround us.  It could be the salt from the sea, the earthy smell from soil and fallen leaves, or the tree born odours such as eucalyptus or wattle.  It could be the strong smell emitted by herbs such as basil, lavender, or oregano – each with its own distinctive aroma.  There may also be the smell of approaching rain or the earthy smell of sodden ground.

We can attune our ears to the sounds in nature.  It could be the breeze blowing and  rustling the leaves of the trees, the sound of rain hitting the ground, the whistle or song of adjacent birds.  In paying attention to the sounds of birds we can notice sounds above, below, beside and in front of us – sometimes as small finches flitter amongst small, colourful bushes.  Along with the sounds of the birds, we can pay attention to the colours, size and form of the birds we observe.

Attention to nature through conscious awareness can engender calm and contentment, increase our resourcefulness and enhance our sense of connection with all living things.  Through immersing ourselves in nature we can experience gratitude for the air we breathe, the sights and sounds we experience, and  the feelings of awe and wonder.  We can appreciate how nature helps us to reset, broaden our perspective, reduce our agitation and heal us.  We can bathe in nature’s beauty, aliveness and adaptability.

Reflection

I’ve been reading Kate Legge’s novel, Kindred: A Cradle Mountain Love Story, that traces the story of Gustav Weindorfer and Kate Cowie who fell in love with each other and with Cradle Mountain in Tasmania.  They were both amateur botanists and members of the Field Naturalists Club of Victoria, established in 1880.   They set about establishing eco-tourism in Cradle Mountain and Gustav is credited with strongly promoting (and achieving) the development of a national park in the area so that its beauty could be enjoyed by all nature lovers.  Cradle Mountain is now visited not only  by thousands of tourists but also by scientists from all over the world. 

Kate Legge gives us a glimpse of Cradle Mountain and its surrounds through the eyes of dedicated botanists, Gustav and Kate, as they travelled the mountains collecting, documenting and preserving plant specimens some of which they sent to Germany, Austria and Britain.  In 1903, before Kate and Gustav were married, Kate presented a paper to the Naturalists Club about Mount Roland in the region of Cradle Mountain.  She expounded on the magnificent view from the top of the mountain and contended that botanists and geologists alike “must pause to admire it, with that silent outreach of the soul toward eternal beauty”.

Gustav himself frequently recorded his travels and discoveries as he indulged his “wanderlust” through nature.  He wrote letters for his botanist colleagues around the world, reports for the Naturalist Club and articles for newspapers.   One such article published in 1910 in The Weekly Courier describes Holidays in the Cradle Mountains in these effusive words, capturing sights and sounds of the mountain as he gazed in awe and wonder:

…through the silent darkness of this supreme mountain solitude stole the murmuring sound of rippling water leaping from rock to rock, gladly escaping from the sombre shadows of the lake to the sunshine of the valley. [Notice how the alliteration with the letter “s’ evokes silence penetrated by awesome sights and sounds]

Kate Legge, herself a mountaineer as well as author and journalist, found inspiration for her writing in walking mountain trails.  In a chapter in her later book, Infidelity and Other Affairs, Kate discusses her “walking life”.  She likens walking to writing – “walking is one foot in front of the other, just as writing is one word before another”.  Other similarities she identifies are obstructed progress, concentration and shifting attention, movement towards and away from a destination.  For Kate, walking is “thinking time” that provides a “fresh perspective”.   She maintains that walking “rejuvenates the body and the mind and gives rise to rumination”.  Kate shares the perspective of naturalist Henry David Thoreau who advocates “sauntering” and who communed with nature “on daily rambles, rarely taking the same path twice”.   She suggests that with this approach we can succumb to a “meditative trance” as we scan the horizon or focus “on small miracles”, such as a “leaf curled in a web”.

So often “shoulds” get in the road of our communion with nature – the “doing” deadlines that are often self-imposed.  However, when we make the time to grow in mindfulness through natural awareness, we can really appreciate the benefits of nature and our connection with our natural environment.

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Image by Penny from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Expressing Gratitude Daily

Kim Armstrong provides a meditation on the theme of Cultivating Gratitude Daily.  In the 12-Minute Meditation podcast on 21 March 2024, she takes us through a process of reviewing our day (or the previous day) at micro-points to reflect on instances, interactions or events that brought us joy, happiness or contentment.  She encourages us to reflect on these moments to express appreciation for them.  They don’t have to be big happenings, but by reflecting on the small positive moments in our life, we can cultivate gratitude on a daily basis.

Kim is co-founder and facilitator of Space Between, a not-for-profit organisation dedicated to bringing the benefits of mindfulness to teachers and school-aged youth.  She has a Master’s Degree in Child and Adolescent Psychology and is a certified meditation and yoga teacher.  Fun-loving Kim is a strong advocate and practitioner of deep listening and draws inspiration from Thich Nhat Hanh’s quote, “Live the actual moment. Only this actual moment is life”.   

Space Between draws its name from Viktor Frankl’s book, Man’s Search for Meaning, and his observation that:

Between stimulus and response, there is a space.  In that space lives our freedom and our power to choose our response.  In our response lies our greatest happiness.

Guided meditation process

In her guided meditation, Kim helps us to explore the minutia of daily life and to learn to savour each moment that has enriched our lives in small and significant ways.  Her process begins with encouraging us to take two deep breaths, inhaling through our nose and exhaling through our mouth, as a way to become grounded for the meditation practice.  This initial breathing process could be accentuated by vagal toning.  She then leads us to reflect on different stages in our day.  The reflections below are my own recollections of moments I appreciated as I progressed through her “Cultivating Gratitude Daily” practice:

  • Waking up –  the warm morning hug from my partner; the sound of birds greeting the morning light (especially the Kookaburras and their raucous “laughter”); the red and yellow glow of the sunrise spreading across the horizon and being reflected in the waters of Moreton Bay; the view of Green Island and its sandy beach from my lounge room and deck; the sand dunes of Moreton island providing a very white backdrop; the early morning silence punctuated by the calls of birds and the sea breeze.
  • Moving from the bedroom – appreciating having the water and toothpaste to brush my teeth; the opportunity to shower and freshen up for the day in a bathroom (instead of in a lake or river); observing the sunlight spreading throughout the rooms of the house I share with my partner and one of my sons; having a house to live in that is spacious and open to views of the Bay.
  • Beginning the day – being able to make a cup of coffee on our Expresso machine; having access to Almond Milk (to avoid dairy milk intolerance);  savouring the foam and taste of the cappuccino I made; providing a coffee for my partner; having distilled water and vitamins to energise my day; enjoying gluten-free toast and avocado for breakfast; watching the birds feeding off the nectar from our native Bottlebrush trees; enjoying the colour and shape of the Bottlebrushes.
  • Transition to work, play, or  exercise – having a focus and a purposeful task such as my blog and book; being able to write well; having a talent for integrating ideas, concepts and practices from multiple sources; having focus and clarity (not encumbered by “brain fog”); being able to form an intention and pursue it; being able to create poems to reflect my thoughts and emotions.
  • Transition to home life – being able to walk on the Esplanade beside the Moreton Bay;  seeing pelicans gliding gracefully across the water at the creek’s edge and resting contentedly on rocks beside the seagulls as they survey the surrounding Bay waters glistening with sunlight; having access to shops to buy a wide assortment of foods; having food to prepare for dinner; preparing the dinner meal for my partner and son;  the pleasure of eating and sharing; the taste of food and drink (peppermint herb tea).
  • After dinner – sharing a favourite TV show with my partner; being able to watch the Olympics and European soccer (having the resources to fund streaming services such as Stan and Kayo).
  • Sleeping – being able to sleep (not suffering from insomnia); having a comfortable and warm  bed to sleep in (not sleeping in the street on our Winter nights); the stillness of the night.

Kim points out that the “cultivating gratitude practice” has many benefits.  She maintains that it offsets the negative bias of our brains and the tendency to focus on what is unpleasant or dissatisfying.  Kim argues that gratitude builds resilience, displaces envy and resentment and builds a positive mindset. In her mindfulness training with teachers and school-aged youth, she aims to help them to achieve “integration and wholeness”.  Cultivating gratitude helps us to get in touch with ourselves.

Kim and her colleagues at Space Between employ trauma-informed mindfulness training to help members of the school community to use the space between stimulus and response to make better choices for the benefit of themselves and their community.   Research supports the organisation’s observation that undertaking mindfulness practices intentionally provides “systemic support for the mental health and well-being of students, teachers and families”.

Reflection

The “Cultivating Gratitude Daily” practice helps us to grow in mindfulness and experience the benefits of heightened creativity, greater calm and clarity, and improved focus and productivity.   It assists us to see more clearly what we have in life – the things that bring us happiness and joy and builds positivity that contributes to increased resilience.

It also helps me to appreciate the opportunity to pursue a purpose, the creation of this blog, that is helpful for other people as I contribute to awareness of what resources are available to develop mindfulness and the multiple benefits that can accrue from pursuing mindfulness intentionally.

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Image by John Hain from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Meditation for Clarity and Calm at Work

Neuroscience has highlighted the multiple benefits of mindfulness practice.  These include the capacity to pay attention, sustain task-focus and regulate our emotions.  Mindfulness can contribute to our overall happiness by enabling us to be in the present moment (rather than the past or future), to sustain positive emotions and recover from perceived adverse events.  Mindfulness enhances our capacity in a work situation by  enabling us to handle abstract ideas, to be reflective and to strengthen the communication between the hemispheres of the brain.  Nadine Cherry who teaches meditation and other mindfulness practices to corporate organisations around the world, maintains that meditation can also develop clarity and calm.

In a 12-Minute Meditation podcast  (25 April 2024), Nadine facilitated a session on the theme, Meditation to Cultivate Calm and Clarity.  In that session, she introduced two mindfulness practices that she contends can be used in the workplace or when working at home.  They are short and can be undertaken anywhere:

1. H.A.L.T. Practice

In this process we can explore the bodily sensations and our thoughts  associated with hunger, agitation, loneliness and tiredness. It involves stopping for a brief period to focus on each of these states and how they are affecting us in the present moment.  It requires tuning into our bodies and our thoughts to assess where we are at in terms of these four human conditions.  It also involves reorienting ourselves when we find that we are being impeded by what is going on both in our bodies and our minds. Nadine maintains that this mindfulness practice can contribute “to inner peace and outer performance at work”.  It can be very useful as a prelude to a potentially tense meeting, a formal presentation or a challenging conversation. 

2. Vagal Toning

Vagus nerves are a critical component of our parasympathetic nervous system and are responsible for creating signals between our brain, heart and digestive systems.  Before challenging activities at work, we can experience tightening of our throat or chest.  Vagal Toning involves deep breathing and exhaling with a particular sound that relaxes the vagal nerves.  The process requires deep inhaling through the nose and then exhaling while making a “v” sound.  This action expands the chest and calms the body, enabling clarity of thought and decision-making. Vagal toning helps us to become more grounded and connected to ourselves, enabling us to relax and to achieve optimal performance in the moment.

Nadine asserts that these two mindfulness practices facilitate “authentic expression” and enable us to overcome “overwhelm” when working.  By helping us to become more connected to ourselves, they assist us to become clear about what we want to do and say in a work situation.

Reflection

While listening to Nadine’s podcast and participating in the mindfulness practices she described, I recalled another calming benefit of mindfulness that has personal relevance to my health situation.  I had been watching Dr. Darin Ingles’ Q & A video presentation on the Inflammatory Auto-Immune Response where he mentioned strategies to manage Mast Cell Activation Syndrome (MCAS) – a condition that I am currently experiencing.

Mast cells release chemicals that produce an inflammatory response to a “perceived invader” – something the body may misperceive as harmful (e.g. a particular protein found in gluten or milk).  The activation of the mast cells can range on a spectrum from mild to severe.  Darin maintains that in addition to medication, natural processes such as bodywork “can be helpful in resetting your autonomous nervous system and getting it back under control”.  He mentions explicitly bodywork such as meditation, Tai Chi, acupuncture, vagal toning, yoga and deep breathing as being especially helpful in toning down the body’s “hyper-active” immune response.

The calming influence of Tai Chi on MCAS provides an added motivation for me to practise Tai Chi regularly.  I have previously developed a mnemonic, FRAICHE, to remind me of other potential benefits of this mindfulness practice – flexibility, reflexes, awareness, intention, concentration and coordination, heart health and energy.  So, as we grow in mindfulness through practices such as H.A.L.T. , vagal toning and Tai Chi we can calm our body and mind and develop clarity in our thinking and decision-making.

Darin is the author of The Lyme Solution: A 5-Part Plan to Fight the Inflammatory Auto-Immune Response and Beat Lyme and provides a regular podcast on health issues, Resilient Health Radio.

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This post is provided for information purposes only and is not intended to replace personal medical advice provided by a trained medical practitioner.  Please seek advice from a qualified professional before deciding on treatments for yourself or other members of your family.

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Image by Fabiana pfernandes from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Managing Adult ADHD

Recently BrainWorx launched a virtual interview series that they called the ADHD Toolbox Live with more than 20 speakers involving both live and prerecorded interviews.  Some of these highly informative interviews are available on the BrainWorx blog.  The Mayo Clinic explains that Attention-Deficit/Hyperactivity Disorder (ADHD) is a chronic condition in some children and adults that cannot be cured but can be managed through behavioural interventions and medication.

Mel Robbins in her podcast, Six Surprising Signs of Adult ADHD, draws on her extensive research and interviews with leading ADHD experts to explain that ADHD is “a chronic neurobiological disorder” that has an impact on the brain both structurally and chemically and can affect how the brain communicates amongst its various parts.  

Duane Gordon, President of the Attention Deficit Disorder Association (ADDA), explained in his BrainWorx Toolbox presentation that ADHD results in “differences in brain development” that can negatively impact capacity to pay attention, to exercise self-control and to remain inactive (“being hyperactive” – a description often given to “naughty children” at school).

Misconceptions about ADHD

Duane was at pains to explain that there are many misconceptions/myths surrounding ADHD.  These misconceptions include:

  • The belief that ADHD is only a children’s disorder – increasingly adults are diagnosed with it when an adult (however, research shows that ADHD is formed before 12 years of age)
  • The assumption that people with ADHD “lack intelligence” (the opposite is often true)
  • The exhortation that people with ADHD should just “try harder” (which Duane explains is the most damaging of all misconceptions because it attacks a person’s self-esteem as they are already doing everything in their power to “keep afloat” with everyday demands).
  • The perception that ADHD is a “little inconvenient” (Duane explains , however, that ADHD can deeply affect every facet of your life – such as financial health, career and relationships).  Duane, who himself has ADHD, comments that it “digs into every aspect of your life”.

Symptoms of Adult ADHD

In her podcast of the six surprising signs of adult ADHD, Mel Robbins identifies the following key characteristics:

  1. Hyperfocus – ability to focus intensively in particular settings (e.g. when working on a creative project or writing) despite an inability to focus in other settings (e.g. with children, hyper-focus on computer games but inability to pay attention in class at school)
  2. Difficulty controlling emotions – can be impulsive, easily frustrated and reactive
  3. A tendency to shop impulsively and over-spend – Mel cites Dr. Amen who explains that the compulsive shopping or drug and alcohol abuse can be an attempt to “stimulate the brain with a dopamine rush” (a chemical that has a role in learning, attention & mood)
  4. Time management problems reflected in lateness, being the last person to arrive
  5. Capacity to function at a high level – workaholism (including “all-nighters”) and entrepreneurial success
  6. Highly self-critical – constantly “beating up” on oneself for “disappointing everyone”.

Mel, however, drawing on the work of Dr. Ellen Littman and others who co-authored the book, Understanding Girls with ADHD, points out that the ADHD symptoms of girls are often different to those of boys.  She explains that this contributes to the fact that adult women are often diagnosed with ADHD later than men.  Mel herself was diagnosed with ADHD at the age of 47 (by accident when her son was formally diagnosed with the same condition).  She explains that the major difference between women (girls) and men (boys) with ADHD is that the symptoms are typically internal rather than external. 

Boys, for example (like her son), express their symptoms physically such as impulsive physical behaviour, fidgeting, inability to keep still, inability to pay attention and concentrate, easily distracted, continuous leg movement and a tendency to interrupt proceedings (such as classes).  Girls/women (like herself) tend to daydream and are disorganised and forgetful, and are hard on themselves, seeing their ADHD as a “character flaw”. 

Mel notes, again drawing on the work of Dr. Littman and colleagues, that the outcomes for girls tend to be worse than those for boys – resulting in low-self-esteem, self-loathing, eating disorders, and suicidal ideation.  In common with boys, girls can experience “overwhelm” but Ellen Littman contends that outcomes for girls (and women) can be “horrendous”.

Managing Adult ADHD

Duane argues that a starting point is to “embrace” your ADHD.   By this, he means to “look for aspects that make you special” such as storytelling, leadership capability, capacity for public speaking and creativity.  He points out that some of the world’s leading entrepreneurs have been diagnosed with ADHD as adults.  He explains that when people are first diagnosed as adults they tend to experience shock, feel shame, resist the diagnosis and tend to become absorbed in regret.  He notes, however, that many of the forward-looking organisations are seeking out people who are neuro-divergent because they “think outside the box”.

Duane was diagnosed with ADHD as an adult in similar circumstances to those of Mel – his own diagnosis was accidental when his daughter was diagnosed with ADHD.  He explained that when he was first diagnosed with ADHD he did not have a phone number on his business card because he could not talk to people – now as President of ADDA he talks to people all over the world about the condition and its personal and social impacts. 

Duane strongly advocates for self-compassion, which involves not only self-acceptance but also self-forgiveness.  He explains that there is often a stigma attached to ADHD because “neuro-typical” people tend to attach negative meanings to the ADHD condition, they are blind to the unique talents of those people who are “neuro-divergent”.  Kevin Bailey, a Certified ADHD Coach, argues in his ADHD Toolbox interview, that we should acknowledge that “we’re all perfectly imperfect” and suggests that adults with ADHD could employ his strategy of acting “as fast as I can, as slow as I need”.  His interview with the Wired for Winning video podcast relates his experience of “otherness” as a neuro-diverse, black person with ADHD and Autism.

Duane counsels us that everyone’s ADHD is different – he comments that his daughter’s ADHD “is different to mine”.  Accordingly, it is not possible to offer a precise solution for an individual adult for managing their condition, there is, in his words, a “group of solutions” that others have found helpful and can be used as personal experiments to see what works for you.

Duane strongly recommends the social support offered by a community of people with adult ADHD such as that offered by ADDA, the largest such organisation in the world.  Not only does ADDA provide resources but it also facilitates exchange between members so that people can share their stories, the manifestations of ADHD in their lives and the solutions that have worked for them.  This is similar to the healing power of storytelling embraced by the Creative Meetups hosted by the Health Story Collaborative (HSC).  Duane suggests that organisations such as ADDA help adults to “take your ADHD and discover it for yourself” – facilitating the process of learning, experimentation, making adjustments and continuously applying new learning.

ADDA provides a free monograph which offers what it calls, 5 Pillars to Manage Your ADHD:

  1. Learn self-acceptance
  2. Take control of your life
  3. Get enough sleep
  4. Avoid over-committing
  5. Engage a support system

Duane’s interview for the ADHD Toolkit, Why Entrepreneurship is a Great Match for ADHD, can be found here.

The metabolic approach to managing adult ADHD

Mel in another podcast interview with Dr. Chris Palmer, Harvard psychologist and author of Brain Energy, explored the metabolic approach to managing adult ADHD.  In the podcast, The Truth About ADHD in Adults, she delved into metabolic health issues as the root cause of mental health disorders.  This led her to a discussion with Chris about key elements impacting metabolic health such as nutrition, sleep , exercise and other lifestyle elements – all of which can negatively impact brain functioning when they are lacking or inadequate.

Chris argues that an elimination diet over two weeks could help to identify what foods you are sensitive to, e.g. dairy and gluten (which could lead to brain inflammation).  He contends that metabolic health (and associated brain functioning) can be improved by increasing protein intake, lowering carbohydrates, eliminating alcohol and smoking (vaping) and undertaking daily exercise (even Cardio 2 level exercise – e.g.,  light jog, hiking, swimming).  

Chris maintains that children with ADHD internalise the messages they receive at school and elsewhere, e.g., “you are a “problem child”, and this negatively impacts their self-esteem, both in childhood and adulthood.  From his research, he contends that 50% of people with ADHD have “more than one diagnostic label”, e.g., Autism, Bipolar Disorder, and 10% will develop Schizophrenia.

Reflection

Gaining knowledge about ADHD helps us to understand better the challenges faced by adults with this condition.  It can help us to develop greater tolerance of their hyperactivity, messiness, disorganisation, inability to concentrate, poor time management and incapacity to “remain on task”.

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Image by Chen from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Surrendering to the Process of Shedding Old Beliefs

There are times when we have to shed something of ourself that we hold dear – our beliefs, our self-stories, or an aspect of our identity.   Sharon Salzberg, in her new book Real Life, describes this shedding process as “the movement from constraint, narrowness and limitation to openness, connection, and freedom”.   Shedding was the topic introduced by Jennifer Harris, the facilitator of our recent Creative Meetup.

Jennifer introduced the theme of shedding by sharing Harryette Mullen’s poem, Shedding Skin.  Harryette likens the process of shedding to stripping off “old scarred skin” and “sloughing off deadscales”.  In her view, it involves being open to vulnerability by “shedding toughness, peeling layers down”.   Jennifer also introduced the words of a song by Florence and the Machine in which she sings, “And in the Spring I shed my skin”.  These words from Rabbit heart (Raise Me Up) are interpreted to mean “shed timidity and become courageous”.

Shedding old beliefs

Neale Donald Walsch, in an interview with Kute Blackson for the Soul Talk Podcast, spoke at length about the challenge of giving up old beliefs.  He had been told by his father not to talk to black people because “they were trash”.  He sustained this belief for some time because he thought it would be disrespectful to challenge the authority of his parent.  However, his own life experience as a radio host caused considerable cognitive dissonance for him to the point where he had to shed his old belief about black people.  Neale found that when interviewing for his radio show the audience was predominantly black and he found that they were, in fact, “brilliant and incredible…nice human beings” and ended up having lunch with them and seeking a close friendship with one black person in particular.  He had to shed his old, wrong beliefs about black people to overcome his cognitive dissonance and sustain his relationships with members of his audience.

Neale also had to shed his beliefs about women (again taught by his father) – “women should take care of the house and kids and not being paid equally, not being as bright as men”.  This belief undermined his relationships with women and resulted in multiple failed marriages.  His beliefs about women were constraining, limiting and narrow.  It took regular relationship crises for him to challenge his beliefs and to learn to behave differently in his relationships with women.  So, disconfirming evidence and/or life crises can lead to shedding wrong or outdated beliefs.

However, some people continue to maintain firmly held beliefs despite disconfirming or conflicting evidence and will defend them with overt or covert aggression.  I learnt this at my own expense when I was a young manager in the 1980’s.  I participated in a national conference for State Managers of Training held by the Australian Taxation Office in Canberra.  At one stage in the process, an Assistant Commissioner of Taxation (2IC) joined us to provide moral support for the Central Office Training Team (who were “under fire” from the State representatives for trying to centralise all training).  During the Assistant Commissioner’s presentation, I politely challenged his statement that “The Taxation Office is at the forefront of technology in Australia.”  I explained that at a State level the opposite was true – in fact we were years behind the private sector at the time.  I was publicly abused for my challenge to his firmly held belief (which, while no longer true, was true in the 1960s and early 1970s).  His abuse was so memorable that I was stopped in the street 10 years later by a participant from another State who recalled the “abuse”.

I also learnt again painfully that people in authority can protect their beliefs by covert aggression as well as overt aggression   When I was an academic, I was introducing action learning into my university and using it as a basis for my PhD research.  My Dean opposed my endeavours by trying to prevent my appointment as a tenured academic as well as my overseas travel for a World Congress on action learning in Colombia (I was a member of the international organising committee).  He eventually prevented my promotion to a Senior Lecturer – in the feedback afterwards, telling me that “you had the best application [because of my experience and rating as a teacher], but you are using a non-mainstream approach in your PhD research”.  Action learning promotes the view that we are all “personal scientists” building expertise through life experiences and reflection on our experiences – a position that conflicted with my Dean’s belief in the expert role of academics and the role of Universities as being the “repositories of all learning”.  In consequence, he used covert aggression to try to prevent my academic advancement.

Shedding self-stories

Negative self-stories can develop through the influence of our parents, teachers, peers or colleagues.  These self-stories can shape our beliefs about ourself and our worth and influence our behaviours in the face of difficulties and life’s challenges.  Negative self-stories can arise through traumatic experiences and are often at a sub-conscious level.  Self-beliefs such as “I’m not good enough” can arise from behavioural messages of parents (e.g. through neglect, constant criticism, or extended absences).  The “need to please disease” as a hidden motivator can also arise from a belief that “I’m not lovable” and “I have to be nice to be liked and not rejected”.

It is difficult to overcome adverse childhood experiences that are often behind negative self-beliefs.  Tara Brach suggests that mindfulness practices (such as mantra meditation, writing and reflective conversations) can help us to loosen false beliefs about ourselves.  She offers a process for investigating and challenging false beliefs about ourself.   She argues that as we grow in mindfulness we can develop the self-awareness necessary to enable us to identify our habituated behaviour and to name and challenge our false beliefs.  In the process, we can loosen the hold of our false self-beliefs, restore our energy and engage more positively and creatively in everyday life.

Surrendering to the process of shedding

Participants in our recent Creative Meetup discussed the difficulty of letting go of old beliefs.  They suggested that the process takes time, patience and self-compassion.  They discussed the movement from the pain of shedding to the realisation of potential.  They suggested that the process of taking on new beliefs is uncomfortable, moving from the known to the unknown. 

The rewards of surrendering to the process of shedding beliefs were valued and highlighted.  They talked about “a new way of seeing”, removal of blinkers, experiencing release and empowerment, and accessing a “deeper self” and a “a new way of being”.  The challenge of surrender is real, but the rewards are great.

Tara Brach, with Jack Kornfield and colleagues, offers an online course, Power of Awareness, that is designed to help us “break free from negative thoughts” to realise balance, peace and joy.  They offer a mindful approach to achieving a quiet mind by bringing awareness and self-compassion to our “inner dialogue”.   I have undertaken this course and found it highly beneficial.

Reflection

Lulu & Mischka in their mantra meditation, Metamorphosis, capture the essence of surrendering to the process of shedding.  They encourage us to “keep letting go”, “trust in the process”, relax into the present and “stop resisting”.  If we can do this through mindfulness practices such as reflection and mantra meditations we can achieve healing and a metamorphosis that will enable us to spread our wings and fly higher.  This exhortation resonates with Sharon Salzberg’s encouragement to move from constraint to freedom, from narrowness to connection. from limitation to openness.  I have expressed these insights in the following poem:

Surrender to Shedding

There comes a time in our life when we have to shed old beliefs.
Slough off our limiting self-beliefs,
Remove constraints on our thinking,
Break down the barriers of our defence mechanisms,
Let go and stop resisting,
Surrender to the process of casting aside what no longer works for us.

The shedding process is painful.
Discomfort with the new,
Feeling lost,
Leaving behind the known,
Moving to uncertainty,
Open to anxiety.

The rewards of shedding are great.
Releasing from constraints and limitations,
Achieving a new sense of freedom,
Moving from pain to possibility,
Discovering a new creative self,
Flowing like a river, rediscovering “Flow”.

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Image by Jonathan from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Forgiveness: Forgiving Others and Ourselves

Forgiveness is hard to do, whether we are trying to forgive others or ourself.  It’s not a one-off event but is an evolving process which is why experts in the area suggest that we start off small – with a minor incident or hurt.  Forgiveness engages our feelings as well as our mind and body.  It is something that we have to work at consciously if we are to achieve our goal of “letting go”.

Forgiving others

Frank Ostaseski, author of The Five Invitations: Discover What Death Can Teach Us About Living Fully, suggests that one of the lessons from the dying is, “Don’t Wait to Forgive”.  In his extensive hospice experience he found that too many people were consumed by anger and rage on their death bed because they were unable to forgive others.  He argues that we should not wait until we are dying to forgive others and ourself.  Frank maintains that there is a natural resistance to forgiveness because we have a need to maintain our self-image (of goodness/perfection) and find it difficult to acknowledge that we are carrying challenging emotions such as anger, resentment and regret.   However, there is a real cost to ourselves and our relationships when we hold onto these emotions.

Danette May in her memoir, The Rise: An Unforgettable Journey of Self-Love, Forgiveness and Transformation, argues that we need to “cut the rope”, or as Frank puts it, “letting go”.  These difficult emotions can hold us back, causing self-absorption and “emotional stunting”.  There is a real challenge involved in acknowledging our part in an interaction (or multiple interactions) that was hurtful.  We need to be able to see things from the other person’s perspective and understand what was driving their behaviour.   Frank suggests that in the final analysis, we need to be able to honestly face up to “what we don’t like in ourselves”.

Fred Luskin contends that there are three elements of a grievance that contribute to our “maintaining the rage” and sustaining the hurt:

  1. Preoccupation with the ”offence” and exaggerating its negative impact on us
  2. Insisting that others are to blame for our negative/difficult feelings
  3. Developing and perpetuating a “grievance story”.

Fred argues that the real costs of not letting go are extensive.  Not only do we lose our personal power because we are “controlled by emotions”, but also we lose the ability to focus and achieve peace and wellness.  If we are consumed by anger, hatred, resentment or envy we can’t see past our hurt and we use all our energy in sharing our story and maintaining our sense of hurt.

Forgiving ourselves

The starting point for self-forgiveness is acknowledging our part in the hurtful interaction. It is incredibly difficult to forgive ourselves for the hurt we cause to others – it can be a lifelong process.   Part of the challenge is dealing with strong feelings of guilt and shame – feelings that go against the grain and undermine our sense of who we are.  We can blind ourselves to our negative impact on others because it is too hurtful to ourselves to own up to our part in hurtful interactions.

Jack Kornfield in the Power of Awareness Course argues that there are three myths that underpin our reluctance to engage in self-forgiveness:

  1. Self-forgiveness is a sign of weakness – the reality is that it takes a lot of strength and courage to face up to our hurtful words and actions
  2. We can forgive ourselves through a “quick fix”, e.g., a short meditation or exercise
  3. Forgiving ourselves is condoning our hurtful behaviour.

Elisha Goldstein cites Lily Tomlin when discussing forgiveness of others, Forgiveness means giving up all hope for a better past.  This insight can as readily apply to self-forgiveness as to forgiving others.  In self-forgiveness, we have to give up our “grievance story”, let go of wishing that we had behaved better and dismantle our defenses that prevent us from acknowledging our part in a hurtful interaction.

Mindfulness – a path to forgiveness

When we develop a mindful disposition by observing our inner landscape – our thoughts, emotions and bodily sensations – we can reduce our negative thoughts and increase our ability to forgive.  Mindfulness can develop our “disposition to forgive” – it can unearth grievance stories, clarify our part in any interaction, help us to take the other person’s perspective, increase our awareness of negative emotions and related bodily sensations and cultivate compassion.  Ultimately mindfulness can help us to develop self-awareness and emotional regulation so that we are not captive to our strong, challenging emotions and can live in the present rather than the hurtful past.

Forgiveness meditation

There are multiple forms of forgiveness meditation.  Loving kindness meditation, for example, has been shown to cultivate compassion towards others as well as self-compassion.   Sharon Salzberg, experienced mindfulness trainer, offers a three-part forgiveness meditation encompassing:

  1. Seeking forgiveness from someone you have hurt or harmed
  2. Offer forgiveness to those who have hurt or harmed you
  3. Self-forgiveness for the times you have harmed yourself through being judgmental.

Sharon includes an affirmation related to the last point, For all the ways I have hurt or harmed myself, knowingly or unknowingly, I offer forgiveness.  Other meditation trainers, such as Mitra Manesh, focus the self-forgiveness on the harm that we have caused to others, rather than to ourself.  Mitra, in her forgiveness meditation podcast, places a lot of emphasis on becoming aware of our bodily sensations as we deal with the “heavy energies” involved in holding onto grudges, anger or rage.  She also suggests a mantra for seeking forgiveness from others, For all the ways that I have caused you pain and suffering, I ask your forgiveness.

In reflecting on a number of forgiveness meditations, I identified four common principles underpinning the meditation process:

  1. Stay grounded, relaxed and focused
  2. Manage distractions through an anchor such as your breath or sounds
  3. Start small with something that is manageable and recent (limited history or replaying)
  4. Adopt a healing perspective – show loving kindness to others and yourself.

We can develop a mindful disposition in multiple ways , not just through meditation.  As we grow in mindfulness we can more readily adopt the perspective of others and understand their hurt.  We can own up to and name our own feelings, however negative or challenging. Over time, our disposition to forgive and our capacity to offer forgiveness to others and ourself will grow almost invisibly.

Reflection

Forgiving ourself can be a lifetime pursuit as I have found in trying to forgive myself for my part in my marriage breakup which occurred more than 40 years ago.  This is something I am working towards.  I find that forgiving others and forgiving ourself are interwoven activities – not discrete, independent steps.

I have also been reflecting on my long-standing anger towards my Father for his alcoholism and its major impact on my childhood and my family.  I recently started crafting a poem called Paternal Forgiveness which I will publish soon in this blog.  In the poem, I offer forgiveness to my father, seek to forgive myself for my harsh judgments and express my sorrow for the hurt that I had caused him when he was alive.  In writing the poem, I have drawn inspiration from Kim Rosen’s book, Saved by a Poem: The Transformative Power of Words.  In the book, Kim describes how poetry has helped people to deal with challenging situations, including the need to forgive others and themselves, and provides insight into the transformative elements of a poem.

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Image by Pete Linforth from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Joni Mitchell: An Inspiration for People with Chronic Illness

Legendary singer-songwriter Joni Mitchell has been an inspiration to millions of people and particularly those who suffer from chronic illness or experience long-term disability.  You only have to look at comments on YouTube about her Blue Album to see how Joni has impacted the lives of so many people – people suffering from loss, grief, pain and stress and recalling the joyful moments and the feelings of hope when they heard her sing.   She has the ability to positively touch the lives of people of all ages, as evidenced by her triumphant performance of Both Sides Now at the 2024 Grammy Awards.  The recognition of her stellar career was reflected in her 10th Grammy Award that night and her earlier (2002) Recording Academy’s Lifetime Achievement Award.

Joni’s health challenges and courage

The story of Joni’s health challenges and her positive approach to overcoming them is a source of inspiration in itself.  She had to learn to walk again after being diagnosed with polio in 1952 when she was 9 years old.  She suffered the painful and crippling effects of polio for 40 years, initially overcoming the disease in 1995, only to then experience “post-polio syndrome”.  If Joni had accepted the mantra of many medical practitioners about aging, she could have taken their advice “to lie down and die”, accepting one of the myths of aging.  Instead, she chose to seek alternative medicine options and to fight on.

On a number of occasions, Joni spoke about her experience of Morgellons disease which she described in 2010 as a “weird, incurable disease”.   The Mayo Clinic describes the disease as creating “a belief that parasites or fibers are emerging from the skin” and involving  an “intense itching and sores”.  The Centre for Disease Control and Prevention in their 2012 report stated that the “skin lesions and/or disturbing skin sensations” along with “multi-system complaints” can result in a “significantly reduced health-related quality of life”.   Health problems reported by respondents to the research included chronic fatigue, overall poor health and cognitive deficits.   

Joni herself reported in 2014 that her immune system was severely taxed by the Morgellons disease which restricted her ability to fly and made touring impossible.  Her response to this debilitating disease was to say that she was not regretful about her condition but was enjoying the creative process away from singing – “painting, revisiting her music, prepping a four-act ballet or an upcoming collection of stories”.   This clearly reflects her indomitable spirit and her ability to focus on what she did have, not what she had lost.

Her resilience was again severely tested in 2015 when she suffered a brain aneurysm.   In an interview with Cameron Crowe in 2020, Joni stated that the aneurysm took more away from her than her polio – it “took away my speech and my ability to walk”.   Her ability to talk returned relatively quickly, but even at the time of this interview she still struggled to walk.  Doctors had advised her that she would “never walk again” but she stated categorically that she would walk again.  She indicated at the time, “I’m a fighter” (with Irish blood) and told herself, “Here I go again, another battle”.   

The aneurysm appeared to rob Joni of her singing voice, but in 2018 when some musical friends, including Elton John, turned up at her house for what had been famously called a “Joni Jam”, everyone was surprised and delighted when Joni joined in the singing with her “warm and familiar voice”.   Joni indicated that she was moved by the spirit of the group and stated that “I forgave myself for my lack of talent” (having “lost her soprano voice” and only being able to sing “a low alto”).  

Joni continued her fight against her chronic illnesses and, in 2023, made a triumphant return to concert singing in a three-hour Joni Jam organised by American singer-songwriter Brandi Carlile and involving friends such as Annie Lennox and Sarah McLachlan.   Joni’s life journey can be revisited through BBC Radio 4 Legend’s Podcast – seven episodes of the Joni Mitchell story.   Her journey into singing and songwriting can be reviewed through the Joni Jams Podcast which “goes album by album through Joni Mitchell’s entire discography”.

Reflection

During the most recent Creative Meetup, participants engaged in healing storytelling (in writing and orally) partly stimulated by Joni Mitchell’s song, Both Sides Now.  Joni’s emphasis on “I really don’t know clouds [music, love, life] at all” resonated with participants who shared their experiences of unintentional exclusion by others.

For some, the metaphors that we commonly used can exclude others whose experience differs, e.g., for people who are extremely “light sensitive”, metaphors such as “silver lining” or “let the bright side in” can contribute to their sense of isolation and exclusion.  For people who experience food sensitivity or allergies, metaphors such as “sweet as a mango” can be alienating.  For others, established traditions or practices such as enforced prayers as a child or Australia Day Celebrations can trigger memories of terror and/or loss.  As one participant noted, “Unless you are in my shoes, you don’t really know”.

The Creative Meetup hosted by the Health Story Collaborative provided ample evidence of the healing power of storytelling and the energy and insight generated by compassionate listeningJennifer Harris, the facilitator of the Meetup session on Zoom, introduced Emily Dickinson’s poem, “Hope” is the thing with feathers, and this led to a participant’s comment that “hope emerges from dark places” – sometimes, when there appears to be “no hope”.  As all participants in the HSC Meetup are people who are living with illness or disability or are carers, they were able to draw comfort, support and inspiration from Joni Mitchell’s struggle with ill-health.

My reflection on our Meetup is captured in the following Compassionate Listening poem that I wrote after our meeting:

Compassionate Listening

What you see is not what I see.

What you hear is not what I hear.

Your world is not my world.

Your feelings are your own.

I can’t know your reality.

I can only listen with compassion

… and openness to what is different for you.

I can learn to adopt a “don’t know” mindset.

As we grow in mindfulness through compassionate listening, reflection and sharing our story, we can deepen our self-awareness, cultivate openness and build resilience.

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Image by xiSerge from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Mast Cell Activation Syndrome and Covid-19: The Invisible Link

There has been a lot written lately about Long Covid and its differential impacts on individual’s health.  More recently research has highlighted a connection between Covid-19 and Mast Cell Activation Syndrome.  It is important at the outset to reinforce the need to consult a medical practitioner for treatment of individual health symptoms.  We can too easily make assumptions about what is occurring for us if we go it alone.   For example, I assumed that my numb feet were the result of peripheral neuropathy caused by Long Covid.  When I consulted my medical practitioner, I  discovered, through the X-Ray that he requested, that my assumption was wrong – the actual problem was multi-level spinal degeneration.   However, it is important to consult practitioners who are open to multiple explanations of chronic symptoms, such as those induced by allergies and food sensitivities.  Often, this may involve a medical practitioner who has a holistic perspective and/or is  qualified in functional medicine.

I recently participated in a Creative Meetup conducted by Health Story Collaborative.  During the meeting, Diane Kane responded to a discussion by a number of participants who were experiencing Long Covid symptoms such as loss of sense of smell, brain fog, and allergies.  When I mentioned my ongoing battle with food sensitivities and allergies, Diane shared some information about Mast Cell Activation Syndrome (MCAS).  She explained that her website is a research hub for MCAS.  On the website, Diane shares her own extended patient story as well as research resources including a video presentation on MCAS by Dr. Larence B. Alfin, author of Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity.

What is Mast Cell Activation Syndrome?

Dr. Kelly McCann in a video podcast interview explains that mast cells are a key part of our normal immune system.  Their role is to watch for invaders that would cause injury to our bodies.  They reside everywhere in our bodies from our head to our feet, and typically live in areas of our body that are at our interface with the environment, e.g. our skin, our blood vessels and our nerves.

Mast cells are responsible for delivering chemical messengers, called “mediators”, such as cytokine and histamine, that produce an inflammatory response to the perceived invader, e.g. a virus, environmental chemicals, mold, or the flu.  Kelly points out that research has shown that mast cells play a major role in the “cytokine storm” that causes an inflammatory response to Covid-19.  If the “foreign invader” is overcome (e.g. we recover from Covid or the flu), “everything quiets back down again” and ‘inflammation goes away”.

However, for some people mast cells become over-active, “hyper-vigilant” and hyper-responsive” – a condition identified as Mast Cell Activation Syndrome (MCAS).  What happens then is that our body “misperceives things”, some of which are actually good for us, e.g. healthy foods.  Hence, we can end up with food sensitivities and allergies (to things like smells, chemicals and some foods).  Kelly makes the point that because of the pervasiveness of mast cells in our body, “anything in our body could present as a mass cell activation symptom”, e.g. brain fog.

Kelly explains that Mast Cell Activation Syndrome is “a spectrum” – ranging from mild to extreme.  A key feature of MACS is that over time, without intervention, there will be an “escalation in the inflammatory or allergic symptoms” of an individual.  The inflammatory response can be exacerbated by what Kelly calls “hits”, e.g. a virus, sustained exposure to mould, or a tick bite (leading to Lyme Disease).  For example, the progression of mast cell activation syndrome could be signalled by the worsening of food sensitivities for an individual.    

Diane’s personal health story

Diane created her website as a means of education and advocacy about the independent science research being conducted on mast cell activation syndrome.  Her own story is really about the extreme end of the spectrum of MCAS and is one of resilience, persistence and hope – a great source of inspiration for anyone experiencing MCAS symptoms.  Diane’s multi-dimensional health problems persisted over 46 years.  Despite visiting 80 consulting doctors and undergoing “extensive evaluations” at 15 major hospitals and suffering multiple anaphylaxis attacks over 20 years, she was not diagnosed with MCAS until 2017 when she visited Dr. Ali Rezale of the Cedars-Sinai Medical Center

Dr. Rezale and Dr. Alfin are working with Diane to improve her health overall.  In the meantime, Diane is working on writing a book titled, The MCAS and Covid-19 Theory: A Multidimensional Epigenetic Phenomenon.   As an experienced medical researcher and author who suffered long-term symptoms of MCAS, she is well-qualified to document her story and the growing body of relevant scientific research.  Diane provides draft copies of early chapters of her book on her advocacy website. 

My health story

I have experienced multiple “hits” as described by Dr. Kelly McCann.  Having had asthma as a child, I am prone to respiratory problems and allergic reactions.  While I overcame the asthma by the time I was 12 years old, since then I have contracted pneumonia three times, RSV (Respiratory Syncytial Virus) three times and Covid-19 in 2021.   In 2017, I experienced major eczema covering my whole body, following 8-weeks of intensive antibiotics to heal an infected leg (resulting from an operation to remove a melanoma).   Since then I have experienced continuous food sensitivities and allergy which are increasing in breadth and depth to the point that there are very limited things I can eat or drink without negative side effects. 

Dr. Kelly McCann explains that there are two things going on with MCAS – a trigger(s) and reaction(s).  Both need to be addressed.  In terms of food triggers, I can relate to Dr. Kelly McCann’s comment that she was gluten-free, dairy-free and unable to eat a long list of foods.  As Kelly suggests in her presentation, I have been undertaking an elimination process trying to identify specific foods (especially those high in histamine or salicylates) that cause aggravation of my symptoms so that I can remove them from my diet. 

In regard to reactions, Kelly argues that there is a need to dampen the hyperactivity of the immune response.  My naturopath, Dr. Mark Shoring, agrees with a tentative diagnosis of MCAS in my case, and recommended initially a course in Chinese skullcap (Scutellaria baicalensis), a herb identified by Mt Sinai Health System in New York as being “used in traditional Chinese medicine to treat allergies, infections, inflammation, cancer, and headaches”.  This treatment, along with Turmeric, is designed to dampen down my hyperactive immune response. So, my somatic strategies, at the moment, include identifying and eliminating aggravating foods and drinks while simultaneously calming the inflammatory response of my immune system.

Mind-body connection and healing practices

Kelly maintains that she experiences the influence of the mind-body connection everyday in her clinic when working with patients.   She points out that the impact of mind-body connections is developed through our early family and developmental experiences.  Unfortunately, we are often prone to misperceive these experiences or develop false beliefs that lead to emotional problems such as low self-esteem and emotional dysregulation.  She argues that we have to envisage the health challenge confronting people with MCAS in terms of a three-legged stool – Mast Cell Activation, Limbic System Activation (our emotional centre) and Vagus Nerve Dysfunction (the main nerves of the parasympathetic nervous system).

Kelly mentions a number of practices that can help retrain the limbic system to get our “mental/emotional loops” and habituated behaviour under control, e.g. Dynamic Neural Retraining System, the Gupta Program and Cathleen King’s Primal Trust Program.

Vagus Nerve Dysfunction can lead to people with MCAS becoming stuck in fight/flight/freeze behaviour which can impede healing.  Kelly maintains that the approach required here is stimulation of the vagus nerve to help people to get “back into parasympathetic rest and digest”.  She suggests approaches to achieve restoration of balance, e.g. breathing exercises, meditation and devices such as EmWave, HeartMath and Rezzimax.  Kelly mentioned that she uses mind-body techniques in her clinical practice when the person she is treating is receptive to these approaches.

Reflection

I think it is important to remember that MCAS impacts each individual differently.  The impacts are influenced by our biology and the number and severity of what Kelly calls “hits”.   There are so many confounding variables involved that self-diagnosis is likely to mislead us.  However, this should not stop us from being proactive, e.g. identifying and reducing or eliminating our triggers.  Actively seeking to grow in mindfulness can help us to stimulate the vagus nerve, activate our relaxation response and overcome negative thoughts.

Reading about Diane’s experience prompted me to revisit my naturopath and discuss his diagnosis of my food sensitivity and allergy experience.  He explained that his recommended treatment approach was based on the assumption that I was experiencing MCAS.

During one of my Creative Meetups, also attended by Diane, we listened to a reading of William Stafford’s poem, The Way It Is.  Listening to this poem and the subsequent discussion in the Meetup group prompted me to write a poem about my food sensitivities and allergy:

The Inflammatory Thread in My Life

There are many things I can’t eat
fruit, gluten, dairy and red meat.
I feel left out that I can’t share
even with delicious family fare.
I crave something sweet
but the cost is too steep.
Hives and rashes make me really itchy
legs and feet are shamefully icky.
Wine is off the table, not that I am unable
it’s the swollen ankle, that renders me unstable.
The endless cycle of elimination
to discover the source of inflammation.
It’s harder to share a meal with my wife
what I’ve done for forty years of my life.
Covid-19 has a long arm
it’s still doing me harm.
Almond croissants are my passion
a loss of consciousness my reaction.
Butter was a food sensitivity
It’s now a dangerous allergy.
Food and drink are tainted rewards
a mindset change to move forward.
It’s a long journey with a clear destination
It takes patience, perseverance and dedication.

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This post is provided for information purposes only and is not intended to replace personal medical advice provided by a trained medical practitioner.  Please seek advice from a qualified professional before deciding on treatments for yourself or other members of your family.

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Image by Ingo Jakubke from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

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