Mental Health – Page 3 – Grow Mindfulness

Healing Collective Trauma

Thomas Hübl. intergenerational trauma expert, recently convened the Collective Trauma Summit 2023, designed to share ideas and healing processes “to inspire action to heal individual, ancestral and collective trauma”. The Summit was conducted online from 26 September to October 4 and was attended by 100,00 people which reinforces how pervasive trauma is within the global community. One of the goals of the Summit was to “create a global healing movement”. Thomas is the author of Healing Collective Trauma: A Process for Integrating Our Intergenerational and Cultural Wounds.

Thomas and his colleagues have been conducting these trauma conferences for the past five years to raise awareness of intergenerational trauma and its impacts on individuals and communities. Intergenerational trauma is a form of genetic inheritance of trauma experienced by descendants (typically children and grandchildren) of people who have survived catastrophic traumatic events. The inherited trauma can be reflected in hypervigilance and a wide range of physical and psychological responses to triggers associated with the original trauma experienced by ancestors. While the person experiencing intergenerational trauma does not experience “flashbacks”, as they were not present during the initiating traumatic event, they can experience maladaptive behaviour as a result of the transmission of trauma and trauma responses by their ancestors.

When we speak of intergenerational trauma we often think of survivors of the Holocaust or the devastation of Hiroshima. However, there are many sources of intergenerational trauma such as genocide of Native Americans and Aboriginals, institutional or familial child abuse and or neglect, domestic violence, war, colonisation, civil wars creating refugees, chronic illnesses/diseases (such as zoonotic diseases) and natural disasters (e.g., floods, wildfires, earthquakes, droughts and cyclones/hurricanes).

Developing awareness of collective trauma

Part of the focus of the Summit was to raise awareness of the “collective trauma” that resides in the global community as a result of the multiplicity of traumatic events in our world. It means that individuals and communities are not only coping with the challenges of day-to-day living in our fast-paced world but having to deal with the residual effects of inherited trauma – the “scar tissue of collective trauma”. One of the days of the Summit was thus devoted to “global social witnessing of world-wide uncertainty”.

Robin Alfred, in his usual articulate manner, maintained that awareness of the genetic transfer of trauma can help to reverse the ill-effects of collective trauma. He suggested that developing resonance by listening can enable people to heal through expressing themselves – getting the inside outside and achieving congruence in their lives. Robin contended that trauma clouds our minds so that we see ourself as a micro ecosystem, rather than as part of a global, social ecosystem. The way forward for him is for individuals and communities to plug into the massive, self-healing biosphere. He saw “relational resonance” creating a global healing environment as people around the world became aware of “systemic/intergenerational trauma” and explored their interconnectedness for healing. One of his own awareness practices involves exploring the lives and world of people he does not know, e.g., speaking to undercover police about their psychological distress, isolation and identity crisis. He epitomises the “not-knowing” mindset in pursuing understanding of people who hitherto he “has put far away” from himself.

Healing from the effects of collective trauma

Trauma can have multiple effects on a person’s life and relationships. During the Summit people told stories of their isolation and sense of aloneness, their fear and terror, their anxiety and depression and their disempowerment. One person described her experience of trauma as ”falling into a sinkhole”. People participating in the Summit were courageous and vulnerable in sharing their trauma and how it was playing out for them in their individual lives. Thomas reiterated the healing power of storytelling, especially with the support of a community of people “feeling with you and suffering also”.

Throughout the Summit, presenters and participants shared multiple healing modalities that they have employed to overcome the effects of trauma and intergenerational trauma. These modalities included:

Ceremony
Ritual
Calling in spirits
Dance
Joyful movement
Somatic Experiencing
Experiences of connection

Special attention was given to the arts such as music, poetry, literature, and paintings. Laura Calderon de la Barca, psychotherapist specialising in collective trauma, reinforced the power of art (e.g., poetry) to enable people to share experiences that are extremely stressful. In her view, art creates “an unfolding of space that needs to happen” to enable “ex-pression” (moving the inside to outside). The sharing, in whatever form it takes, creates movement towards healing. Laura noted that writing enabled her to bring order into her own life. She maintained that when people get engaged with the issue of collective trauma, compassionate action is created. She encouraged us to connect much more deeply with nature and embrace our own vulnerability through movement and dance.

Throughout the Summit, Kim Rosen read aloud poetry that spoke to the healing process, including The Song of the Man Who has Come Through by D.H. Lawrence. She also read a number of poems for Summit participants with the music of Jamie Sieber, electronic and acoustic cellist, playing in the background. Kim is the author of the book, Saved by A Poem: The Transformative Power of Words.

The way forward for healing collective trauma

Thomas stressed the desire for “global social witnessing”, and the Summit was one form of this solution. He emphasised the need for a global movement, a form of collective endeavour, that can work towards “healing the trauma between us”. He stressed the importance of melting the permafrost of trauma by enabling traumatised people to release their feelings, building connection through data sharing and facilitating interconnectedness through growing awareness of the community of people experiencing intergenerational and cultural trauma.

Thomas spoke of our horizontal as well as our vertical responsibility. Horizontally, our responsibility involves moving beyond our “hyper-individualised world” to respond to the pain and experience of others. Vertically, it entails developing awareness of our ancestors and indigenous populations and their collective trauma, as well as consciousness of younger generations and their collective anxiety. He particularly focused on the “fragmentation” of identities and communities caused by trauma and encouraged us “to refine and deepen our capacity to relate” because it is in alive relationships that we find the energy to create, new enabling structures “that are much better for the present point of evolution”.

He encouraged us to find “different ways to experience nature and each other” so that we can develop a more integrated “healing infrastructure” for collective trauma. He suggested that we can better tap into the “self-healing” mechanism of the body through connecting with each other and sharing our stories, power and resources. Storytelling is not only healing for the storyteller but also the listener.

Ruby Mendenhall shared her insights from the Summit and highlighted the motivation and inspiration that the experience provided. She especially noted how sharing in community can heal trauma and loneliness. Ruby argued that we have to become more aware of the cost and impact of unprocessed grief, especially that flowing from adverse childhood experiences. She maintained that a lot of people feel threatened around “gender norms or race” and that we need to take up the solutions that are already present to us but somewhat underdeveloped, such as somatic healing. Ruby stressed the urgency of educating children about adverse childhood experiences, the impact on the body and relationships and the ways to develop resilience with the aid of community. Ruby’s vision for black women who have experienced violence in their community is enunciated in her TEDx Talk, DREAMING and Designing Spaces of Hope in a “Hidden America”, where the mnemonic, DREAM, stands for Developing Responses to Poverty through Education And Meaning.

Reflection

I was particularly impressed with the emphasis on storytelling as a healing modality and the power of writing to facilitate healing. I am currently researching my own memoir that I plan to write as one way to process some of the traumatic events I have experienced in my lifetime – death of a baby brother, 18 months in an orphanage, my father as a prisoner-of-war in Changi prison for three years and absent for the first six years of my life, a serious car accident in the family car at age 12, my father suffering PTSD and becoming an aggressive alcoholic, and my divorce at age 37.

In the past, I have been able to process much of my trauma through living in a supportive community and growing in mindfulness through meditation, prayer and the practice of silence. I found too, that sport and especially playing tennis helped me to deal with tension and anxiety and to focus more on the present moment.

I realised through the Summit that I have had the tendency to individualise the trauma that I have experienced as a result of the traumatic events in my life. The Summit has made me more aware of the collective nature of trauma, especially intergenerational trauma. I am becoming more aware that I am part of the community of adult children of alcoholic parents; the community of children whose father went to war and was imprisoned and experienced physical and psychological injury; the community of children who experienced institutional neglect; the community of people who lost a sibling while growing up; and the community of people who experienced a missing parent in their early childhood. This realisation of different trauma-related communities that I am a part of reinforces for me the concept of “collective trauma”.

I have found it useful to connect with a community of people who share my current issue of chronic injury and who are able to openly share their experience of pain and recovery mechanisms. This community, the Health Story Collaborative, provides story sharing opportunities and mutual support for people experiencing chronic pain, disability or illness. It reinforces the Summit’s encouragement for mutual sharing in a supportive environment – becoming a microcosm of the global healing movement addressing collective trauma. The fundamental message is that we are not alone when experiencing trauma and its negative impacts on our quality of life and relationships. Together, we can muster the energy and creativity to access individual and global healing.

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Image by Big_Heart from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Healing Through Creative Storytelling

I have previously written about the Health Story Collaborative created by Dr. Annie Brewster M.D. The Collaborative provides an online platform for individuals to share their story (through any medium) about their health challenges and their road to recovery. The stories provide healing for the storyteller and ongoing inspiration for others to overcome the challenge of ill-health in whatever form it takes. Annie Brewster is the author of The Healing Power of Storytelling: Using Personal Narrative to Navigate Illness, Trauma and Loss.

Creative Meetups

One of the programs offered by the Health Story Collaborative is Creative Meetups that are designed to cultivate “writing for expression and connection”. They are based on the firm belief that artistic expression of a person’s story can help them “find hope and healing”. These free workshops are offered every second Wednesday via the Zoom platform – they only require prior registration through the website.

The Creative Meetups are currently facilitated by Annie Robinson, who has completed a Masters in Narrative Medicine and is a qualified meditation, mindfulness and yoga teacher. In her private practice, Annie helps health professionals, including nurses and doctors, by training them in wellbeing, reflection and resilience. She also assists individuals in various life transitions and is co-curator of the podcast for health professionals, Thriving in Scrubs.

My experience of a Creative Meetup

I recently participated in my first Creative Meetup – initially with some uncertainty, not knowing what would be involved and how vulnerable I would feel. The Meetup facilitated by Annie had about 12 participants, both male and female. The process usually involves Annie providing some form of stimulus for reflection followed by a period for individual creative writing that can take any form a participant desires, e.g., a poem, picture, narrative or dot points.

Annie explained at the outset that she was departing from her usual practice of having two participants read out a piece of writing, e.g. a poem, that can act as a stimulus to reflection. On this occasion, she shared an abstract painting that featured a number of colours with a pattern that suggested “reflection” to me.

Our Meetup process involved an initial two minute writing task where we reflected on what the painting meant for us as individuals, there being “no right answer”. This was followed by a brief sharing by some people who wished to share with the larger group. We were then assigned the task of taking a sentence from our earlier reflection and expanding on this over a period of 20 minutes of individual creative writing (with no restrictions on form or length).

When we had completed our creative writing, Annie placed us into Zoom “rooms” of three or four people to share at another level. Participants were encouraged to share only what they felt comfortable sharing with no pressure for full disclosure. The small group environment enabled rapid rapport building and a degree of openness that was disarmingly honest (destroying any erroneous first impressions that may have been formed).

As one participant commented in the larger group, there was a common bond amongst participants in that we were all dealing with a health challenge (however varied in nature and complexity) and were seeking healing through writing and sharing. Reg Revans, the Father of Action Learning, would describe us as “Comrades in Adversity” (or as others put it, “Comrades in Opportunity”).

The environment created through the Creative Writeup process was one of trust that facilitated openness and vulnerability by participants. There was a shared sense of journeying towards healing with the aid of the understanding, empathy and mutual support offered by fellow participants. Annie’s low-key facilitation style and active listening modelled appropriate behaviour for participants.

I was blown away in the small group by the creative writing that was shared. In one case, this involved a poem that expressed the meaning for the participant of each of the colours in the painting – an insightful and revealing piece of writing that we asked the storyteller to read a second time because it was so rich. Another involved an allegorical story that was emotive and self-disclosing and left us all feeling loving kindness towards the person who shared so vulnerably.

One of the features of the small group was the way that one person’s shared reflection stimulated reflection by another person and achieved a deeper level of self-disclosure. Participants could relate to some aspect of a shared situation, response or recovery approach. We were each able to learn from the storytelling.

Reflection

During the small group sharing, I was able to share with others how expressing gratitude for what I am able to have and do was a recovery mechanism for me following my diagnosis of multi-level spinal degeneration. It also empowered me to seek alternative medical assistance in the form of an exercise physiologist who helped me return to tennis when my doctors told me that I would never play again.

The painting that Annie shared reminded me of the art of reflection – having spent most of my working life in studying, teaching and practicing action learning. Reflection underpinned the way I played tennis, conducted workshops, managed people and interacted with others.

More recently, through reflection, I came to understand that one of my personal barriers to active listening was my need to come from an “I know” perspective rather than what Frank Ostaseski recommends as a “don’t know mind”. The “don’t know” approach is foundational to action learning, so my listening behaviour was not congruent with what I espoused about action learning. Reg Revans reminds us that, ”If you think you fully understand something, you are not only going to get yourself in trouble but others as well.” Reg encourages us to “ask fresh questions” and to develop “questioning insight”. He frequently quoted Isaac Newton’s comment about studying some interesting shells and pebbles in his lifetime “whilst the great ocean of truth lay all undiscovered before me”.

At the time, I attributed this personal barrier to active listening to my many years as an academic. I realised, too, that the “I know” perspective accounts in part why I had so much resistance when trying to introduce action learning into my university. It also explains why in the first year of an action learning program that I was facilitating in another university, the hierarchy insisted on removing “become a learning organisation” from the vision statement for the program (they re-inserted it after their experience of the first year of the program and its outcomes).

As I grow in mindfulness through reflection and activities such as the Creative Meetups, I am better able to develop resilience to deal with life’s challenges, gain increased self-awareness and cultivate deep listening to enrich my relationships.

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Image by Peter H from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Changing How We Deal with Emotions

Hilary Jacobs Kendel, psychotherapist, author and activist, contends that we learn many things in school that we never use but do not learn about emotions that affect every aspect of our daily lives. She strongly advocates for education about emotions though her videos, blog posts, presentations, interviews, newspaper articles and clinical practice. Hilary is the author of It’s Not Always About Depression: Listen to the Body, Discover Core Emotions and Rediscover Your Authentic Self.

The Change Triangle®

Hilary educates people about emotions and how to change the way we deal with them through what she calls the Change Triangle®. This is a visual representation in the form of an inverted triangle of the different types of emotions we all experience. At the base are what Hilary calls the core emotions that are calls to action designed to help us negotiate our environment. To the right at the top are inhibiting emotions which impede us experiencing core emotions in their true form. These, in turn, often lead us to adopt defenses which we employ to avoid being aware of, or experiencing, our feelings.

Hilary acknowledges that her own understanding of emotions was developed through attending a presentation by Dr. Diana Fosha, Director and Founder of Accelerated Experiential Dynamic Psychotherapy (AEDP)™ which is a treatment model adopted by Hilary that was developed to help adults experiencing difficulties as a result of childhood attachment trauma and abuse. This transformational model focuses on healing and flourishing despite the experience of emotional suffering and draws heavily on neuroscience, brain plasticity and research on mother-infant development. Diana advocates strongly for a healing approach (transformation) instead of the traditional psychotherapy approach of a focus on pathology. In this respect, she addresses the question What Happened to You?, not What’s Wrong With You? – a healing approach also adopted in the book by Oprah Winfrey and Dr. Bruce Perry. Diana wrote the Forward for Hilary’s book.

Core Emotions

Core emotions have been identified as early as Charles Darwin and their impact on the brain is now able to be identified through brain imaging. Hilary identifies the core emotions as fear, joy, anger, excitement, sadness, sexual excitement and disgust. These emotions are beyond conscious control as they are triggered by our everyday experience and serve as a survival mechanism, activating our flight or fight response, our approach or avoidance stance. Where real danger exists, this can be life-saving. Fear, for example, can make us aware of a real, impending danger, e.g., a house fire. However, through trauma and adverse childhood experiences, the core emotions can be triggered by seemingly harmless activities or events, such as conscious breathing, a smell or a sound. The core emotions “ready our body for action” as they appear with a lot of biological energy – ready for activation.

Inhibiting Emotions

Hilary identifies three emotions that she describes as “inhibiting emotions” – anxiety, shame and guilt. These emotions often arise from the “shoulds” “and “should-not” messaging that we are all exposed to, especially in our childhood. Deborah Feldman illustrates this very well in her book, Unorthodox: The Scandalous Rejection of My Hasidic Roots. She talks of the shame she felt in reading books written in English rather than Yiddish (because of the constant paternal messaging) and the guilt she experienced eating cakes when she felt hungry from the very restrictive traditional diet. Hilary explains that “shame” is designed to inhibit out impulses and ensure conformity to the norms of our reference group – e.g., family, community or religion. She differentiates healthy shame from toxic shame – the former brings us safety through inclusion, protection and support. The latter generates a toxic environment in that it is built on negative self-talk that reinforces negative beliefs about oneself generated by bullying (online or offline), abuse, neglect or alcoholic parents. Hilary explains that the road to healing is employing the Change Triangle® to unearth the core emotions that lie underneath the shame. She provides a roadmap through her blog post, 5 Ways to Work the Change Triangle as a Beginner, and offers multiple examples of this transformation process in operation within her book, It’s Not Always About Depression.

Defenses

Hilary explains that defenses are a form of emotional protection in that they are multiple ways “we all avoid painful, uncomfortable or conflicting emotions”. She identifies the more common ways to avoid emotions in one of her blog posts, including sarcasm, superior conceit, constant apologizing, procrastination, eating disorders and addiction. She describes some of the more surface level defenses as moving away, rolling your eyes or judging others. Defenses can be healthy and serve our needs in particular situations such as in a professional environment. However, unhealthy defenses prevent us from experiencing either inhibiting or core emotions and effectively lead to disconnection from our authentic self. We hide away from the pain of our deepest feelings by finding a way to deflect them.

In a New York Times Article, It’s Not Always Depression, Sometimes its Shame, Hilary describes her AEDP therapeutic work with a client named Brain. He had presented with what appeared to be chronic depression and had failed to respond to multiple forms of therapy and medication. He appeared to be in a comatose state – unable to connect, express his feelings or communicate effectively. His defenses, in the form of withdrawal enabled him to protect himself form the pain of “emotional aloneness” and toxic shame – induced by a lack of emotional bonding from his parents. His father was preoccupied with earning a living and his mother drank to excess – resulting in “emotional neglect” for Brian.

Hilary employed a range of techniques over the four years of her therapeutic intervention, including throwing cushions to Brian just to engage him in some way. In his second year of treatment, he learned to name his emotions, validate them and “safely connect to the emotion he felt in his body”. On the conclusion of his therapy Brian “felt alive again”, developed more friends, undertook meaningful work and learned to assert his needs. In the process, he dissipated the toxic shame he had been experiencing.

Reflection

As we grow in mindfulness we gain increased self-awareness and are better able to identify our triggers, our habituated defenses, the inhibiting emotions and our underlying core emotions (often, there is more than one at play). We can also learn to access our emotions through our bodily sensations – a major focus of Hilary’s approach.

In her video presentation of the Change Triangle® to a group, Hilary begins with a meditation – participants are asked to close their eyes, become grounded, get in touch with their breath, and undertake a body scan. The first part of the scan focuses in on a place in the body where we can feel calm and warmth. The second part of the scan involves identifying a place of tension or pain in the body. This is followed by a process of breathing into that place and imagining that we are able to move it aside even for a little bit to locate the emotion that is under there, “pushing up for experiencing and validation”.

As Bessel van der Kolk maintains, The Body Keeps the Score. In this book, he explains the role of the brain and body in the transformation of trauma. As Hilary points out, through her Change Triangle®, healing and transformation ultimately lead us to our Authentic Self which enables us to achieve clarity, calm, courage, creativity, compassion and connectedness.

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Image by Ronald Plett from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Dealing with Guilt and Shame on the Death of a Son or Daughter

In the previous post, I wrote about how storytelling helped Tiffany Barton deal with grief and loss on the suicide death of her son, Cosmo. She talked about her letter and poem, Young Death, that Nick Cave published in his book, Faith, Hope & Carnage. She expressed gratitude that Nick’s wife, Susie Cave (née Bick), allowed him to share her “guilt and shame” in his book because it helped Tiffany “so much to know I wasn’t alone”. Tiffany also stated that in sharing her own story publicly in the Weekend Magazine, she felt “some relief from pain” and “some forgiveness”. Her experience and that of Nick reinforces the wisdom of Annie Brewster in her book, The Healing Power of Storytelling: Using Personal Narrative to Navigate Illness, Trauma and Loss.

Forgiveness: Release from guilt and shame

The latter part of Nick’s book is devoted to forgiveness and the idea of making amends. He indicated that he and Susie were “looking the wrong way at the wrong time”. He suggested that everything they do now is designed “to seek forgiveness by making amends”. Tiffany related to that statement and indicated that her public storytelling was designed to help anyone else who is also wrestling “with guilt, shame and self-loathing” as a result of the suicide death of their son or daughter. Nick devotes a whole chapter (chapter 15) of his book to the theme of “Absolution”.

Nick found recording the Skelton Tree album in Brighton particularly challenging as he had to drive each day past the cliffs were his son Arthur died and past the Church where he was buried. Even moving to Paris to finish the recordings did not assuage his sadness or sense of guilt. What did effectively provide some form of “exoneration” and inner peace was the Andrew Dominik’s documentary, One More Time with Feeling. The documentary captures the final recording sessions of Skeleton Tree by Nick and his band, The Bad Seeds, following the death of his son. It also incorporates Nick’s reflections and those of his wife, Susie. Nick explains that the documentary seemed like it did something for Arthur – “bring him back into the world”. It served as a form of release for his own sense of helplessness and guilt and enabled him to experience “a kind of peace, an internal silence and calmness”, even when driving past the cliffs where Arthur died.

Finding forgiveness in working with clay

Nick found his way to forgiveness not only through his music but also through working with clay and developing figurines “in the Staffordshire style”. He became obsessed with this project pursuing it intensely because he was totally absorbed by it and experienced flow through the deep concentration involved. Nick found the process therapeutic, permeating his dreams and consuming much of his time when he was awake. He indicated that part of the attraction of working with clay was that the process was “something very direct and elemental”. Nick found that the medium “felt liberating, also very healing”.

Sean O’Hagan, Nick’s interviewer for the Faith, Hope & Carnage book, was intrigued by Nick’s compulsion with the clay figurines and asked about the portrayal of the epic journey involved, a seeming allegory. Nick responded that the figurines were not intended to be directly about Arthur but, in the final analysis, had something to do with his death – there is a gesture of atonement involved in the final sculpture that is titled “Devil’s Forgiveness”. When asked directly whether the figurine epic is “an allegory about forgiveness”, Nick found it difficult to articulate exactly what the figurines meant. However, despite himself, the figurines, and the story they portrayed, spoke to him “directly and explicitly”. He found that the “plain and explicit nature” of the figurines related to him “the larger and unambiguous meaning of his predicament”.

Nick explained that the theme running through each of the sculptures, and the underlining story, is “the need to be forgiven” which he maintains is at the centre of his life and that of Susie and, as such, acts as a “motivating force”. Nick stated that the Faith, Hope & Carnage book, his live performances, albums (Skeleton Tree, Carnage and Ghosteen), The Red Hand Files, and his In Conversations events, are all asking for absolution – “to be released from my own personal culpability”. He also maintained that all the work that they do – he (with his creative works) and Susie (with her “ghost-like dresses”) are asking for forgiveness and saying that they are sorry for what happened to Arthur. In his own words, Nick asserts, “There is not a song or word or a stitch that is not asking for forgiveness”.

Reflection

It is not possible to fathom the depth of grief and feelings of guilt and shame experienced by a parent on the death of a son or daughter. Grief expresses itself in unique ways – for some it is totally consuming and takes over their life. For others, it seems to be a passing feeling that becomes buried before it can become an all-consuming pain. Some retreat into isolation , others “party on” while attempting to “drown their sorrows”.

The road to self-forgiveness and absolution is a long and winding road, and often a tortuous path. It is highly individualised as reflected in Nick’s figurine epic and Susie’s dress designs. Each person has to find their own way through the darkness of grief, guilt and shame. For Nick and Susie, the road to release was paved with creativity – but never dissolving the underlying sadness.

Nick mentioned that meditating enabled him to access his better, sympathetic self. In contrast, when he stopped meditating, his life tended “to slip back into chaos, low level depression and anger”. As we grow in mindfulness through meditation, we can progressively deal with our challenging feelings of grief, guilt and shame and find a way to support others through empathy and compassionate action, whatever unique form that takes. Through his pain, Nick reminds us to savour the “the precious nature of things” and the world at large.

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Image by Sergio Cerrato – Italia from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Dealing with Loss and Grief

Previously I have written about the power of storytelling to manage grief. I drew on the writing of Dr. Annie Brewster and Nick Cave. Annie published her groundbreaking book, The Healing Power of Storytelling, to share her own story and that of others who have experienced loss, trauma or serious chronic illness.

In his book, Faith, Hope & Carnage, Nick demonstrates how his storytelling through his writing, documentary and his creative endeavours (songwriting, recording and performing) provided him with growth and transformation and enabled him to manage his grief with the loss of his 15 year old son, Arthur.

Even before his son’s death, Nick felt a strong need for social connection and so he created the website, Red Hand Files, to give his fans an avenue to communicate with him by asking questions of him. The resultant Red Hand Files moved from a superficial exchange re his songs and their origins to a deeply personal storytelling exchange that Nick described as an “exercise in communal vulnerability and transparency”.

Nick maintains that that through the Red Hand Files his past debilitating filters ‘have been dismantled over time” and wonder and awe have been restored in his life. He indicates that the experience of the Red Hand Files, involving mutual storytelling, has enabled him to slowly develop self-awareness and transparency by “prising” him open – moving him to progressively disclose himself and the depth of his feelings. He asserts that the process of such mutual vulnerability caused him to change as a person, songwriter and performer.

Nick’s interviewer for his book, Sean O’Hagan, comments that the letters people wrote to Nick as part of the Red Hand Files were very powerful in transforming people’s lives and served to fulfill their need for connection “by articulating their particular story for somebody else to hear”. The online files enabled people to reach out and find a way to voice their own grief. Tiffany Barton’s story is an illustration of the power of such sharing through storytelling.

Tiffany Barton’s story of loss and grief

Tiffany recently shared her story of loss and grief, and her healing interaction with Nick, in her story, “Into My Arms”, in The Weekend Australian Magazine, June 10-11 (pp.15-19). Tiffany lost her 22 year old, gifted son, Cosmo, through suicide. It is only after his death that she began to realise that Cosmo showed signs of being on the autism spectrum. For example, he had a phenomenal memory, being able to recite the 230 digits of Pi. He was also readily able to memorise Mozart, Beethoven and Haydn when learning music and performing.

Cosmo had a totally absorbing passion for the fortepiano, an instrument like a piano but based on instruments developed before 1930 (and differing from the modern piano in tone, touch and appearance). Cosmo was mesmerized by the fortepiano often talking passionately about its history, mechanics and technique and developing a unique skill in tuning the instrument. His passion led him to study the fortepiano at the Western Australia Academy of Performing Arts (WAAPA) where he hoped to eventually complete a PhD. His last performance on the fortepiano was described by Tiffany as “a stunning final concert at WAAPA”. Cosmo suffered terribly from sclerosis which led him to seek relief from a drug purchased online, that ultimately led to his death.

In her article, Tiffany describes her grief as being “like a mosquito smashed on the window of a ten-tonne truck”. She drew on Nick’s words to describe the “vastness” of grief, reducing us to “trembling clusters of atoms subsumed within grief’s awesome presence”. Tiffany became aware of Nick’s writings on grief through his Red Hand Files and was particularly moved by his “Letter to Cynthia” that he turned into a song. She wrote a poem “young death” about the night Cosmo died which helped her “purge some of the trauma and change” she carried.

Tiffany reached out to Nick by writing a letter to him and including her poem. Nick was incredibly moved by Tiffany’s courage and clarity in articulating her grief and asked her permission to publish her letter and poem in his Faith, Hope & Carnage book (which he duly did). He also asked her to record them for his audiobook.

Nick subsequently contacted Tiffany and spoke in his usual “patient” and “loving” way. Besides checking-in on her welfare, he inquired about her meditation practice. She explained that she uses meditation to communicate with Cosmo. In her discussion with Nick she spoke of Cosmo’s drug use and the impact of intergenerational trauma on her family. Tiffany explained that Nick’s ability to articulate his “grief, loss, love, art and spiritual awakening” in his book soothed her and “offered her respite from her horror”.

Reflection

Nick found that there was “freedom in grief” and indicated that the words of Kris Kristofferson song, Bobby McGee, resonated with him – “Freedom’s just another word for nothin’ left to lose”. Nick came to reconcile with the reality of the human condition and the “acute jeopardy of life”. He strongly urges us to appreciate all aspects of our life and savour “the time we have together in this world”.

It’s in facing our challenging emotions that we can break free of their hold over us and realise true freedom. Storytelling and sharing with others can open us up to the depths of our feelings and release us from the hold of our own expectations and those of others. As we grow in mindfulness through openness, curiosity and non-judgmental attention, we can deepen our self-awareness and develop the courage to share our story of loss and grief for our own healing and transformation.

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Image by Lars Barstad from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group, and the resources to support the blog.

Managing Grief through Storytelling

Dr. Annie Brewster, M.D. describes the power of storytelling for healing and recovery from illness, injury or loss in her book, The Healing Power of Storytelling: Using Personal Narrative to Navigate Illness, Trauma and Loss. She stresses the need to develop a new “narrative identity” after receiving a life-changing medical diagnosis. Annie provides an online avenue for people to share their stories of health challenges and recovery in her Health Story Collaborative which is dedicated to enabling people to heal through the therapeutic power of storytelling and a supportive social network.

In her book, Annie highlights the need to make the storytelling authentic – not just a recounting of events but also exposure of the nature and intensity of accompanying emotions. This means being open about our feelings even those such as resentment that we might be embarrassed about. It is in identifying and facing our difficult feelings that we can gain release from their hold on us. Annie stresses that it is not the medium of storytelling that matters, any form will can have a healing effect – video, audio, song, poem, letter or blog post.

Storytelling can be a powerful process for managing grief after the loss of a partner or child. Bruce Feiler stresses the need to change our “story narrative” when encountering such “lifequakes” – we have to change our linear mindset about life’s progression and allow for regression that can occur at any time. In his book, Life is in the Transitions: Mastering Change at any Age, he offers strategies, including storytelling, to reframe and reshape our lives in the event of personal loss. To assist this process of rebuilding, Bruce offers an online resource in the form of the Life Story Online Interview.

Nick Cave’s Story of grief

In his book, Faith, Hope and Carnage, developed through intimate interviews with Sean O’Hagan, Nick discusses his inner life – his creativity, challenges, loss, grief and guilt. His storytelling in the book and his music provides a catalyst for healing, growth and transformation. Nick and his wife Susie were devastated by the death of their 15 year old son, Arthur, in 2015. He described the initial grief reaction of Susie and himself as a “kind of zombification” – “a kind of morbid worshipping of an absence”.

Nick indicated that there was a real danger in such grief reflected in “a reluctance to move beyond the trauma” – because the lost person resides there and that is where meaning is initially found. He indicated that he experienced simultaneously being caught up in the “commonality of human suffering” and experiencing a deep sense of aloneness – a maddening and “extreme paradox”. Nick stressed the physicality of grief describing grief as “pounding through my body with an audible roar”, accompanied by “despair bursting through the tips of my fingers”. He also felt this “violent electricity” in the hand of his wife. He indicated that both he and Susie were “unreachable” at the time, despite the very best intentions of other people.

Nick indicated that on the advice of a friend, he undertook a form of somatic healing. He started the session lying down in a “euphoric” state. Before long, he was consumed by rage and his body bucked and vibrated from the intensity of the feeling. He observed that “you never really know what you are carrying around in you”. Bessel van der Kolk reminds us that The Body Keeps the Score in his landmark book on “the brain and the body in the transformation of trauma”.

Nick’s son died while he was recording a new album, Skeleton Tree, with his Bad Seeds band members. Nick found it extremely difficult to tour to promote the album but a friend, New Zealand-born director Andrew Dominik, offered to produce a documentary along with release of the album. The documentary, One More Time with Feeling, enabled Nick to tell his story of the trauma and grief he experienced on the death of his son. On release of the album, the Guardian described it as “a masterpiece of love and devastation” and it debuted at #1 on the Australian Aria charts.

Over time, “fragments of light” were experienced by Susie and Nick amongst the incredible darkness of grief. They were gradually able to see that people cared and that in this care and kindness lay recovery. The healing influence of social support was brought home to Nick when he undertook his Skeleton Tree Tour in January 2017. Nick indicated that he was depleted, exhausted and depressed before the tour and some of his band members were experiencing personal challenges too. Collectively, they started the tour with “trepidation” because of their lack of energy while consumed by sadness. However, Nick found that performing his songs (and story) on stage was “restorative” because of the “force field of the audience’s concern and awareness and love”. Storytelling through the power of his songs became a source of healing and a way to manage his grief.

Nick indicated that the “lifequake” of his son’s death brought home to him that suffering is the gateway to deep personal change, transition and transformation. Suffering, especially grief, forces you to redefine yourself and to seek out a new meaning for your life and adopt a new perspective on what is important.

Compassionate action through grief

Grief can energise individuals to take compassionate action, e.g. the legislative reform actions for backpackers initiated by Rosie Ayliffe on the murder of her 21 year old daughter – a story told in her book, Far From Home. Likewise, Nick was motivated to establish a website, Red Hand Files in 2018 where his fans could ask questions and seek answers from him. The website transformed from a “Q & A” type activity to what Nick describes as an “exercise in communal vulnerability and transparency” and a “life-changing, soul-enriching exercise in commonality and togetherness”. People who write to Nick via the website are able to share their stories and seek his comments and reassurance. He readily participates in this mutual story telling and story-sharing.

Grief can flow from many types of losses. It may be that a child loses their way and their personality through illicit drug use or end up in prison as a result of some criminal activity. It may be, too, that a son or daughter chooses to change gender roles. A recent post on the Red Hand Files highlights the associated sense of loss and grief of a parent when this occurs. Nick’s sensitive response to this story highlights his understanding of loss and grief. He talks of a parent’s sense of a loss of control and ,even worse, “a profound understanding that we never had control of them [our children] in the first place”. Nick suggested that the greatest sacrifice a parent can make is to “let go”. He appreciated that the parent and their offspring were able to find a “common bond” in his songs and readily agreed to the request to play O Children in Minnesota, dedicated to “Claude” as the newly named offspring.

Reflection

Storytelling can take many forms and lead to healing from grief – sharing the story adds another dimension in that it enables others to heal also. Nick talks about his songs being “a force” that “can make people better” or help them in some other way. Storytelling involves transparency, personal disclosure and risk but the returns are health, healing and recovery.

As we grow in mindfulness and self-awareness, we can embrace our new reality after a loss and restore our sense of beauty and goodness in the world.

There are many resources to help us deal with grief and trauma. One of these is Dr. Bonnie Badenoch’s online course, Trauma and the Embodied Brain.

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By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the website and resources to support the blog.

Tina Turner’s Approach to Mindfulness

Allyson Pimentel, psychologist and meditation practitioner/teacher, fittingly provides a meditation podcast titled, The Mindfulness Teachings of Tina Turner. Allyson describes mindfulness as “a way of attending to your life as it unfolds” while bringing to this awareness an attitude of “openness, friendliness, and kindness” without judgment. Associated with this, is a willingness “to be with things as they are”.

She maintains that the goal in practising meditation is not to master the art of meditation itself but to lead better lives day-to-day though our groundedness, compassion and wisdom. We do this so that we can become “a force for good” in our family, in our work, in our community and in our daily interactions. Allyson maintains that Tina Turner, who died at the age of 83 in May 2023, exemplified this broader goal and drew on mindfulness practices to be a positive influence in people’s lives. Allyson viewed Tina as a personal hero who, in her view, embodied kindness, love, wisdom, resilience and creative talent.

Tina’s approach to personal transformation

In her book, Happiness Becomes You: A Guide to Changing Your Life for Good, Tina explains her Buddhist approach and how she turned her life around after multiple “lifequakes” that threatened to derail her singing career and harm her mental wellbeing. She explains in-depth that chanting enabled her to overcome adversity, develop resilience and realise happiness in her life. Her ability to commune with nature from an early age enabled her to find her true home within, despite the turbulence and torment of her outer world. Besides the vibrational energy and groundedness of chanting, Tina drew on the teachings of Nichiren Buddhism to transform and reframe her life.

Tina explains that this Buddhist approach, that places emphasis on engagement and social activism helped her to move beyond her comfort zone, to appreciate the connectedness of everything, to value diversity in nature and cultures and participate actively in the Beyond Music Project designed to use music as a way to respect and celebrate cultural diversity.

Tina saw experiencing adversity as a way to shape ourselves and build our resilience – in her words, adversity is not a bad thing in itself, it is how we use it that really matters. She contended that adversity could build character, self-awareness, insight and a stronger sense of connection. This perception aligns with the tenets of mindfulness that reinforce the view that while we have little in our life that we can control, we can control our response to what happens to us as well as around us. Mitra Manesh in her podcast on responsibility contends that mindfulness builds our ability to respond to adversity and setbacks – she describes this outcome of mindfulness practice as developing our “response-ability”.

Tina explained in her book that all of life shapes us – the good, the bad and the ugly. We become our transformed selves through the richness and diversity of our life experiences and by developing a constructive, creative and energetic response to whatever occurs. She maintained in her eighties that she had no regrets – she had lived her life to the full, positively impacted numerous people all over the world and experienced deep happiness.

Reflection

Tina demonstrated in her life, music and her writing that as we grow in mindfulness we can overcome adversity, develop resilience, enrich our creativity and build the courage and sense of connectedness to take compassionate action. Her life and music provide an invaluable legacy and a “ripple effect” that has the power to inspire others to work to create a better world.

In her guided meditation podcast, Allyson draws on Tina’s core teachings to help us explore our connection with nature, the influence of our ancestors, our own legacy, and our present moment awareness.

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By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group, and the resources to support the blog.

Managing Transitions with Mindfulness

In a previous post I explored the use of storytelling as a way to manage life transitions. In this post I want to discuss a story of personal transition shared by Peggy Farah, mindfulness teacher and licensed physiotherapist. Peggy was interviewed by Jon Waal on his Life Through Transitions podcast (Episode 48). Her focus in the interview is tuning into your body using mindfulness as a way to manage life transitions. She initially started her more than 20 years working with emotional and mental health by supporting children and youth who were dealing with grief, loss or critical illness – all extreme life transitions that are described by Bruce Feiler as “lifequakes”.

Beneath Peggy’s competence as a therapist was a private struggle with “body image” – she was disgusted with her body (despite dieting) and had a “difficult relationship with food”. It was as if she disowned her body and continuously retreated into her thoughts, becoming lost in cognitive processes – avoiding having to confront her challenging relationship with her body. It was during her Masters study of Psychotherapy and Spirituality that she was able to use mindfulness to “reclaim her body”.

As part of her postgraduate studies, Peggy had explored the concept of “presence” and discovered the merits of Eastern religions, especially Buddhism. She was also introduced to the numerous documented benefits of mindfulness which she describes as “deep noticing” in a way that is non-judgmental. This opened up the possibility of overcoming her own negative self-evaluation and time spent in her “monkey brain” – in Buddhist philosophy, the concept of “monkey mind” relates to restlessness, disorder and lack of control.

Mindfulness to manage transitions

From her reading, Peggy came to understand that mindfulness could provide her with an “emotional breather”, could actually enable her to “press pause” in her debilitating negative thinking pattern. She decided to re-focus her Masters thesis on herself undertaking a heuristic study (where she was both the researcher and subject of her research). Her aim was to apply the principles of mindfulness and presence to her negative relationship with her own body and food so that she could gain “self-acceptance” – a fundamental outcome of mindfulness.

Interestingly, Peggy’s route to mindfulness was through her body – being present in the moment through her body (our body is always in the moment, in the “here and now” – it’s our minds that persist in exploring the past or the future). She was able to become grounded by focusing on her feet on the floor, her body on the chair, and getting in touch with the physical sensations of her body (a process that involves a “body scan”). She adopted “mindful eating” practices – the opposite to her previous behaviour. She expanded her mindfulness practices to daily observation and journalling and engaging in “micro-practices”. She became aware that the more you practise mindfulness, the more often “spontaneous mindfulness’ occurs in your daily life – you suddenly feel more present in everyday events, such as when observing a flower or leaf.

As she continued her mindfulness practise and her Master’s research on what was happening for her, she began to experience the documented benefits of mindfulness – increased joy and compassion, greater awareness (of self, others and nature), and “deepened relationships”. She changed from being a “wound-up” Type A senior manager caught up in endless daily tasks to someone who became “anchored in the moment”. She was able to spontaneously appreciate the shape and beauty of a leaf, to achieve real “presence” when doing yoga, and be really present to her family at the dinner table. Previously, yoga became a catalyst for negative self-comparison – comparing her body to that of others participating in practice on the mat.

Penny graduated with her Master’s degree in 2012 and it was not long after this achievement that she moved into her private psychotherapy practice, where, among other services she shares her own experience and learning to enable clients to heal their relationship with their body and food (thus overcoming “emotional and binge eating, chronic dieting, negative body image”). Peggy also offers anyone a free 12-session, self-help course that she describes as the Deeper Cravings Path™ – a path to achieving a “true connection with your body and develop a peaceful relationship with food”.

Reflection

Peggy has achieved a number of significant life transitions including moving from a person who disowned her own body (despite externally recognised therapeutic competence) to “body reclamation” and self-acceptance; from an overworked and highly stressed senior manager to a calming influence in her private practice helping others achieve creative life transitions. Peggy now sees her body as “an avenue to return to myself”. She is living evidence of the transformative effect of mindfulness practice.

Peggy asserts that her achievements to date do not mean that she no longer encounters personal challenges or that she will be free from “lifequakes” in the future. What it does mean is that she now has the ability to drop into her body when feeling stressed and to take an “emotional breather” and “press pause” in her negative thinking pattern. Her interviewer, Jon De Waal, reminds us that “every thought we have carries an emotional charge”. Thus mindfulness practice by suspending or reducing our thinking provides us with a refuge from life’s challenges.

In my current life transition from a competent and active tennis player to a person in rehabilitation for spinal degeneration, I can take inspiration from Peggy’s journey and storytelling. As I grow in mindfulness, I can experience gratitude for the many positives in my life, persist in the process of rehabilitation and creatively develop a new identity and life story.

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By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group, and the resources to support the blog.

Managing Life Transitions through Storytelling

Many writers and podcasters highlight the challenges involved in life transitions. Some focus on specific transitions such as aging, menopause for women, or transitions precipitated by organisational change. Their discussions frequently highlight the need to reframe specific transitions such as aging or job loss as periods of growth and creativity rather than decline – this means changing our mindset and our narrative about these transitional periods. As William and Susan Bridges point out in their book, Managing Transitions: Making the Most of Change, many people become stuck in the “endings” phase of transitions because they focus solely on what is being lost, rather than appreciating the potentiality of “new beginnings”.

Bruce Feiler, in his TED Talk©, The Secret to Mastering Life’s Transitions, contends that one of the core problems people have in managing life’s transitions is that they have a linear mindset, a perception that life is always “onwards and upwards” with a predictable forward-moving pattern – schooling, job, home purchase, marriage, and children, and career promotion. We are thus ill-prepared for “setbacks” or deviations that occur through job loss, ill-health, loss of a partner, or physical disability. Bruce, who was diagnosed with cancer when he was a new father of twin girls, suggests that when we are “side-tracked” or things go “offtrack”, we can feel as though we are “living life out of order” – living a life that is totally unexpected. In his TED Talk© and his book, Life is in the Transitions: Mastering Change at any Age, Bruce maintains that life is a series of “disruptors” and some of these are “lifequakes” that involve massive change and demand managing the transition to a new state.

The role of storytelling in managing life transitions

Bruce, along with many other writers, podcasters and public speakers, offers tips for managing life transitions that we encounter. He maintains that a key to transition is to explore our “life story” – this is the narrative we create about our own life. The solution to mastering transitions is often in our own narrative – false assumptions, self-deceits, delusions or denials (e.g. “it can’t happen to me”!). Bruce maintains that a life transition, especially a “lifequake”, is an invitation to “revisit, rewrite and retell our life story”. He offers a catalyst for this process through his Life Story Online Interview which provides an interactive form for reflection on, and recording of, our personal narrative. Bruce’s insights on life transitions have been gained through his own life experiences as well as through over 1,000 interviews with people about their life story.

Jon DeWaal, in his TED Talk©, Two Factors that Make or Break Every Messy Life Transition, stresses the need, when exploring our life story and the associated narrative, to adopt two practices to ensure that the exploration leads to a constructive outcome. Firstly, he contends that we need to be honest with ourselves – to own up to our own part in contributing to our side track or offtrack experience. This requires deep reflection, total honesty, self-awareness and avoidance of the tendency to blame others rather than look at ourselves. Associated with this is what he calls “community support” – not the gentle, warm kind that confirms our invalid self-assessment, but the kind that offers “supportive challenge” which makes us confront our weaknesses, unfounded assumptions or persistent mistakes/oversight. Jon is a learning facilitator and life transition guide at Liminal Space – a team of transition experts who can help us grow and thrive through difficult transitions. Jon is also the creator of the podcast, Life Through Transitions, drawing ideas and inspiration from interviewees who have been able to make life’s “formative transitions” into opportunities for personal transformation.

Dr. Annie Brewster, MD, and journalist Rachel Zimmerman, in their book, The Healing Power of Storytelling, focus on the personal narrative as a way to “navigate illness, trauma and loss”. Annie shares her own life experiences and transitions and, together with her co-author, offers specific guidance in the process of using storytelling for healing. She is also the founder of the Healing Story Collaborative which provides shared stories and resources through a collaborative blog – processes that are open to anyone to engage with personal storytelling for the purpose of healing.

Reflection

We are continuously controlled by the narrative in our head and this is particularly true in times of significant life transitions. We can become embroiled in negative self-stories, get stuck in the endings phase or be blind to the creative options open to us in a life transition. We need to break this destructive cycle especially when confronted with what Bruce describes as a “lifequake”.

Using reflective storytelling, meditation and other related practices enables us to grow in mindfulness and can help us to increase our self-awareness and insight, to have the courage to move beyond our “comfort zone” and to creatively explore options to manage difficult life transitions and move forward to a new personal identity and reality.

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By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group, and the resources to support the blog.

Self-Care When Exploring Long Covid Symptoms

I mentioned in a previous post that I had thought initially that the peripheral neuropathy that I was experiencing was a symptom of Long Covid. However, as explained in a previous post, I had discovered on investigation with my doctor that there was a structural explanation for these symptoms. In that post, I encouraged persistent exploration of symptoms with our medical practitioner because our assumptions about symptoms may be misleading.

Self-Care in the face of disinterest or denial

One of the problems in discussing Long Covid with doctors is that there is no general agreement amongst medical practitioners as to what constitutes this condition (or even that the condition exists at all) yet doctors readily accept “fibromyalgia” as a condition. Fibromyalgia, like Long Covid, involves a set of symptoms such as muscular pain, cognitive disturbance and fatigue and, in common with Long Covid, symptoms vary with each individual. In one sense, today’s patient experience with Long Covid diagnosis and treatment is similar to the experience of Lyme Disease sufferers who are faced with ignorance or denial. This experience is eloquently described in case studies by Allie Cashel in her book, Suffering in Silence: Chronic Lyme Disease in the Age of Denial.

In her book, Allie also recounts her own experience with Lyme Disease and other chronic conditions. She strongly encourages patients experiencing any form of chronic illness that is typically denied by the medical profession to persist in sharing our symptoms with our doctor until we achieve a satisfactory outcome in terms of adequate diagnosis and effective treatment options. Interestingly, she also shares her story and advice in one of the “stories shared for health” on the Healing Story Collaborative platform. Her storytelling, which includes practical hints on how to approach your doctor with difficult symptoms, is presented in her recorded conversation with Val Walker, Being Fair Reporters: Self-advocating about Chronic Illnesses with Doctors. Sometimes, self-care may require finding a medical practitioner who really listens and demonstrates that they do the necessary medical research and are across chronic health conditions such as Long Covid.

Reflection – my story to date

Previously, I discussed healing through storytelling as a way forward to recovery from chronic illness or disability. This is in addition to qualified medical treatment that may take the form of medication and/or physical intervention. As identified earlier, the problem with chronic illnesses such as Long Covid is that they contribute to a sense of isolation and can lead to depression, anxiety and other mental health issues. Suzy Bolt’s Programme, Rest, Relax, Recover, addresses the emotional and psychological aspects by providing social support and healing modalities such as mindfulness practices, breathing techniques and group discussion. In line with the healing power of storytelling, I am continuing my own story of exploration of my chronic symptoms such as peripheral neuropathy.

When searching for a medical practitioner who could help me diagnose my symptoms and suggest appropriate treatment, I came across a local doctor, David Eaton, who has dual qualifications as a General Practitioner and as an Occupational and Environmental Physician. The breadth of his qualifications was a clue for me in terms of his willingness to explore complex, chronic symptoms and openness to the potential influence of Long Covid. I have since discovered that he has several special interests that are relevant to my situation:

Musculoskeletal medicine, physical impacts of ageing and sports injuries
Skin conditions
Diagnosing and managing chronic and complex medical conditions.

David initiated a comprehensive investigation of my symptoms including blood tests. Through David (via X-Ray and CT scan) I acknowledged a structural explanation of my ongoing experience of peripheral neuropathy in the form of spinal degeneration (including spinal stenosis and arthritis).

The diagnosis of my symptoms is ongoing. Compounding my current health situation is a group of symptoms that I have assumed are a consequence of Long Covid. Gez Medinger in his Long Covid Handbook identifies three sets of Long Covid symptoms experienced by people categorised as experiencing mild disease but not hospitalised when suffering Covid initially (my experience as well). The three sets of Long Covid symptoms that Gez identifies can be categorised loosely as: (1) increased intolerance to foods, (2) cognitive and physical exhaustion (including brain fog), and (3) increased heart rate (palpitations) and associated health issues. I still experience unexplained symptoms of post-exertion malaise (Category 2) and increased intolerance of certain foods (Category 1 – what was previously experienced as “food sensitivity” is now being experienced as “food allergy” with the attendant aggravation of symptoms (changing from mild to severe).

David was aware that research has supported the observation that Long Covid can increase intolerance to specific foods. He has also demonstrated that he is continuing to research the emerging literature on Long Covid – a criterion that is very welcome when seeking medical assistance with chronic and complex health conditions in our pandemic era. David also reinforced the three elements of the health triangle – physical, psychological and social – and their interdependence.

Unfortunately, many patients experience an unwillingness of their doctor to acknowledge the existence of Long Covid or to make the effort to explore the growing research and anecdotal evidence of its existence and pervasive health impacts.

As I grow in mindfulness through mindfulness practices and reflection, I can continue to challenge my assumptions, gain increased insight into my habitual behaviours, adopt appropriate self-care techniques and move to develop a new personal narrative that reflects my current situation of chronic disability. In the process, I hope to gain the acceptance that Alexia Chellun describes in her song Allowing:

I’m allowing everything to just be
As it comes to me

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By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group, and the resources to support the blog.