Autumn: A Time for Reflection and Shedding

The Health Story Collaborative sponsors a monthly, online Creative Meetup for people anywhere in the world who are experiencing chronic illness or disability.  The Meetup via Zoom is facilitated and is designed to enable participants to spend time writing while in a supportive community and, in the process, “to access and release our emotions, personal stories, and creative spirits”.  The Health Story Collaborative was created by Dr. Annie Brewster, author of The Healing Power of Storytelling: Using Personal Narrative to Navigate Illness, Trauma and Loss.

During our Creative Meetup session in September, Jennifer Harris (our facilitator) guided us in reflecting on Autumn and the significance of the season in terms of harvesting and shedding.  By way of stimulus, Jennifer quoted Mary Oliver’s Fall Song and the words of F. Scott Fitzgerald, “Life starts all over again when it gets crisp in the fall”.  This led to a session for our creative writing around the themes of “harvesting” and “shedding”.

Autumnal reflections

The four seasons of the year are often used to represent times of transition.  Vivaldi’s Four Seasons – “four violin concerti giving musical expression to a season of the year” – epitomises the seasonal transitions we can observe in temperature, the migration of birds, changes in landscapes and in human behaviour.  Autumn is associated with harvesting, the gathering of food and growing fur by animals to prepare for the impending winter and significant temperature/weather changes.  Many cultures celebrate the arrival of autumn with rites and rituals, especially the Autumnal Equinox (when day and night are equal in length) occurring at the start of Fall (Autumn). 

Autumnal rites and rituals often signify change and harvesting.  In Japan, the National Autumnal Equinox holiday is a time dedicated to paying respect to “deceased parents, grandparents, and other family members”.  In India, Autumn is a time of cleansing.   There are various rituals involving shedding to reflect the falling of leaves and regeneration during this season.

Reflections on harvesting

Harvesting is a time of reaping what you have sown.  Our reflections focused on the metaphorical meaning of harvesting in terms of abundance or achievements realised throughout the year.  We were asked to reflect on blessings we experienced, tending/nurturing received, projects accomplished, and personal growth.  Associated with these reflections was encouragement to express gratitude for what we had harvested in our personal life.

I noted the following in terms of my “harvest” during the 2024 year:

  • Joined the Creative Meetup group of the Health Story Collaborative and participated in the monthly sessions
  • Integrated the themes and discussion of the Meetups into my blog posts
  • Wrote poems that reflected the themes of the Meetups and related blog posts – giving creative expression to my feelings
  • Conceived and structured a book on management – for co-authoring with my colleague (co-facilitator of 80 longitudinal manager development programs, conducted over 16 years)
  • Organised a publisher for our book and signed a contract for assisted self-publishing
  • Completed the first draft of 20 chapters of our book on management
  • Wrote the following posts exploring ways to express gratitude and sharing my gratitude for what I have experienced and am experiencing:

In our discussion of harvesting we acknowledged that it was okay to “harvest less”, given that all participants in the Meetups are people suffering from chronic illness or disability who often experience setbacks in their recovery.

Reflections on Shedding

During autumn we can observe the trees and plants shedding their leaves and fertilising the soil with the decaying material – death generates new life.

There are many things that we can shed if they are holding us back from realising our potential – e.g. identity, old beliefs or expectations.  During the Creative Meetup I became aware of the unrealistic expectations I was placing on myself in terms of output for my co-authored book on management.  The expectations were not coming from my co-author who is currently consumed by her caring role for an ill relative.  The expectations are my own – setting a timeline and trying to determine a daily output. 

What I realised is that my personal output expectations needed to be shed in the light of the continuous disruption I am experiencing in relation to health-related issues and medical testing.  I have been losing momentum in my writing because of the continuous need to undertake important health-related tasks. I have to accept that this is my current situation and shed my expectations about high levels of output in my writing.  I have already changed my expectations of the frequency with which I produce a blog post.  However, to date, I have failed to adjust my expectations concerning writing my co-authored book.

My participation in the Creative Meetup with the focus on the autumnal shedding theme, highlighted the need for me to shed my current expectations about output for our book in order to create the freedom and space for other important things such as maintaining good health and my connections with family and friends. 

Reflection – a poem

The seasons can help us to grow in mindfulness by enhancing our observation of what is changing around us and cultivating gratitude for what we have experienced and achieved.  Autumn promotes reflection on what we have harvested and what we need to shed.   I wrote the following poem to reflect the process of shedding:

Autumnal Shedding

Autumn leaves falling softly
Silently seeking the soil.
Shaken from their anchor
Shrivelled, shrunken, distorted shapes.
Shedding, signalling rebirth
Death begets new life.
New growth, new possibilities
Transcending the past.

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Image by Sven Lachmann from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Deprivation Can Engender Gratitude

We take so much for granted – that we can breathe, walk, talk, see, and hear.  Deprivation makes us aware how privileged we are to have these functions and other functions such as choosing what we want to eat, achieving basic elimination functions with ease or being able to write or key (not encumbered by arthritic pain and distortion).  The recent Reversing Mast Cell Activation and Histamine Intolerance Summit 2.0 brought home the stark realities of how Mast Cell Activation Syndrome (MCAS) and/or histamine intolerance can impact the quality of our life.

As I listened to various expert speakers who themselves had experienced these conditions, I became more aware of what I do have in terms of quality of life and daily functions.   Some of the speakers had periods when they were super-sensitive to smells (such as the perfume of their daughter), unable to eat a wide range of foods because of allergies) or were sensitive to mold in their homes. Others spoke of the symptoms of histamine intolerance and the impact this had on their daily life and their capacity to choose what they would like to eat. 

Hope and social support

Parental and social support build hope and agency and enable people with chronic illness or disability to rise above their health challenges and achieve a successful recovery, often beyond peoples’ wildest dreams.  

Alexa Leary’s story – from tragedy to triumph

The recovery story of Alexa Leary, Australian Paralympic Swimmer destined for Paris 2024 Olympic Games, is a hugely inspiring account of how parental support and social support have helped her to achieve her goals.   Three years ago Alexa had a very serious accident on her bike as a world-class triathlete – causing traumatic brain injury and multiple other significant injuries.  She was not expected to live, and, even if she did survive, she was not expected to be able to talk or walk.  Alexa’s parents set aside their own lives and spent six months by her bedside in hospital to support her recovery. 

Alexa’s rehabilitation efforts are starkly illustrated in the video story, Triumph Over Tragedy.   Her incredible sporting accomplishments since the accident reinforces the value of the social support she received from organisations such as the global Pho3nix Foundation, dedicated to helping young people through sport and activity to develop a “sense of purpose, focus and possibility”.   Alexa was a participant in their Athlete Program designed to enable underfunded, aspiring Paralympics and Olympic athletes to compete in the Olympic Games.  When sharing her story of recovery through radio, television and social media, Alexa emphasised the critical role music played in her life and recovery.

Specialised Support through ADDA

Duane Gordon, President of Attention Deficit Disorder Association (ADDA), elaborates on the benefits of social support and shares multiple stories of how ADDA’s many support groups have facilitated the recovery of its members.   Tom, an accomplished engineer, experienced overwhelm in everyday tasks such as shopping but was able to gain support and ADHD-friendly strategies through ADDA’s Healthy Habits and ADHD Brain Group.  People with ADHD typically experience relationship difficulties but ADDA’s support group Loving and Living with ADHD: Partners Connecting helped Mark and his partner to rise above the challenges of this condition and strengthen their relationship.  ADDA’s support group, ADHD @ Work> Survive and Thrive Support Group,  helped James recover from the  loss of his job caused by ADHD challenges such as confusion, meeting deadlines and remembering tasks.   

Reflection

I was recently diagnosed with early stage, normal tension Glaucoma which has reduced my peripheral vision.  I am undertaking a series of tests to determine what the cause is and what kind of treatment is required.  The diagnosis has forced me to face the prospect of increased loss of sight, retraction of my driver’s licence and loss of the associated independence.  The social support provided by the Creative Meetups, sponsored by the Health Story Collaborative, is particularly critical at this point in time.

I wrote the following poem as a way of reflecting on my present circumstances with the possibility of increased loss of vision:

Losing Sight

Sight lighting my way,
expanding my horizons,
disclosing people and cultures,
revealing nature’s beauty,
enabling enjoyable activity.

Playing a game of tennis,
writing a book,
driving a car,
watching a video,
reading a book,
creating a poem,
developing a blog.

Encroaching blackness,
moving in from the edges.
Losing sight a real prospect.
Rescinding of independence.
Storing recollections for future reference.

A long-playing internal videotape,
of my best tennis shots,
played over the years.
Now categorised by tennis stroke –
forehand, backhand, volley, serve and smash.

A rich palette of memories of nature’s beauty –
blue and white, purple and brown,
red and orange, yellow and green,
grey and black.

Moving from sight to sound,
from reading to listening,
from writing to recording,
from driving to walking.

Feeling my way.
Testing to understand.
Exploring my options.
Appreciating what I do have – while I have it.

As we grow in mindfulness through reflection, meditation and time spent in nature, we can increase our appreciation and gratitude, fortify our hope and strengthen our resilience.

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Image by Shan from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

On Being Deaf

Jessica Kirkness in her memoir, The House With All the Lights On, lets us see and hear what it is like to live with grandparents who are Deaf.   Her story covers her experience of living under the one roof with her parents and grandparents and coming to understand the “language of light”.  In the process, Jessica enlightens us about what it means to be deaf and how to interact with adults who are deaf.

Jessica’s grandfather spent a lot of time in and out of hospital.  She highlighted the problem of a lack of understanding on the part of hospital staff despite being told of her grandfather’s deafness. She maintained that his hospital care was often compromised because “staff had no clue how to interact with him”.   This was despite explicit instructions to get his attention before speaking to him, use pen and pad to enable him to understand their message and respond and ensure they actually looked at him when talking.

Jessica herself had studied Auslan (Australian Sign Language) to communicate with her grandparents, particularly with her Grandfather who refused to learn how to speak.  She even had to use sign language to communicate to him in hospital that he was dying after a cardiac arrest.  Jessica provides an enlightening  insight into sign language and its accompanying “visual and spatial tactics” generated by the hands and body movement.  She explains that movement serves to direct the viewer’s attention.

Being deaf

Jessica makes the point that, contrary to the general opinion in the community, her grandparents viewed their deafness as a “way of being in the world”, not a deficit (the focus on something missing).  They were able to recognise nuances in facial expressions and insisted that everyone faced them directly when they talked to them.  This enabled them to expertly read faces and attempt to lip read.

Jessica points out at one stage in her book about the lipreading  traps inherent in the English language.  She explains that this is the result of what is called “homophemes” – “words that sound different but involve identical movements of the speaker’s lips”.   The words themselves have different meanings, leading to confusion and stress for the lip reader.

Discrimination

Jessica quotes Rachel Kolb’s TED Talk, Navigating Deafness in a Hearing World, when she discusses the “primacy of voice” in our hearing world and the fact that “mouths are not a prerequisite for speech”.   Rachel makes the salient point that if you can’t hear, how can you learn to speak?  She was born profoundly deaf and has become a Rhodes Scholar, writer and disability advocate.

Rachel knew that her speech was defective and had to come to terms with her difference.  She spent 18 years in speech therapy to be able to talk, spending a lot of time learning speech through feeling the vibrations in the throat of her speech therapist.  Still people thought that her difference in speech was due to a foreign accent.

Jessica highlights the discrimination experienced by her grandparents in what is a “hearing world”.  People expect to be understood when they speak (“being heard”, “being listened to”).  The distortions in the speech of many deaf people lead to misunderstandings and assumptions about “lack of intelligence” or dumbness.  Jessica states that “deafness is the thing that we cannot look away from but cannot bear to face”.

The disruption and disorientation of deafness in a hearing world is not understood and sometimes feared.  People lack an appreciation that a deaf person can have a heightened sense of sight and an enhanced peripheral vision (so that actions “behind their back” can sometimes be detected and seen as derogatory).  People who are deaf often have a strong sense of touch and vibration.  As Jessica remarks, “sound is received in the body in all sorts of ways” and people who are deaf can “hear” music through vibrations in the floor.  I had personal experience of this in Melbourne when a group of us visited a school for deaf children and watched them dancing enthusiastically to music by sensing floor vibrations.

The language of light

Jessica’s Grandmother insisted that ‘the entire self is required for conversation”.  She could not tolerate people turning away from her when listening to what she had to say.  Jessica does point out, however, that the exception to this “whole-self rule” was when she was driving.  She notes too that “touch and sight were always interwoven” for her grandparents.  The world for them was “experienced through the interplay of the eyes and body”.

Consciousness of light was important because being in front of windows when communicating could create shadows that distort the images of hands and faces.  The world of deaf people is “driven by sight” where looking is equivalent to knowing.  Gerald Shea titled his book The Language of Light to express the role of light in sign language and the centrality of the visual for the deaf.  When the lights go out there is no dialogue.

Reflection

Jesscia’s book helped me to understand how easy it is to unconsciously exclude a person who is fully or partially deaf.  It reminded me that I have a friend in her eighties who is hard of hearing and I often overlook the need to face her when I talk.  She points out that being able to speak multiple languages, she has developed a propensity for lipreading – something I deprive her of when I am not facing her.  She often notes too that I “mumble”, failing to properly articulate my words which increases her sense of isolation.

By gaining an understanding of what it is like being deaf, we can learn to better include deaf people by more conscious speech and actions.  As we grow in mindfulness, we can increase our awareness of people’s differences, our own limitations and biases and be more compassionate in our interactions with others.  

Having been considerably moved by Jessica’s book, I wrote the following poem from the perspective of someone who is deaf:

Being Deaf

Being deaf is not a deficit
It’s a way of being in the world.
With refined senses of sight and touch
A reliance on light for meaning.

Face me so I can read your lips
Be in the light so I see the nuances in your facial expressions.
I am not dumb, I am deaf
I sense sound through vibrations.

While I can’t hear
I can see and feel things that you don’t notice.
My vision is not narrow
I can see my periphery clearly.

Don’t avoid me out of fear
Approach me out of curiosity.
Don’t judge me for my voice distortions
Listen intently for my message.

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Image by Ivana Tomášková from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

The Healing Power of Social Support

Social support can take the form of having friends, family or other people who can be a source of support in difficult times, such as chronic illness, death of a loved one or ongoing disability.  They can provide emotional, companionship or resource support and enhance our self-image while offering different perspectives on what we are encountering.

Social support can be provided through a formal social network where people with common interests come together to achieve specific outcomes such as fitness, charitable work or a hobby (as with the Australian Men’s Shed).  Alternatively, they can be informal where a number of people come together on a regular basis to share a coffee and have a chat.

The benefits of social support

Julia Baird, author of Bright Shining: How Grace Changes Everything, highlights the mental health benefits of social support and points to the research that shows the “poor mental health” that results from isolation and loneliness.  She refers to a homeless support group organised by St. Vincent de Paul Society that she joined and noted that there was “no pretence”, people “just being who they are”.  The healing power of this transparency and normality was evident in the homeless participants developing a positive self-image and contributing from their perspective and reality.

Social support is one of the three components for sustainable recovery from trauma, along with appreciating the complex nature of trauma and its impacts and adopting a holistic approach.  Research and clinical practice have demonstrated that social support builds resilience in trauma sufferers – they realise they are not alone, are encouraged to pursue their healing process, are reinforced in their healing efforts and learn vicariously from others who are experiencing difficult emotions and challenging situations.   The resultant sense of connectedness contributes to positive mental health.

The GROW organisation over many years has demonstrated that mutual social support has contributed to recovery from many forms of mental illness for hundreds of people (as documented in testimonial stories by participants).  The peer-to-peer support process facilitated by a nominated leader within the “lived experience” group, promotes personal development and ongoing recovery – a process that may take a number of years.

Reflection

Social support helps participants to develop a sense of being cared for as well as feeling that they can seek assistance from others in understanding and managing their challenging situation.  People gain a strong sense of belonging and connectedness through sharing their personal challenges, their success strategies and their progress towards healing.  They grow in mindfulness as they share their stories and write about their insights, gaining increased self-awareness and heightened self-esteem.

Creative Meetups, provided by the Health Story Collaborative, is a powerful social support system in that it combines the healing power of social support with the healing power of storytelling.  Participants feel fully supported by others engaged in compassionate listening or sharing their stories of challenging situations resulting from chronic illness, disability or their carer role.  The following poem expresses the sense of social support that can be gained through the Creative Meetups:

Social Support

When we share our stories of personal challenges, we realise that we are not alone.
We draw strength from others experiencing and managing more difficult circumstances.
We sense that we belong and feel connected to something outside of ourselves and our pain.
We can be ourselves, free of pretence, unencumbered by the need to be “better than”.
We build trust, savour our relationships and look forward to the next encounter.
There is something magical and disarming about the process that leads to changing perspectives and healing.

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Image by John Hain from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Paternal Forgiveness – A Reflective Poem

Since I started participating in the Creative Meetups organised by the Health Story Collaborative I have been writing poems. It’s as if there are feelings inside me that need to get out.  It reminds me of my PhD supervisor who told me at one stage of my extended procrastination, “You have a doctorate inside you, unless you let it out, it will undermine whatever you are doing.”  Once I wrote the PhD, it released a whole new world of opportunity.

Over time, our disposition to forgive and our capacity to offer forgiveness to others and ourself will develop almost invisibly if we grow in mindfulness through appropriate practices, such as forgiveness meditations.  The following poem grew out of my mindfulness practices and Meetup reflections:

Paternal Forgiveness

I didn’t forgive you while you were alive.
I didn’t even forgive myself.
Now I don’t know how to say sorry to someone who has passed.

You served in the army during World War 2 before I was born.
You spent four years in Changi and worked on the Burma Railway.
Shortly after your army discharge, you reenlisted.

When I was four, you left to work in Sydney and Woomera.
And served 18 months with the Occupation Forces in Japan.
There you were an “enemy stranger” in a foreign land.

In your absence, Mum was seriously ill following the birth of Michael.
You returned for two weeks to take Mum and my two brothers to Brisbane.
While baby Michael spent time with your sister before getting ill himself.

My younger sister and I were separated and left with different relatives in Melbourne.
Three month old Michael was eventually placed in a Founding Home.
When Mum returned a month later to collect the three of us, you told her that Michael had died while she was in transit.

I spent 18 months in an orphanage at the age of four while you were away.
Those were the months of my imprisonment and harsh treatment, shared by my younger sister.
Though we were separated from each other by the Institution.

Mum was only allowed by the Institution to visit us monthly.
It was only then that I saw my brothers and my sister, despite her being in the same Orphanage.
I felt isolated and alone.

When you returned from Japan, you became an aggressive alcoholic.
As a young child, I would freeze and dissociate when your rage flared.
As I got older, I would take flight by riding my push bike into the night as fast as I could.

I didn’t understand PTSD – no one did at that time.
I had not been where you had been or seen what you saw.
I didn’t see the triggered images that tormented you.

The war, the explosion, hospitalisation, capture and prison life.
You suffered the loss of mates killed in action or dying from cruelty or malnutrition while you were in Changi or working on the Burma railway.
You experienced unimaginable horrors.

I understand now that alcohol was your way to drown your pain and sorrows.
To block out the horrific images.
I forgive you and forgive myself for my harsh judgments – I didn’t understand.

It was easy to take sides when you were drunk and wasting our income.
While Mum slaved away at the local Woolies to keep us afloat.
And vented her anger and frustration at night.

As an adult, I had to take Mum away from your violence for her survival.
I was fearful at the time that you would try to find us.
As we took shelter in the small rooms at the back of a General Store.

The separation proved to be a godsend.
You both improved your lives.
With new partners eventually and a healthier way of life.

You even gave up alcohol and walked an hour every day.
On Sundays you took Mum to Church.
But we were not able to reconnect.

You had been a professional boxer, winning 20 of 22 fights.
You won trophies for tennis and athletics.
You became Player Coach of a Reserve Grade AFL team in Brisbane.

I am truly grateful that I inherited your genes.
The fighting spirit, resilience, determination and fast reflexes.
All of which have helped me in my tennis and my work and life.

I am sorry that I did not know what you were going through.
That I saw myself, instead of you, as the victim.
That I did not acknowledge your unbearable pain and unbelievable courage and tenacity.

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Image by Gerd Altmann from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Forgiveness: Forgiving Others and Ourselves

Forgiveness is hard to do, whether we are trying to forgive others or ourself.  It’s not a one-off event but is an evolving process which is why experts in the area suggest that we start off small – with a minor incident or hurt.  Forgiveness engages our feelings as well as our mind and body.  It is something that we have to work at consciously if we are to achieve our goal of “letting go”.

Forgiving others

Frank Ostaseski, author of The Five Invitations: Discover What Death Can Teach Us About Living Fully, suggests that one of the lessons from the dying is, “Don’t Wait to Forgive”.  In his extensive hospice experience he found that too many people were consumed by anger and rage on their death bed because they were unable to forgive others.  He argues that we should not wait until we are dying to forgive others and ourself.  Frank maintains that there is a natural resistance to forgiveness because we have a need to maintain our self-image (of goodness/perfection) and find it difficult to acknowledge that we are carrying challenging emotions such as anger, resentment and regret.   However, there is a real cost to ourselves and our relationships when we hold onto these emotions.

Danette May in her memoir, The Rise: An Unforgettable Journey of Self-Love, Forgiveness and Transformation, argues that we need to “cut the rope”, or as Frank puts it, “letting go”.  These difficult emotions can hold us back, causing self-absorption and “emotional stunting”.  There is a real challenge involved in acknowledging our part in an interaction (or multiple interactions) that was hurtful.  We need to be able to see things from the other person’s perspective and understand what was driving their behaviour.   Frank suggests that in the final analysis, we need to be able to honestly face up to “what we don’t like in ourselves”.

Fred Luskin contends that there are three elements of a grievance that contribute to our “maintaining the rage” and sustaining the hurt:

  1. Preoccupation with the ”offence” and exaggerating its negative impact on us
  2. Insisting that others are to blame for our negative/difficult feelings
  3. Developing and perpetuating a “grievance story”.

Fred argues that the real costs of not letting go are extensive.  Not only do we lose our personal power because we are “controlled by emotions”, but also we lose the ability to focus and achieve peace and wellness.  If we are consumed by anger, hatred, resentment or envy we can’t see past our hurt and we use all our energy in sharing our story and maintaining our sense of hurt.

Forgiving ourselves

The starting point for self-forgiveness is acknowledging our part in the hurtful interaction. It is incredibly difficult to forgive ourselves for the hurt we cause to others – it can be a lifelong process.   Part of the challenge is dealing with strong feelings of guilt and shame – feelings that go against the grain and undermine our sense of who we are.  We can blind ourselves to our negative impact on others because it is too hurtful to ourselves to own up to our part in hurtful interactions.

Jack Kornfield in the Power of Awareness Course argues that there are three myths that underpin our reluctance to engage in self-forgiveness:

  1. Self-forgiveness is a sign of weakness – the reality is that it takes a lot of strength and courage to face up to our hurtful words and actions
  2. We can forgive ourselves through a “quick fix”, e.g., a short meditation or exercise
  3. Forgiving ourselves is condoning our hurtful behaviour.

Elisha Goldstein cites Lily Tomlin when discussing forgiveness of others, Forgiveness means giving up all hope for a better past.  This insight can as readily apply to self-forgiveness as to forgiving others.  In self-forgiveness, we have to give up our “grievance story”, let go of wishing that we had behaved better and dismantle our defenses that prevent us from acknowledging our part in a hurtful interaction.

Mindfulness – a path to forgiveness

When we develop a mindful disposition by observing our inner landscape – our thoughts, emotions and bodily sensations – we can reduce our negative thoughts and increase our ability to forgive.  Mindfulness can develop our “disposition to forgive” – it can unearth grievance stories, clarify our part in any interaction, help us to take the other person’s perspective, increase our awareness of negative emotions and related bodily sensations and cultivate compassion.  Ultimately mindfulness can help us to develop self-awareness and emotional regulation so that we are not captive to our strong, challenging emotions and can live in the present rather than the hurtful past.

Forgiveness meditation

There are multiple forms of forgiveness meditation.  Loving kindness meditation, for example, has been shown to cultivate compassion towards others as well as self-compassion.   Sharon Salzberg, experienced mindfulness trainer, offers a three-part forgiveness meditation encompassing:

  1. Seeking forgiveness from someone you have hurt or harmed
  2. Offer forgiveness to those who have hurt or harmed you
  3. Self-forgiveness for the times you have harmed yourself through being judgmental.

Sharon includes an affirmation related to the last point, For all the ways I have hurt or harmed myself, knowingly or unknowingly, I offer forgiveness.  Other meditation trainers, such as Mitra Manesh, focus the self-forgiveness on the harm that we have caused to others, rather than to ourself.  Mitra, in her forgiveness meditation podcast, places a lot of emphasis on becoming aware of our bodily sensations as we deal with the “heavy energies” involved in holding onto grudges, anger or rage.  She also suggests a mantra for seeking forgiveness from others, For all the ways that I have caused you pain and suffering, I ask your forgiveness.

In reflecting on a number of forgiveness meditations, I identified four common principles underpinning the meditation process:

  1. Stay grounded, relaxed and focused
  2. Manage distractions through an anchor such as your breath or sounds
  3. Start small with something that is manageable and recent (limited history or replaying)
  4. Adopt a healing perspective – show loving kindness to others and yourself.

We can develop a mindful disposition in multiple ways , not just through meditation.  As we grow in mindfulness we can more readily adopt the perspective of others and understand their hurt.  We can own up to and name our own feelings, however negative or challenging. Over time, our disposition to forgive and our capacity to offer forgiveness to others and ourself will grow almost invisibly.

Reflection

Forgiving ourself can be a lifetime pursuit as I have found in trying to forgive myself for my part in my marriage breakup which occurred more than 40 years ago.  This is something I am working towards.  I find that forgiving others and forgiving ourself are interwoven activities – not discrete, independent steps.

I have also been reflecting on my long-standing anger towards my Father for his alcoholism and its major impact on my childhood and my family.  I recently started crafting a poem called Paternal Forgiveness which I will publish soon in this blog.  In the poem, I offer forgiveness to my father, seek to forgive myself for my harsh judgments and express my sorrow for the hurt that I had caused him when he was alive.  In writing the poem, I have drawn inspiration from Kim Rosen’s book, Saved by a Poem: The Transformative Power of Words.  In the book, Kim describes how poetry has helped people to deal with challenging situations, including the need to forgive others and themselves, and provides insight into the transformative elements of a poem.

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Image by Pete Linforth from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Creative Meetups: Action Learning for Health and Healing

Creative Meetups are provided by the Health Story Collaborative (HSC) to enable participants to reflect, connect and gain support from other people who are also living with chronic illness or disability or are carers.  The free Meetups, currently facilitated by Jennifer Harris on the Zoom platform, provide a stimulus for writing “to access and release emotions, personal stories and creative spirits”.  They form an avenue for healing through the mechanism of narrative therapy.

Alice Morgan, author of What Is Narrative Therapy?, maintains that narrative therapy can take many forms.  For instance, she suggests that it can involve “particular ways of talking with people about their lives and the problems they are experiencing”.  In essence, it involves people sharing their stories orally and/or in writing to gain insight into the meanings they ascribe to events, experiences and current situations (such as a physical or mental health condition).  Jodi Clarke points out that we carry multiple self-stories including those related to “self-esteem, abilities, relationships and work.”  She maintains that the process of “putting your narrative together” (however, this is created) enables an individual “to find their voice” as they explore  their life experiences and the meanings they attribute to them.

What is action learning?

Action learning can be described in simple terms as a cycle – planning, taking action and reflecting on the outcomes (intended and unintended).  It is used worldwide in public, private and not-for profit organisations and communities to create positive change and empower people to be the best they can be.  It can be undertaken by an individual by themselves (as I have done with my tennis playing over the years) or, more often, as part of a group or “action learning set”.

Creative Meetups and Action Learning

Creative Meetups and action learning have a core assumption in common.  Alice Morgan expressed this well when she maintained that narrative therapy assumes that “people have many skills, competencies, beliefs, values, commitments and abilities” to resolve their own challenging situations – an assumption that underpins the process of Creative Meetups.  This is also a fundamental assumption of action learning (AL).  

Reg Revans, the “Father of Action Learning”, charged with improving the mining industry in the UK, got mining managers together to solve their “here and now problems” in the mines.    He also got nurses in Intensive Care Units together to work on their challenging situations.  In an action learning context, participants are often described as “personal scientists”.  Some academics in universities, tied to the concept of universities as the sole repository of “expert knowledge”, had great difficulty accepting this core assumption and would actively oppose the uptake of action learning – it challenged their firmly held beliefs about knowledge creation and dissemination.

Creative Meetups and action learning have a number of other elements in common and, in the final analysis, both seek to create positive change in a situation (either individual or collective).  Some of the shared elements are as follows:

  1. Peer support – a fundamental principle is to treat each other as peers – with no acknowledged hierarchical difference.  There is a recognition that we are “all in the same boat” – each facing challenging situations.  Reg described this element as “comrades in adversity”; more recently, people have termed it “comrades in opportunity”.  In essence, it involves providing mutual support irrespective of our work role, status, social position or experience level.
  2. Collaboration – participants work together towards a common goal (e.g. health and healing or team improvement) and willingly share stores, resources, and insights for mutual benefit.  People are unstinting in their sharing – often recommending or loaning books, highlighting helpful websites or identifying relevant expert people.
  3. Don’t know mind – participants adopt a “don’t know mind”, not presuming to know and understand another person’s situation.  Reg suggests that if you think you understand something fully, you are not only going to get yourself into trouble but other people as well.   Adopting a don’t know mind – not jumping to conclusions or interrupting another’s story with your own (erroneously assuming they are same or similar) – enables a person to tell their story in an unfettered way, opening up the path to healing and recovery. 
  4. Honesty – the conscious exploration of what it means to be honest with oneself (owning up) and with others.  This opens the way for improvement and change.  The process of writing in Creative Meetups helps participants to identify false self-stories and unearth truer and richer stories that open up new avenues for their lives and their relationships. Action learning, too, enables the development of honesty.  Reg, for example, recounts an action learning program involving industrial executives in Belgium who, after 18 months of action learning, identified “What is an honest man and what do I need to become one?” (they were all men) as the most significant question they wished they had asked at the start of the program.  He maintained that the pathway to learning and change involves “admitting what you do not know”.  Reg also maintained that if you are going to do “something significant about something imperative”, you will come up against how you define yourself and your role.
  5. Reflection – reflection is assisted by writing and sharing.  The more we reflect, the more it becomes a way of life.  Frequent reflection-on-action can result in the ability to reflect-in-action.  Reg suggests that reflection is best done in a group because when we reflect alone we can tend to reinforce our existing assumptions and maintain our blindspots.  He argues for diversity in the reflective group – diversity of culture, nationality, profession and orientation (business/not-for-profit/community).  The Creative Meetups provide a rich diversity in terms of location (participants are from different countries and cultures) and health/caring situation.   Participants can gain insight gratuitously when others share their reflections from their different perspectives.
  6. Questioning – the willingness and ability to ask “fresh question” to open upinsight into a challenging situation.  Reg describes this as “questioning insight”.  This approach involves “supportive challenge” – challenging assumptions to enable a person to be the best they can be.  Alice Morgan highlights the role of questioning in narrative therapy because we can often develop negative self-stories.  Both action learning and Creative Meetups (narrative therapy) cultivate curiosity.
  7. Action taking – action learning involves learning through action undertaken with others where possible.  Creative Meetups promote writing as taking action to become open to  the healing power of storytelling.   The writing can take any form, e.g. prose, poetry, dot points.  Action is also reflected in the changes in behaviour undertaken by participants as a result of insights gained through writing and sharing.
  8. Facilitation – to design and manage the process of sharing.  In Creative Meetups, the facilitator provides stimulus material (e.g., a story, music or poem) to enable participants to write and share.  In action learning, the facilitator guides the process of planning, acting, reflecting and sharing.  In both situations, the facilitator is not a teacher.  Their role is to create an environment that promotes safety, trust, openness and sharing – their metaprocess goal is to develop a learning community.   

Creative Meetups, in promoting writing and reflection, are helping participants to grow in mindfulness which is described by MARC (UCLA) as “paying attention to present moment experiences with openness, curiosity and a willingness to be with what is”.   Both action learning and mindfulness contribute to positive mental health because they increase self-awareness and heighten a sense of agency (belief in the capacity to have some control over our inner and outer environment).  In cultivating mindfulness, both approaches help people to develop resilience, compassion and creativity. 

Reflection

I initially joined the Meetups with a view to writing my stories in prose but have found that the stimulus provided by the discussions and my recent reading of Kim Rosen’s book,  Saved by a Poem: The Transformative Power of Words, has led me to write several poems about my health story and the process of the Meetups.  Kim’s identification of the transformative elements of a poem continues to provide a pathway for my poetic expression.   I used her elements to analyse a poem I had written called For the Love of Tennis that enabled me to express my gratitude for being able to continue to play tennis despite a diagnosis of “multiple-level spinal degeneration”.

Following a recent Meetup, I unearthed my feelings about my chronic condition of food sensitivity/allergy resulting from Long Covid-induced Mast Cell Activation Syndrome.   I was surprised about the intensity of my feelings of frustration and alienation that I had not previously given voice to.   The poem, The Inflammatory Thread in My Life, provided a creative outlet and release for emotions I had kept “under wraps” and not expressed to anyone, including myself.

In a previous post, I shared a poem, Compassionate Listening, that I wrote following a Creative Meetup where the stimulus input included an excerpt from Joni Mitchell’s performance of Both Sides Now at the 2024 Grammy Awards.  To me the poem reflects the stance of participants of the Creative Meetup in being able to engage in deep listening, provide active support of the storyteller and reflect back not only the feelings expressed but also the intensity of those feelings. 

Compassionate listening strongly reflects the ethos of HSC where Healing Story Principals (such as Micheal Bischoff) sought to support people “to tell and listen to stories in ways that are healing, connected and empowering”.  The support and connection underpinning Creative Meetups and action learning promote health and healing.

Reflecting on the process of Creative Meetups and my long-standing experience with action learning in multiple contexts, I was inspired to write the following poem:

Where is “There”?

When you share your innermost secrets

and I say, “I’ve been there!”,

where is “there”?

It’s not where you have been

with your unique experience and perception.

I’m not inside you looking out,

I’m outside you looking in.

It’s like the glimpse of the Bay

that I get from my back deck.

It’s not the Bay!

It’s only a tiny window

on a complex ecosystem.

____________________________________________

Image by Xavier Lavin Pino from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

The Benefits of Positive Beliefs About Aging

In a previous post, I discussed the pervasive impact of negative beliefs about aging.  Highlighted in that discussion is the research evidence that negative age beliefs can impact every aspect of our aging process and our quality of life.  In that discussion, I drew on the work of Dr. Becca Levy, a pioneer in the area of successful aging and a world-renowned researcher and Yale Professor.  In her book, Breaking the Age Code: How Your Beliefs About Aging Will Determine How Long and Well You Live, she contends that it is critical that we address ageism in our society both as individuals and as a collective.  

Becca has a section in the book where she identifies the widespread influence of ageism and calls for “an end to structural ageism” in education, Governmental systems, medicine, mental health, advertising and media, science and the arts.  Ageism prevents people from effectively adapting to the aging process, from taking proactive action to maintain their quality of life, from achieving their potential both mentally and physically, and from realising the benefits that can accrue with age.

The benefits of positive beliefs about aging

In her book, Becca draws on her own research and that of researchers worldwide to demonstrate the numerous benefits of positive age beliefs and illustrates these benefits with stories of outstanding achievements by numerous people in multiple fields of endeavour.  Ageism is based on the assumption that all people who are old experience decline in mental and physical capacity at the same rate and that this decline is inevitable.  Becca’s research and stories of individual achievements demonstrate that each of us can arrest decline, or at least reduce the rate of decline, in our capabilities as we age.  Our beliefs about aging are a key determinant of the choices we make and how long and well we live.

In providing research-based claims about the benefits of positive age beliefs, Becca identifies a number of findings that challenge prevailing myths about the aging process.  Her research demonstrates the following benefits of this positivity:

  • Pattern recognition improves with age so much so that neuroscientist, Daniel Levitin, suggests that radiologists past 60-years old should be preferred to younger people for reading and interpreting X-Rays.  Daniel is the author of the book, Successful Aging: A Neuroscientist Explores the Power and Potential of Our Lives
  • Indigenous knowledge and memories held by elders in Indigenous communities that have been passed down in communities around the world to ensure the health and continuity of these communities such as in the Indigenous Australian culture.  This aspect of Indigenous aging was documented by anthropologist Margaret Mead in her book, Culture and Commitment: A Study of the Generation Gap.
  • Functional health is enhanced by positive aging beliefs.  Becca demonstrates that her research and that of her colleagues disprove the assumption of the “stereotype of debility and decline” as the natural outcome of the aging process.  She draws on the example of Sister Madonna Buder, who at the age of 52 undertook her first triathlon with borrowed running shoes – now, at over 90 years old, she continues to compete and has completed in excess of 350 triathlons.  Sister Madonna’s view of aging is that it represents “wisdom and grace” and “opportunity”.
  • Irreplaceable knowledge and understanding can accrue to anyone in a specialised field with experience developed as they age.  Becca illustrates this by discussing the experience of a 75-year-old paediatrician called Jonas who had retired from clinical practice “when he was most skilled”.   A young colleague asked him for his opinion on what was ailing a baby because he could not work it out.  Jonas figured it out “right away”.  His young colleague had an instant insight and asked, “Teach me Doc, how’d you do that?”  Jonas now teaches “medical diagnosis” at a university and participates in group diagnoses of patients in a teaching hospital.  Jonas’s career transition highlights the opportunity for older people to make a significant contribution to society even after retirement – all that it requires is a positive view of aging and a willingness to make adaptions in their career role. Jonas has also acquired new interests and hobbies such as cultivating rare orchards, French cooking, close-up photography and amateur aviation. 
  • Mental health growth – during a placement at a psychiatric hospital, Becca found (contrary to her expectations) that more younger, adult patients suffered from mental illness than older patients and that the latter “can be successfully treated”.  Her own research, confirmed by others around the world, also showed that age beliefs heavily impact the nature and quantity of stressors experienced psychosomatically.  She found that positive age beliefs helped to mitigate the impact of stressors (even in PTSD cases), while negative age beliefs acted as a “barrier to mental health”.
  • Longevity – in a significant research study, Becca found that participants who held positive age beliefs “lived an average of 7.5 years longer” than those who held negative age beliefs. ` Other research has demonstrated that non-biological factors such as age beliefs (and social/cultural environments) “determine as much as 75% of our longevity”.
  • Creativity – contrary to the prevailing stereotype, “creativity often continues and even increases in later life”.  Throughout the book, Becca mentions people who achieved “their most creative work at an older age”, e.g., Matisse, Hitchcock, Einstein, Picasso, Bernstein, Lerman and Dickens.  She also noted that 65 is the average age of a Nobel Prize winner.  Becca also reported the comment of actress Doris Roberts that actresses/actors “get better and better in their craft as they get older”.  Michael Caine CBE is just one example.  Starring in 160 films over 8 decades, he produced an outstanding performance at age 90 in his last film before retirement, The Great Escaper.

In the above discussion of the benefits of positive beliefs about aging, I have only “scratched the surface” of Becca’s research and findings.  However, it is very clear that positive age beliefs can impact us in multiple, beneficial ways – opening up opportunity and the realisation of our true potential.

Reflection

I can relate to Jonas’s experience (recounted above) when applied to a recreational context rather than a professional one.  I have continued to play social tennis in my late seventies and recently I played a half-volley, drop shot that left my much younger partner “gobsmacked”.  He responded, “Wow, how did you do that? Can you teach me to do that shot?”  At the time, I just shrugged but felt like saying:

I can’t teach you as I have never learnt to do that shot – it was purely instinctive, as I was caught “in no man’s land”.  When you have achieved in tennis what I have done – played 10,000 sets of tennis over more than 60 years, practised Tai Chi for years (for balance and coordination), and spent numerous hours doing tennis drills – you, too, will be able to do instinctive tennis shots that surprise others (as well as yourself).

Becca’s comment that creativity can increase in later years also resonates strongly with me.  I started this blog in 2016 (at the age of 70) and have now written more than 740 posts on this blog alone (my fifth blog).  I have reduced my output from three posts per week to one post to enable space and time to conduct manager development workshops (hybrid mode) and to co-author a book with my colleague of 16 years (as our legacy to younger managers and organisational consultants).  I am finding that connections and patterns come to me more rapidly and profusely  as I read and write and I now write an average of 1,000 words per post (compared to the 300 words per post, I started with in 2016).

In her book, Becca recounts the comments of 69 year old creative dancer Liz Lerman who observed that as we grow old we “don’t need  to make major life change to activate creativity’.  In her view, “expanding our connections to people” can create life changes for us and spark renewed creativity.  I have certainly found this with my active participation in the Creative Meetups hosted by the Health Story Collaborative.  

Additionally, I am finding (in terms of creativity) that, as I age and reflect, I am writing more poems that are longer and more complex in structure and scope.  In three days, inspired by Kim Rosen’s book Saved by a Poem,  I have written three poems – previously I wrote four short poems over five years.   One of my recent poems relates to the theme of this blog post and its predecessor about negative age beliefs:

Beliefs About Aging

To be positive, is to see opportunities

To be negative, is to deny potentiality.

Positive age beliefs open new horizons

Negative beliefs hold us captive and inert.

Positivity is openness to reality

Negativity is a closed mindset.

In being positive

Our full potential is possible.

With a grateful heart

I live my positive beliefs.

Reflecting and writing poetry enables us to grow in mindfulness. We come to realise that negative beliefs hold us back.  Through mindfulness practices, we can grow in self-awareness, concentration, creativity and resourcefulness – we can become increasingly aware of what is around us each day and what it is possible to achieve.

Photo Credit: The photo incorporated in this post was by Steve Buissinne, aged 74, from South Africa.  He joined Pixabay in 2014 and has had 556 photos accepted, 148 of which have been singled out as “Editor’s Choice” – a sign of excellence.  His photos have been viewed 32.83 million times, resulting in 19.39 million downloads. Steve’s comment on his Pixabay site demonstrates his mindful awareness of the beauty that surrounds us:

Everything has beauty – photography teaches you to see it

__________________________

Image by Steve Buissinne from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Mast Cell Activation Syndrome and Covid-19: The Invisible Link

There has been a lot written lately about Long Covid and its differential impacts on individual’s health.  More recently research has highlighted a connection between Covid-19 and Mast Cell Activation Syndrome.  It is important at the outset to reinforce the need to consult a medical practitioner for treatment of individual health symptoms.  We can too easily make assumptions about what is occurring for us if we go it alone.   For example, I assumed that my numb feet were the result of peripheral neuropathy caused by Long Covid.  When I consulted my medical practitioner, I  discovered, through the X-Ray that he requested, that my assumption was wrong – the actual problem was multi-level spinal degeneration.   However, it is important to consult practitioners who are open to multiple explanations of chronic symptoms, such as those induced by allergies and food sensitivities.  Often, this may involve a medical practitioner who has a holistic perspective and/or is  qualified in functional medicine.

I recently participated in a Creative Meetup conducted by Health Story Collaborative.  During the meeting, Diane Kane responded to a discussion by a number of participants who were experiencing Long Covid symptoms such as loss of sense of smell, brain fog, and allergies.  When I mentioned my ongoing battle with food sensitivities and allergies, Diane shared some information about Mast Cell Activation Syndrome (MCAS).  She explained that her website is a research hub for MCAS.  On the website, Diane shares her own extended patient story as well as research resources including a video presentation on MCAS by Dr. Larence B. Alfin, author of Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity.

What is Mast Cell Activation Syndrome?

Dr. Kelly McCann in a video podcast interview explains that mast cells are a key part of our normal immune system.  Their role is to watch for invaders that would cause injury to our bodies.  They reside everywhere in our bodies from our head to our feet, and typically live in areas of our body that are at our interface with the environment, e.g. our skin, our blood vessels and our nerves.

Mast cells are responsible for delivering chemical messengers, called “mediators”, such as cytokine and histamine, that produce an inflammatory response to the perceived invader, e.g. a virus, environmental chemicals, mold, or the flu.  Kelly points out that research has shown that mast cells play a major role in the “cytokine storm” that causes an inflammatory response to Covid-19.  If the “foreign invader” is overcome (e.g. we recover from Covid or the flu), “everything quiets back down again” and ‘inflammation goes away”.

However, for some people mast cells become over-active, “hyper-vigilant” and hyper-responsive” – a condition identified as Mast Cell Activation Syndrome (MCAS).  What happens then is that our body “misperceives things”, some of which are actually good for us, e.g. healthy foods.  Hence, we can end up with food sensitivities and allergies (to things like smells, chemicals and some foods).  Kelly makes the point that because of the pervasiveness of mast cells in our body, “anything in our body could present as a mass cell activation symptom”, e.g. brain fog.

Kelly explains that Mast Cell Activation Syndrome is “a spectrum” – ranging from mild to extreme.  A key feature of MACS is that over time, without intervention, there will be an “escalation in the inflammatory or allergic symptoms” of an individual.  The inflammatory response can be exacerbated by what Kelly calls “hits”, e.g. a virus, sustained exposure to mould, or a tick bite (leading to Lyme Disease).  For example, the progression of mast cell activation syndrome could be signalled by the worsening of food sensitivities for an individual.    

Diane’s personal health story

Diane created her website as a means of education and advocacy about the independent science research being conducted on mast cell activation syndrome.  Her own story is really about the extreme end of the spectrum of MCAS and is one of resilience, persistence and hope – a great source of inspiration for anyone experiencing MCAS symptoms.  Diane’s multi-dimensional health problems persisted over 46 years.  Despite visiting 80 consulting doctors and undergoing “extensive evaluations” at 15 major hospitals and suffering multiple anaphylaxis attacks over 20 years, she was not diagnosed with MCAS until 2017 when she visited Dr. Ali Rezale of the Cedars-Sinai Medical Center

Dr. Rezale and Dr. Alfin are working with Diane to improve her health overall.  In the meantime, Diane is working on writing a book titled, The MCAS and Covid-19 Theory: A Multidimensional Epigenetic Phenomenon.   As an experienced medical researcher and author who suffered long-term symptoms of MCAS, she is well-qualified to document her story and the growing body of relevant scientific research.  Diane provides draft copies of early chapters of her book on her advocacy website. 

My health story

I have experienced multiple “hits” as described by Dr. Kelly McCann.  Having had asthma as a child, I am prone to respiratory problems and allergic reactions.  While I overcame the asthma by the time I was 12 years old, since then I have contracted pneumonia three times, RSV (Respiratory Syncytial Virus) three times and Covid-19 in 2021.   In 2017, I experienced major eczema covering my whole body, following 8-weeks of intensive antibiotics to heal an infected leg (resulting from an operation to remove a melanoma).   Since then I have experienced continuous food sensitivities and allergy which are increasing in breadth and depth to the point that there are very limited things I can eat or drink without negative side effects. 

Dr. Kelly McCann explains that there are two things going on with MCAS – a trigger(s) and reaction(s).  Both need to be addressed.  In terms of food triggers, I can relate to Dr. Kelly McCann’s comment that she was gluten-free, dairy-free and unable to eat a long list of foods.  As Kelly suggests in her presentation, I have been undertaking an elimination process trying to identify specific foods (especially those high in histamine or salicylates) that cause aggravation of my symptoms so that I can remove them from my diet. 

In regard to reactions, Kelly argues that there is a need to dampen the hyperactivity of the immune response.  My naturopath, Dr. Mark Shoring, agrees with a tentative diagnosis of MCAS in my case, and recommended initially a course in Chinese skullcap (Scutellaria baicalensis), a herb identified by Mt Sinai Health System in New York as being “used in traditional Chinese medicine to treat allergies, infections, inflammation, cancer, and headaches”.  This treatment, along with Turmeric, is designed to dampen down my hyperactive immune response. So, my somatic strategies, at the moment, include identifying and eliminating aggravating foods and drinks while simultaneously calming the inflammatory response of my immune system.

Mind-body connection and healing practices

Kelly maintains that she experiences the influence of the mind-body connection everyday in her clinic when working with patients.   She points out that the impact of mind-body connections is developed through our early family and developmental experiences.  Unfortunately, we are often prone to misperceive these experiences or develop false beliefs that lead to emotional problems such as low self-esteem and emotional dysregulation.  She argues that we have to envisage the health challenge confronting people with MCAS in terms of a three-legged stool – Mast Cell Activation, Limbic System Activation (our emotional centre) and Vagus Nerve Dysfunction (the main nerves of the parasympathetic nervous system).

Kelly mentions a number of practices that can help retrain the limbic system to get our “mental/emotional loops” and habituated behaviour under control, e.g. Dynamic Neural Retraining System, the Gupta Program and Cathleen King’s Primal Trust Program.

Vagus Nerve Dysfunction can lead to people with MCAS becoming stuck in fight/flight/freeze behaviour which can impede healing.  Kelly maintains that the approach required here is stimulation of the vagus nerve to help people to get “back into parasympathetic rest and digest”.  She suggests approaches to achieve restoration of balance, e.g. breathing exercises, meditation and devices such as EmWave, HeartMath and Rezzimax.  Kelly mentioned that she uses mind-body techniques in her clinical practice when the person she is treating is receptive to these approaches.

Reflection

I think it is important to remember that MCAS impacts each individual differently.  The impacts are influenced by our biology and the number and severity of what Kelly calls “hits”.   There are so many confounding variables involved that self-diagnosis is likely to mislead us.  However, this should not stop us from being proactive, e.g. identifying and reducing or eliminating our triggers.  Actively seeking to grow in mindfulness can help us to stimulate the vagus nerve, activate our relaxation response and overcome negative thoughts.

Reading about Diane’s experience prompted me to revisit my naturopath and discuss his diagnosis of my food sensitivity and allergy experience.  He explained that his recommended treatment approach was based on the assumption that I was experiencing MCAS.

During one of my Creative Meetups, also attended by Diane, we listened to a reading of William Stafford’s poem, The Way It Is.  Listening to this poem and the subsequent discussion in the Meetup group prompted me to write a poem about my food sensitivities and allergy:

The Inflammatory Thread in My Life

There are many things I can’t eat
fruit, gluten, dairy and red meat.
I feel left out that I can’t share
even with delicious family fare.
I crave something sweet
but the cost is too steep.
Hives and rashes make me really itchy
legs and feet are shamefully icky.
Wine is off the table, not that I am unable
it’s the swollen ankle, that renders me unstable.
The endless cycle of elimination
to discover the source of inflammation.
It’s harder to share a meal with my wife
what I’ve done for forty years of my life.
Covid-19 has a long arm
it’s still doing me harm.
Almond croissants are my passion
a loss of consciousness my reaction.
Butter was a food sensitivity
It’s now a dangerous allergy.
Food and drink are tainted rewards
a mindset change to move forward.
It’s a long journey with a clear destination
It takes patience, perseverance and dedication.

______________________________________

This post is provided for information purposes only and is not intended to replace personal medical advice provided by a trained medical practitioner.  Please seek advice from a qualified professional before deciding on treatments for yourself or other members of your family.

______________________________________

Image by Ingo Jakubke from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

A Mindful Approach to Memoir Writing

Hay House Publishing recently provided a Book Writer’s Bootcamp which was held over 4 days with two hour Zoom sessions each day conducted by Reid Tracy CEO and Kelly Notaras (a 20 year veteran of the publishing industry – including a role as VP and Editorial Director for Sounds True which specialises in spirituality publishing).  Reid and Kelly covered a wide range of topics associated with book writing including identifying your audience, deciding the genre of your book, the “hook” for your book, basic research, developing an outline, the roles of editors, deciding your perspective (first, second or third person or a combination) and getting published.

Both Reid and Kelly make the point that once you get started as a writer, you never know where your writing will take you.  Kelly is a very experienced editor and she eventually started her own business, KN Literary Arts, where she offers book coaching, writing support, editing and assisted self-publishing.   Through her website and YouTube channel, she offers free, ongoing advice and encouragement for authors.   Kelly is also the author of The Book You Were Born to Write: Everything You Need to (Finally) Get Your Wisdom onto the Page and into the World.

Adopting a mindful approach to writing your memoir

Memoir writing requires mindfulness – being conscious of what you are doing in the moment and why you are doing it.  It entails dealing with your thoughts and feelings as they occur (rather than pushing them aside).  You have to be mindful of your audience, understand their needs and distil the wisdom of your life for their benefit.  Throughout, you need to be patient, be prepared to be immersed in your focus and allow time for the book to germinate (after developing fertile ground through mindfulness).  Writing will demand openness to the lessons learned in your life and in the act of reflecting and writing.  Below are some things you can do to develop a mindful approach to writing your memoir.

Dealing with your own negative messaging: Seth Godin, multi-award bestseller and expert marketer, reminds us that you have to quiet your lizard brain when attempting something new.  You naturally tend (through fear) to identify all the objections and potential problems.  You might think that “I am not good enough”, “I am going over old ground” or that “I am not good at writing”.  Mindfulness practices can help us overcome negative thinking and remove this barrier to progress.   Reid and Kelly remind you that no one has had your unique life experiences or been in your position to experiment with your insights or ideas.  You can bring your own “mindset and methodology” to existing knowledge areas (such as raising children, handling grief, overcoming setbacks).  In relation to writing skill, one of my Professors always said that to learn to write, you need to “write, write, write!”  Writing begets writing skill and I have seen this in children in primary school – by beginning with something that is achievable in the first instance and then progressively expanding their capacity.  In the early days (2016) of this particular blog with its special focus on mindfulness, I was struggling to write 300-word posts; now, after more than 700 posts, I have trouble restricting my writing to around 1,000 words (my desired length).

Identify your audience: It takes discipline and considerable thinking time to understand who specifically you are writing for.  Kelly reminds us that writing a memoir is “80% thinking time” and the rest actually writing and doing related tasks.  The more specific you can make your audience (even just focusing on someone you know or a particular small group you have had experiences with), the easier it will be to decide what to include or exclude.  If you try to write “for everybody”, you will tend to ramble and this has no appeal for, or traction with, the reader.  Kelly maintains that “the more niche, the greater the success” – the more you can target your message to a specific audience “who needs what you have to share”,  the more likely you are to be successful.

Know your genre: According to Kelly and Reid, memoirs tend to fall into three categories – (1) Narrative Memoir, (2) Prescriptive Non-Fiction or (3) Teaching Memoir.   A narrative memoir focuses on a particular period of your life (a story) and a related theme; prescriptive non-fiction focuses on “how-to-do” something, for example, writing, meditation, cooking or managing time; and the teaching memoir melds storytelling with “lessons” (e.g. through exercises or guides).   Kelly helps you to delineate these different genres by providing a free download to subscribers in the form of Three Classic Book Outlines – outlines that cover each of the three types of memoirs mentioned above.  An outline is critical for structuring your writing and determining your outline is typically an iterative process as you begin to write and understand your audience and your theme/focus.  Kelly also talks about the differences between memoirs and autobiographies in one of her many YouTube videos.

Check whether your book has resonance with your audience:   Both Hay House and KN Literary Arts focus on transformational non-fiction – this is where someone who has experienced some form of “transformation” wants to share their acquired insights and wisdom by writing a self-help book, an inspirational memoir, or focusing their book on personal growth or spiritual development.  In one of her videos, Kelly provides the Three Keys for effectively undertaking transformational non-fiction.  Besides focusing on your own wisdom (not that of someone else you admire), Kelly encourages you to take the time necessary to distil your wisdom from your own experience and to identify what will have resonance with your audience.   She suggests “teaching before you write your book” is a good way to undertake what she calls “resonance and development” – through research, identifying more completely what your audience needs.  Kelly argues that “books tend to germinate slowly” and will develop according to their own schedule, not yours.  She maintains that you need to take the time necessary to build greater resonance with your audience and to develop the insight to discern the connections amongst seemingly discrete events/experiences.  Too often, intending writers have failed to achieve the  necessary immersion in their topic/theme to achieve the required level of clarity to facilitate effective writing.  Lack of immersion will be reflected in “poor digestion” of the issues/problems being addressed and leave the reader confused and uncertain and unwilling to recommend your book.

Overcoming writer’s block: There are numerous suggestions on the Internet for overcoming writer’s block.  Some people encourage mindful walking to clear your mind and develop self-awareness.  Other suggestions include journalling (and naming your feelings about writing), speed writing or writing poetry.  Nancy Levin, author of Writing for My Life…Reclaiming the Lost Pieces of Me: A Poetic Journey, offers insights into how to explore your own vulnerability and connect with others through poetry.  Reading memoirs of others can also act as a stimulus to free up your thinking and writing (Kelly and Reid suggest that this reading research is a necessary component for effective memoir writing anyway).

Consciously overcoming the tendency to perfectionism: Both Reid and Kelly maintain that you should write your first draft of your book before you begin editing.  This avoids the tendency to perfectionism – a tendency that can create a severe blockage in your writing.  If you don’t hold off editing until you finish your first draft, you can end up in a process of continuous writing and rewriting without achieving any substantial progress on your manuscript.  The same principle applies to your efforts to write a hook for your memoir or an initial outline.  Start with a tentative hook and outline and refine them as you go – you will gain greater clarity for both as your write.

Reflection

What is very clear from the Hay House Bootcamp and related writing and videos is that in writing a memoir you are processing yourself as well as providing a resource for others.  As Kelly points out, your book itself can actually be a milestone in your own learning (or spiritual) journey.  Elsewhere, I have written about the Healing Power of Storytelling. Creating a reflective blog can also help you to discover your inner author and develop the mindfulness necessary to produce a successful memoir.

In participating in the Bootcamp, I became aware of a number of options that I have for advancing my own writing.  One is a teaching memoir based on my varied life experiences as a contemplative monk, academic, consultant, manager, father and writer.  The other is a form of prescriptive non-fiction focused on my action learning experiences.  With the former, the teaching memoir, I need to do considerably more research to fill in the gaps in my life history and decide a particular focus or theme to write about (I view this as an iterative process).  The prescriptive non-fiction option is something that I can start immediately because I have already completed the requisite “resonance and development” having conducted numerous workshops with my audience over more than a decade, undertaken PhD studies in the area, conducted participative presentations, written book chapters and articles on the topic and used this blog as a form of reflective journal.  Reid and Kelly maintain that these kinds of activities along with the use of social media provide a “platform” for your book launch.

As I grow in mindfulness by adopting different mindfulness practices, I look forward to gaining greater self-awareness, consolidating my message (in both genres) and developing my concentration and writing processes.  At the moment, I am exploring self-publishing options through the resources and guidance provided by Kelly’s KN Literary Arts and Balboa Press (a division of Hay House).

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Image by Anna from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

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