Managing Chronic Illness

The November Creative Meetup was facilitated by Jennifer Crystal, author of One Tick Stopped the Clock.   Jennifer is a “story coach” with the Health Story Collaborative which hosts the online Meetups.   She also conducts the Writing to Heal Immersive at the Grubb Street Center for Creative Writing.   Jennifer has a long history in writing about her experience with Lyme Disease and sharing her knowledge with others who have contracted the disease and other tick-born illnesses.  Since 2013, she has been the writer of a weekly column for the Global Lyme Alliance and her enlightening and inspiring blog posts can be found on the Alliance website.

Jennifer’s medical journey

Jennifer was bitten by a tick on a camp when she was 19 years old but had to experience many frustrating years of misdiagnosis.  At 25 years of age, she was finally diagnosed with Lyme Disease which led to the Epstein-Barr virus (EBV) infection that causes Mononucleosis.   Jennifer was bed-ridden and experienced multiple symptoms that doctors had not been able to explain.  In her period of misdiagnosis, she was variously told “to rest”, “eat things close to the ground” (e.g. chicken and turkey),  and “talk about your feelings” (assuming that the illness was psychosomatic, not real). Grace Currey from Australia (bitten by a tick in the US) provides a vivid description of what it was like to have Lyme disease that was not recognised by medical professionals in her home country.

Jennifer Crystal had a five-year journey to wellness and remission of the Lyme disease.  However, she then had to experience a “searing relapse” and eventually found a new balance and developed her teaching-coaching career.  Earlier, she was unable to commit to relief teaching because of her inability to guarantee that she could manage physically or emotionally.  She is now a leading proponent of the multiple benefits of sharing your health story and teaches people how to write-to-heal.

Stimulus questions during the Creative Meetup

Typically the Creative Meetups begin with a writing stimulus of some kind such as a poem, article or book extract.  Jennifer introduced herself to the group and read a few brief sections from her book which served as a basis for creative writing by group members and story sharing in the group.  Jennifer’s stimulus questions flowed naturally from her book extracts:

  1. Write about a time when you felt brushed off and what you wished that person could have seen on the inside, or
  2. Pick a single object related to your story and write about it in a poem or prose – see where it takes you!

These were both challenging and fruitful questions that led to some insightful, creative writing by the group and follow-on sharing and discussion.  The level of creativity, resilience and insight in the group always amazes me.  The Creative Meetup process illustrates the healing power of storytelling and demonstrates the benefits of this approach to “narrative medicine”.

Jennifer’s healing strategies

Besides the medical solution of months of antibiotics, Jennifer identified the need to change her mindset about her chronic illness.  She adopted a number of strategies to achieve this:

  • Integrating chronic illness into her life – she established a “new normal” which addressed the question, “How to live well in the context of a chronic illness?”.  This very much involved self-acceptance and avoiding denial.  It also meant acknowledging that there was “no going back”.
  • Shedding an identity made impossible by the chronic illness – Jennifer’s dream was to become a skiing instructor – a role very much tied up with her self-image and personal goals.  This identity was no longer possible given her disabilities precipitated by her chronic illness.  She had to shed her ”skier instructor identity” and find a new sense of self.  She asked herself the question, “if I can’t [follow this dream], who am I?”.  This required her to value herself for who she was, not who she might be or could become.  She recognised that she was still a caring person, who had friends that she connected with, and was still a writer.
  • Pacing herself – slowing down and recognising that she needed frequent sleep and suffered from brain fog and other debilitating symptoms.  It meant napping each day, taking on freelance writing, listening to her body and sharing the load by moving in with her parents.  It also meant building stamina gradually, not trying to achieve her previous “workaholic” status.  It required her to accept that things would take much longer than previously to complete and that healing from chronic illness is not a  linear process, but an undulating journey of indeterminate length.
  • Learning to say “no” – part of self-care during chronic illness is to being able to say “no”.  Jennifer reiterated the view that “No is a complete sentence”.  Saying “no” enables us to set personal boundaries.  Jennifer encouraged us not to fall into the “explanation trap”, which itself consumes energy and can lead to exhaustion and frustration.  We don’t have to explain everything or give a reason for our “no”.  She suggested that we could use her phrase, “No, that would not be healthy for me now”.
  • Writing – the process of writing enables our inner landscape to become outer, to express the feelings that are hidden inside us.  Writing can change our mindset and create freedom.  Initially, Jennifer could not write about her illness and all that it entailed, so she concentrated on writing to her friends and family.  Eventually, she was able to address the issues of her chronic illness, including the challenge of “not being seen” or understood.  She found that writing enabled her to be more honest and vulnerable. It helped other people to see the effects of chronic illness and to become more compassionate in their interactions with others.
  • Joining a community – the Health Story Collaborative (HSC), for example, provides a community where people are encouraged to share their health stories either verbally or in writing.  Their Creative Meetups are one form of regular online interaction in a community that provides social support and encouragement.  Jennifer found that undertaking a course in creative writing enabled her to share her chronic illness with her classmates who did not judge her, were in a learning mode too and were exploring making the “inner world” visible.  She also noticed that people were better able to assimilate information about an individual’s chronic illness when it was shared in written form.

Reflection

In the discussion that followed the creative writing of participants, one major issue emerged.  This involved people not understanding the hurt that their well-intentioned words can cause to someone who is suffering from chronic illness.  Comments such as “You look good” or “You don’t look ill to me” can be particularly hurtful when someone with a chronic illness has gone to the trouble (despite the difficulty involved) to “dress up” or put on a “façade” when they are going out in public (leaving their bed and track pants behind)! 

The well-intentioned comments can be experienced as “devaluing” the experience of a person with a chronic illness.  It can also trigger memories of mistreatment by the medical practitioners who were unable to relate the presenting symptoms to their “medical cookbook”.   Annie Brewster (founder of HSC) contends that many patients with chronic illness experience “frustration, invalidation and exhaustion” when their ongoing symptoms don’t fit neatly into the “diagnostic algorithms” of medical practitioners.

As we grow in mindfulness through reflection and sharing our stories, we can increase our sensitivity to the situation and needs of others and experience what Jennifer describes as developing “greater compassion for others”.

During the creative writing segment of our Meetup with Jennifer I wrote the following poem to reflect some of the earlier sharing and my own experience of dealing with medical professionals who consider the existence of MCAS (Mast Cell Activation Syndrome – my chronic illness) as controversial as the concept of Lyme disease:

Validation and Accommodation

There’s no place for me in cookbook medicine –
so I don’t have an illness,
it’s all in my head.

Until something happens that is considered serious –
then perspectives change.

I appreciate my body –
the millions of daily decisions,
the miracle of breath,
the ability to write, walk, run and play tennis.

Now my body seems to be letting me down –
treating good food as invaders,
hypervigilant, ever on the alert.

My new bodily reality –
reflecting the dark and light of nature,
creating a challenge to accommodate the “new normal”,
with its remissions and relapses,
enabling and disabling in unpredictable ways.

___________________________________________

Image by Márta Valentínyi from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Breathing with Intention

In our October Creative Meetup we focused on the theme of “breath” catalyzed, in part, by James Nestor’s book, Breath: The New Science of a Lost Art.  In our discussion, various poems about “breath” were highlighted.  These included Mary Oliver’s poem, I Am Breathing and Rumi’s poem Only Breath where he notes, “first, last, outer, inner, only that breath breathing ”.  The poems and James’ book reinforce the essential nature of breathing for human existence – at every moment that we are alive, we are breathing.

We consciously “hold our breath” for many reasons. It may be to swim under water, to steady ourselves before playing a tennis shot or as part of a mindful breathing exercise.  However, we often hold our breath unconsciously when we experience fear, anxiety, anger or shock.  This was made clear by an exercise we undertook as part of the Creative Meetup.  We were asked to think of a time when we held our breath and explore what happened at the time in terms of bodily sensations and emotions.

What immediately came to mind for me was a car accident that I experienced when I was 12 years old.  I was travelling with my family and my father was driving us home. At one moment, I looked out the side window of my passenger seat to observe a large car approaching on the left (we were in a small car on a main road).  It was as if time stood still as I realised that the oncoming car was going to crash into us and instinctively I held my breath waiting for the impact.  We were hit on my mother’s passenger side and ended up upside down at the foot of a four metre embankment.  I can’t remember when I exhaled but I was aware that my breathing was erratic and I was in shock.

Learning to breathe with intention

James Nestor recounts how he undertook research with free divers in Greece. These divers were able to dive to incredible depths (up to 300 feet) while holding their breath (not assisted by any breathing apparatus).   They could dive to depths that scientists thought were not possible for human beings.  What James learned was that these divers considered breathing a conscious act (not unconscious as most of us breathe in our daily lives).  For the divers, breathing is a mechanism to achieve depth in diving and they intentionally “coax their lungs to work harder” so that they are able “to tap the pulmonary capabilities that the rest of us ignore”.   The divers suggested that anyone who is healthy can achieve what they achieve if they put in the time and energy “to master the art of breathing”.

In talking to a range of divers, James learned that there are multiple ways to breathe and that different ways to breathe “will affect our bodies differently”.   The divers explained that various breathing methods can enhance our brains, lengthen our life span or improve our physical and mental health. Other ways we breathe can have the opposite effects. James discovered that the secret to nourishing our brains and enhancing our health is to breathe with intention.  

James expanded his personal interview research with divers by exploring the published literature on breathing including books on regulating breathing that were 400 years old.  As James points out, many cultures over the centuries have focused on the art of breathing and its benefits, e.g. Buddhists use conscious breathing to reach higher levels of awareness and to achieve longevity.  The scientific literature reinforces the view that how we breathe can affect the systems of the body, e.g. our immune and digestive systems.   Some of the research, for example, showed that “asthma, anxiety and even hypertension, and psoriasis” could be reversed or reduced by changing the way we breathe.

James’ conclusion from all his research is that we can use conscious breathing “to hack into our nervous system and control our immune response and restore health”.  In his book , he sets about providing exercises to enable us to learn to breathe with intention so that we can reach our potential in terms of our mental and physical health.

Reflection

As I listened to the audiobook version of James’ book, Breath, I began to realise that intentional breathing as promoted by him could help me alleviate my MCAS difficulties – which are fundamentally a result of an over-reactive immune system.  Calming my immune system through the breathing exercises contained in each chapter of James’ book could enable me to expand my food options, which at the moment are severely limited because of my food sensitivity responses (such as rash, hives, headaches, and nausea).   

Many mindfulness teachers demonstrate that we can grow in mindfulness through conscious breathing which enables us to become grounded, calm the mind and body, expand our lung capacity and increase our focus and clarity of thinking.

__________________________________

Image by John Hain from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Autumn: A Time for Reflection and Shedding

The Health Story Collaborative sponsors a monthly, online Creative Meetup for people anywhere in the world who are experiencing chronic illness or disability.  The Meetup via Zoom is facilitated and is designed to enable participants to spend time writing while in a supportive community and, in the process, “to access and release our emotions, personal stories, and creative spirits”.  The Health Story Collaborative was created by Dr. Annie Brewster, author of The Healing Power of Storytelling: Using Personal Narrative to Navigate Illness, Trauma and Loss.

During our Creative Meetup session in September, Jennifer Harris (our facilitator) guided us in reflecting on Autumn and the significance of the season in terms of harvesting and shedding.  By way of stimulus, Jennifer quoted Mary Oliver’s Fall Song and the words of F. Scott Fitzgerald, “Life starts all over again when it gets crisp in the fall”.  This led to a session for our creative writing around the themes of “harvesting” and “shedding”.

Autumnal reflections

The four seasons of the year are often used to represent times of transition.  Vivaldi’s Four Seasons – “four violin concerti giving musical expression to a season of the year” – epitomises the seasonal transitions we can observe in temperature, the migration of birds, changes in landscapes and in human behaviour.  Autumn is associated with harvesting, the gathering of food and growing fur by animals to prepare for the impending winter and significant temperature/weather changes.  Many cultures celebrate the arrival of autumn with rites and rituals, especially the Autumnal Equinox (when day and night are equal in length) occurring at the start of Fall (Autumn). 

Autumnal rites and rituals often signify change and harvesting.  In Japan, the National Autumnal Equinox holiday is a time dedicated to paying respect to “deceased parents, grandparents, and other family members”.  In India, Autumn is a time of cleansing.   There are various rituals involving shedding to reflect the falling of leaves and regeneration during this season.

Reflections on harvesting

Harvesting is a time of reaping what you have sown.  Our reflections focused on the metaphorical meaning of harvesting in terms of abundance or achievements realised throughout the year.  We were asked to reflect on blessings we experienced, tending/nurturing received, projects accomplished, and personal growth.  Associated with these reflections was encouragement to express gratitude for what we had harvested in our personal life.

I noted the following in terms of my “harvest” during the 2024 year:

  • Joined the Creative Meetup group of the Health Story Collaborative and participated in the monthly sessions
  • Integrated the themes and discussion of the Meetups into my blog posts
  • Wrote poems that reflected the themes of the Meetups and related blog posts – giving creative expression to my feelings
  • Conceived and structured a book on management – for co-authoring with my colleague (co-facilitator of 80 longitudinal manager development programs, conducted over 16 years)
  • Organised a publisher for our book and signed a contract for assisted self-publishing
  • Completed the first draft of 20 chapters of our book on management
  • Wrote the following posts exploring ways to express gratitude and sharing my gratitude for what I have experienced and am experiencing:

In our discussion of harvesting we acknowledged that it was okay to “harvest less”, given that all participants in the Meetups are people suffering from chronic illness or disability who often experience setbacks in their recovery.

Reflections on Shedding

During autumn we can observe the trees and plants shedding their leaves and fertilising the soil with the decaying material – death generates new life.

There are many things that we can shed if they are holding us back from realising our potential – e.g. identity, old beliefs or expectations.  During the Creative Meetup I became aware of the unrealistic expectations I was placing on myself in terms of output for my co-authored book on management.  The expectations were not coming from my co-author who is currently consumed by her caring role for an ill relative.  The expectations are my own – setting a timeline and trying to determine a daily output. 

What I realised is that my personal output expectations needed to be shed in the light of the continuous disruption I am experiencing in relation to health-related issues and medical testing.  I have been losing momentum in my writing because of the continuous need to undertake important health-related tasks. I have to accept that this is my current situation and shed my expectations about high levels of output in my writing.  I have already changed my expectations of the frequency with which I produce a blog post.  However, to date, I have failed to adjust my expectations concerning writing my co-authored book.

My participation in the Creative Meetup with the focus on the autumnal shedding theme, highlighted the need for me to shed my current expectations about output for our book in order to create the freedom and space for other important things such as maintaining good health and my connections with family and friends. 

Reflection – a poem

The seasons can help us to grow in mindfulness by enhancing our observation of what is changing around us and cultivating gratitude for what we have experienced and achieved.  Autumn promotes reflection on what we have harvested and what we need to shed.   I wrote the following poem to reflect the process of shedding:

Autumnal Shedding

Autumn leaves falling softly
Silently seeking the soil.
Shaken from their anchor
Shrivelled, shrunken, distorted shapes.
Shedding, signalling rebirth
Death begets new life.
New growth, new possibilities
Transcending the past.

___________________________________________

Image by Sven Lachmann from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Deprivation Can Engender Gratitude

We take so much for granted – that we can breathe, walk, talk, see, and hear.  Deprivation makes us aware how privileged we are to have these functions and other functions such as choosing what we want to eat, achieving basic elimination functions with ease or being able to write or key (not encumbered by arthritic pain and distortion).  The recent Reversing Mast Cell Activation and Histamine Intolerance Summit 2.0 brought home the stark realities of how Mast Cell Activation Syndrome (MCAS) and/or histamine intolerance can impact the quality of our life.

As I listened to various expert speakers who themselves had experienced these conditions, I became more aware of what I do have in terms of quality of life and daily functions.   Some of the speakers had periods when they were super-sensitive to smells (such as the perfume of their daughter), unable to eat a wide range of foods because of allergies) or were sensitive to mold in their homes. Others spoke of the symptoms of histamine intolerance and the impact this had on their daily life and their capacity to choose what they would like to eat. 

Hope and social support

Parental and social support build hope and agency and enable people with chronic illness or disability to rise above their health challenges and achieve a successful recovery, often beyond peoples’ wildest dreams.  

Alexa Leary’s story – from tragedy to triumph

The recovery story of Alexa Leary, Australian Paralympic Swimmer destined for Paris 2024 Olympic Games, is a hugely inspiring account of how parental support and social support have helped her to achieve her goals.   Three years ago Alexa had a very serious accident on her bike as a world-class triathlete – causing traumatic brain injury and multiple other significant injuries.  She was not expected to live, and, even if she did survive, she was not expected to be able to talk or walk.  Alexa’s parents set aside their own lives and spent six months by her bedside in hospital to support her recovery. 

Alexa’s rehabilitation efforts are starkly illustrated in the video story, Triumph Over Tragedy.   Her incredible sporting accomplishments since the accident reinforces the value of the social support she received from organisations such as the global Pho3nix Foundation, dedicated to helping young people through sport and activity to develop a “sense of purpose, focus and possibility”.   Alexa was a participant in their Athlete Program designed to enable underfunded, aspiring Paralympics and Olympic athletes to compete in the Olympic Games.  When sharing her story of recovery through radio, television and social media, Alexa emphasised the critical role music played in her life and recovery.

Specialised Support through ADDA

Duane Gordon, President of Attention Deficit Disorder Association (ADDA), elaborates on the benefits of social support and shares multiple stories of how ADDA’s many support groups have facilitated the recovery of its members.   Tom, an accomplished engineer, experienced overwhelm in everyday tasks such as shopping but was able to gain support and ADHD-friendly strategies through ADDA’s Healthy Habits and ADHD Brain Group.  People with ADHD typically experience relationship difficulties but ADDA’s support group Loving and Living with ADHD: Partners Connecting helped Mark and his partner to rise above the challenges of this condition and strengthen their relationship.  ADDA’s support group, ADHD @ Work> Survive and Thrive Support Group,  helped James recover from the  loss of his job caused by ADHD challenges such as confusion, meeting deadlines and remembering tasks.   

Reflection

I was recently diagnosed with early stage, normal tension Glaucoma which has reduced my peripheral vision.  I am undertaking a series of tests to determine what the cause is and what kind of treatment is required.  The diagnosis has forced me to face the prospect of increased loss of sight, retraction of my driver’s licence and loss of the associated independence.  The social support provided by the Creative Meetups, sponsored by the Health Story Collaborative, is particularly critical at this point in time.

I wrote the following poem as a way of reflecting on my present circumstances with the possibility of increased loss of vision:

Losing Sight

Sight lighting my way,
expanding my horizons,
disclosing people and cultures,
revealing nature’s beauty,
enabling enjoyable activity.

Playing a game of tennis,
writing a book,
driving a car,
watching a video,
reading a book,
creating a poem,
developing a blog.

Encroaching blackness,
moving in from the edges.
Losing sight a real prospect.
Rescinding of independence.
Storing recollections for future reference.

A long-playing internal videotape,
of my best tennis shots,
played over the years.
Now categorised by tennis stroke –
forehand, backhand, volley, serve and smash.

A rich palette of memories of nature’s beauty –
blue and white, purple and brown,
red and orange, yellow and green,
grey and black.

Moving from sight to sound,
from reading to listening,
from writing to recording,
from driving to walking.

Feeling my way.
Testing to understand.
Exploring my options.
Appreciating what I do have – while I have it.

As we grow in mindfulness through reflection, meditation and time spent in nature, we can increase our appreciation and gratitude, fortify our hope and strengthen our resilience.

______________________________________

Image by Shan from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

On Being Deaf

Jessica Kirkness in her memoir, The House With All the Lights On, lets us see and hear what it is like to live with grandparents who are Deaf.   Her story covers her experience of living under the one roof with her parents and grandparents and coming to understand the “language of light”.  In the process, Jessica enlightens us about what it means to be deaf and how to interact with adults who are deaf.

Jessica’s grandfather spent a lot of time in and out of hospital.  She highlighted the problem of a lack of understanding on the part of hospital staff despite being told of her grandfather’s deafness. She maintained that his hospital care was often compromised because “staff had no clue how to interact with him”.   This was despite explicit instructions to get his attention before speaking to him, use pen and pad to enable him to understand their message and respond and ensure they actually looked at him when talking.

Jessica herself had studied Auslan (Australian Sign Language) to communicate with her grandparents, particularly with her Grandfather who refused to learn how to speak.  She even had to use sign language to communicate to him in hospital that he was dying after a cardiac arrest.  Jessica provides an enlightening  insight into sign language and its accompanying “visual and spatial tactics” generated by the hands and body movement.  She explains that movement serves to direct the viewer’s attention.

Being deaf

Jessica makes the point that, contrary to the general opinion in the community, her grandparents viewed their deafness as a “way of being in the world”, not a deficit (the focus on something missing).  They were able to recognise nuances in facial expressions and insisted that everyone faced them directly when they talked to them.  This enabled them to expertly read faces and attempt to lip read.

Jessica points out at one stage in her book about the lipreading  traps inherent in the English language.  She explains that this is the result of what is called “homophemes” – “words that sound different but involve identical movements of the speaker’s lips”.   The words themselves have different meanings, leading to confusion and stress for the lip reader.

Discrimination

Jessica quotes Rachel Kolb’s TED Talk, Navigating Deafness in a Hearing World, when she discusses the “primacy of voice” in our hearing world and the fact that “mouths are not a prerequisite for speech”.   Rachel makes the salient point that if you can’t hear, how can you learn to speak?  She was born profoundly deaf and has become a Rhodes Scholar, writer and disability advocate.

Rachel knew that her speech was defective and had to come to terms with her difference.  She spent 18 years in speech therapy to be able to talk, spending a lot of time learning speech through feeling the vibrations in the throat of her speech therapist.  Still people thought that her difference in speech was due to a foreign accent.

Jessica highlights the discrimination experienced by her grandparents in what is a “hearing world”.  People expect to be understood when they speak (“being heard”, “being listened to”).  The distortions in the speech of many deaf people lead to misunderstandings and assumptions about “lack of intelligence” or dumbness.  Jessica states that “deafness is the thing that we cannot look away from but cannot bear to face”.

The disruption and disorientation of deafness in a hearing world is not understood and sometimes feared.  People lack an appreciation that a deaf person can have a heightened sense of sight and an enhanced peripheral vision (so that actions “behind their back” can sometimes be detected and seen as derogatory).  People who are deaf often have a strong sense of touch and vibration.  As Jessica remarks, “sound is received in the body in all sorts of ways” and people who are deaf can “hear” music through vibrations in the floor.  I had personal experience of this in Melbourne when a group of us visited a school for deaf children and watched them dancing enthusiastically to music by sensing floor vibrations.

The language of light

Jessica’s Grandmother insisted that ‘the entire self is required for conversation”.  She could not tolerate people turning away from her when listening to what she had to say.  Jessica does point out, however, that the exception to this “whole-self rule” was when she was driving.  She notes too that “touch and sight were always interwoven” for her grandparents.  The world for them was “experienced through the interplay of the eyes and body”.

Consciousness of light was important because being in front of windows when communicating could create shadows that distort the images of hands and faces.  The world of deaf people is “driven by sight” where looking is equivalent to knowing.  Gerald Shea titled his book The Language of Light to express the role of light in sign language and the centrality of the visual for the deaf.  When the lights go out there is no dialogue.

Reflection

Jesscia’s book helped me to understand how easy it is to unconsciously exclude a person who is fully or partially deaf.  It reminded me that I have a friend in her eighties who is hard of hearing and I often overlook the need to face her when I talk.  She points out that being able to speak multiple languages, she has developed a propensity for lipreading – something I deprive her of when I am not facing her.  She often notes too that I “mumble”, failing to properly articulate my words which increases her sense of isolation.

By gaining an understanding of what it is like being deaf, we can learn to better include deaf people by more conscious speech and actions.  As we grow in mindfulness, we can increase our awareness of people’s differences, our own limitations and biases and be more compassionate in our interactions with others.  

Having been considerably moved by Jessica’s book, I wrote the following poem from the perspective of someone who is deaf:

Being Deaf

Being deaf is not a deficit
It’s a way of being in the world.
With refined senses of sight and touch
A reliance on light for meaning.

Face me so I can read your lips
Be in the light so I see the nuances in your facial expressions.
I am not dumb, I am deaf
I sense sound through vibrations.

While I can’t hear
I can see and feel things that you don’t notice.
My vision is not narrow
I can see my periphery clearly.

Don’t avoid me out of fear
Approach me out of curiosity.
Don’t judge me for my voice distortions
Listen intently for my message.

_________________________________________

Image by Ivana Tomášková from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

The Healing Power of Social Support

Social support can take the form of having friends, family or other people who can be a source of support in difficult times, such as chronic illness, death of a loved one or ongoing disability.  They can provide emotional, companionship or resource support and enhance our self-image while offering different perspectives on what we are encountering.

Social support can be provided through a formal social network where people with common interests come together to achieve specific outcomes such as fitness, charitable work or a hobby (as with the Australian Men’s Shed).  Alternatively, they can be informal where a number of people come together on a regular basis to share a coffee and have a chat.

The benefits of social support

Julia Baird, author of Bright Shining: How Grace Changes Everything, highlights the mental health benefits of social support and points to the research that shows the “poor mental health” that results from isolation and loneliness.  She refers to a homeless support group organised by St. Vincent de Paul Society that she joined and noted that there was “no pretence”, people “just being who they are”.  The healing power of this transparency and normality was evident in the homeless participants developing a positive self-image and contributing from their perspective and reality.

Social support is one of the three components for sustainable recovery from trauma, along with appreciating the complex nature of trauma and its impacts and adopting a holistic approach.  Research and clinical practice have demonstrated that social support builds resilience in trauma sufferers – they realise they are not alone, are encouraged to pursue their healing process, are reinforced in their healing efforts and learn vicariously from others who are experiencing difficult emotions and challenging situations.   The resultant sense of connectedness contributes to positive mental health.

The GROW organisation over many years has demonstrated that mutual social support has contributed to recovery from many forms of mental illness for hundreds of people (as documented in testimonial stories by participants).  The peer-to-peer support process facilitated by a nominated leader within the “lived experience” group, promotes personal development and ongoing recovery – a process that may take a number of years.

Reflection

Social support helps participants to develop a sense of being cared for as well as feeling that they can seek assistance from others in understanding and managing their challenging situation.  People gain a strong sense of belonging and connectedness through sharing their personal challenges, their success strategies and their progress towards healing.  They grow in mindfulness as they share their stories and write about their insights, gaining increased self-awareness and heightened self-esteem.

Creative Meetups, provided by the Health Story Collaborative, is a powerful social support system in that it combines the healing power of social support with the healing power of storytelling.  Participants feel fully supported by others engaged in compassionate listening or sharing their stories of challenging situations resulting from chronic illness, disability or their carer role.  The following poem expresses the sense of social support that can be gained through the Creative Meetups:

Social Support

When we share our stories of personal challenges, we realise that we are not alone.
We draw strength from others experiencing and managing more difficult circumstances.
We sense that we belong and feel connected to something outside of ourselves and our pain.
We can be ourselves, free of pretence, unencumbered by the need to be “better than”.
We build trust, savour our relationships and look forward to the next encounter.
There is something magical and disarming about the process that leads to changing perspectives and healing.

____________________________________________

Image by John Hain from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Paternal Forgiveness – A Reflective Poem

Since I started participating in the Creative Meetups organised by the Health Story Collaborative I have been writing poems. It’s as if there are feelings inside me that need to get out.  It reminds me of my PhD supervisor who told me at one stage of my extended procrastination, “You have a doctorate inside you, unless you let it out, it will undermine whatever you are doing.”  Once I wrote the PhD, it released a whole new world of opportunity.

Over time, our disposition to forgive and our capacity to offer forgiveness to others and ourself will develop almost invisibly if we grow in mindfulness through appropriate practices, such as forgiveness meditations.  The following poem grew out of my mindfulness practices and Meetup reflections:

Paternal Forgiveness

I didn’t forgive you while you were alive.
I didn’t even forgive myself.
Now I don’t know how to say sorry to someone who has passed.

You served in the army during World War 2 before I was born.
You spent four years in Changi and worked on the Burma Railway.
Shortly after your army discharge, you reenlisted.

When I was four, you left to work in Sydney and Woomera.
And served 18 months with the Occupation Forces in Japan.
There you were an “enemy stranger” in a foreign land.

In your absence, Mum was seriously ill following the birth of Michael.
You returned for two weeks to take Mum and my two brothers to Brisbane.
While baby Michael spent time with your sister before getting ill himself.

My younger sister and I were separated and left with different relatives in Melbourne.
Three month old Michael was eventually placed in a Founding Home.
When Mum returned a month later to collect the three of us, you told her that Michael had died while she was in transit.

I spent 18 months in an orphanage at the age of four while you were away.
Those were the months of my imprisonment and harsh treatment, shared by my younger sister.
Though we were separated from each other by the Institution.

Mum was only allowed by the Institution to visit us monthly.
It was only then that I saw my brothers and my sister, despite her being in the same Orphanage.
I felt isolated and alone.

When you returned from Japan, you became an aggressive alcoholic.
As a young child, I would freeze and dissociate when your rage flared.
As I got older, I would take flight by riding my push bike into the night as fast as I could.

I didn’t understand PTSD – no one did at that time.
I had not been where you had been or seen what you saw.
I didn’t see the triggered images that tormented you.

The war, the explosion, hospitalisation, capture and prison life.
You suffered the loss of mates killed in action or dying from cruelty or malnutrition while you were in Changi or working on the Burma railway.
You experienced unimaginable horrors.

I understand now that alcohol was your way to drown your pain and sorrows.
To block out the horrific images.
I forgive you and forgive myself for my harsh judgments – I didn’t understand.

It was easy to take sides when you were drunk and wasting our income.
While Mum slaved away at the local Woolies to keep us afloat.
And vented her anger and frustration at night.

As an adult, I had to take Mum away from your violence for her survival.
I was fearful at the time that you would try to find us.
As we took shelter in the small rooms at the back of a General Store.

The separation proved to be a godsend.
You both improved your lives.
With new partners eventually and a healthier way of life.

You even gave up alcohol and walked an hour every day.
On Sundays you took Mum to Church.
But we were not able to reconnect.

You had been a professional boxer, winning 20 of 22 fights.
You won trophies for tennis and athletics.
You became Player Coach of a Reserve Grade AFL team in Brisbane.

I am truly grateful that I inherited your genes.
The fighting spirit, resilience, determination and fast reflexes.
All of which have helped me in my tennis and my work and life.

I am sorry that I did not know what you were going through.
That I saw myself, instead of you, as the victim.
That I did not acknowledge your unbearable pain and unbelievable courage and tenacity.

____________________________________________

Image by Gerd Altmann from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Forgiveness: Forgiving Others and Ourselves

Forgiveness is hard to do, whether we are trying to forgive others or ourself.  It’s not a one-off event but is an evolving process which is why experts in the area suggest that we start off small – with a minor incident or hurt.  Forgiveness engages our feelings as well as our mind and body.  It is something that we have to work at consciously if we are to achieve our goal of “letting go”.

Forgiving others

Frank Ostaseski, author of The Five Invitations: Discover What Death Can Teach Us About Living Fully, suggests that one of the lessons from the dying is, “Don’t Wait to Forgive”.  In his extensive hospice experience he found that too many people were consumed by anger and rage on their death bed because they were unable to forgive others.  He argues that we should not wait until we are dying to forgive others and ourself.  Frank maintains that there is a natural resistance to forgiveness because we have a need to maintain our self-image (of goodness/perfection) and find it difficult to acknowledge that we are carrying challenging emotions such as anger, resentment and regret.   However, there is a real cost to ourselves and our relationships when we hold onto these emotions.

Danette May in her memoir, The Rise: An Unforgettable Journey of Self-Love, Forgiveness and Transformation, argues that we need to “cut the rope”, or as Frank puts it, “letting go”.  These difficult emotions can hold us back, causing self-absorption and “emotional stunting”.  There is a real challenge involved in acknowledging our part in an interaction (or multiple interactions) that was hurtful.  We need to be able to see things from the other person’s perspective and understand what was driving their behaviour.   Frank suggests that in the final analysis, we need to be able to honestly face up to “what we don’t like in ourselves”.

Fred Luskin contends that there are three elements of a grievance that contribute to our “maintaining the rage” and sustaining the hurt:

  1. Preoccupation with the ”offence” and exaggerating its negative impact on us
  2. Insisting that others are to blame for our negative/difficult feelings
  3. Developing and perpetuating a “grievance story”.

Fred argues that the real costs of not letting go are extensive.  Not only do we lose our personal power because we are “controlled by emotions”, but also we lose the ability to focus and achieve peace and wellness.  If we are consumed by anger, hatred, resentment or envy we can’t see past our hurt and we use all our energy in sharing our story and maintaining our sense of hurt.

Forgiving ourselves

The starting point for self-forgiveness is acknowledging our part in the hurtful interaction. It is incredibly difficult to forgive ourselves for the hurt we cause to others – it can be a lifelong process.   Part of the challenge is dealing with strong feelings of guilt and shame – feelings that go against the grain and undermine our sense of who we are.  We can blind ourselves to our negative impact on others because it is too hurtful to ourselves to own up to our part in hurtful interactions.

Jack Kornfield in the Power of Awareness Course argues that there are three myths that underpin our reluctance to engage in self-forgiveness:

  1. Self-forgiveness is a sign of weakness – the reality is that it takes a lot of strength and courage to face up to our hurtful words and actions
  2. We can forgive ourselves through a “quick fix”, e.g., a short meditation or exercise
  3. Forgiving ourselves is condoning our hurtful behaviour.

Elisha Goldstein cites Lily Tomlin when discussing forgiveness of others, Forgiveness means giving up all hope for a better past.  This insight can as readily apply to self-forgiveness as to forgiving others.  In self-forgiveness, we have to give up our “grievance story”, let go of wishing that we had behaved better and dismantle our defenses that prevent us from acknowledging our part in a hurtful interaction.

Mindfulness – a path to forgiveness

When we develop a mindful disposition by observing our inner landscape – our thoughts, emotions and bodily sensations – we can reduce our negative thoughts and increase our ability to forgive.  Mindfulness can develop our “disposition to forgive” – it can unearth grievance stories, clarify our part in any interaction, help us to take the other person’s perspective, increase our awareness of negative emotions and related bodily sensations and cultivate compassion.  Ultimately mindfulness can help us to develop self-awareness and emotional regulation so that we are not captive to our strong, challenging emotions and can live in the present rather than the hurtful past.

Forgiveness meditation

There are multiple forms of forgiveness meditation.  Loving kindness meditation, for example, has been shown to cultivate compassion towards others as well as self-compassion.   Sharon Salzberg, experienced mindfulness trainer, offers a three-part forgiveness meditation encompassing:

  1. Seeking forgiveness from someone you have hurt or harmed
  2. Offer forgiveness to those who have hurt or harmed you
  3. Self-forgiveness for the times you have harmed yourself through being judgmental.

Sharon includes an affirmation related to the last point, For all the ways I have hurt or harmed myself, knowingly or unknowingly, I offer forgiveness.  Other meditation trainers, such as Mitra Manesh, focus the self-forgiveness on the harm that we have caused to others, rather than to ourself.  Mitra, in her forgiveness meditation podcast, places a lot of emphasis on becoming aware of our bodily sensations as we deal with the “heavy energies” involved in holding onto grudges, anger or rage.  She also suggests a mantra for seeking forgiveness from others, For all the ways that I have caused you pain and suffering, I ask your forgiveness.

In reflecting on a number of forgiveness meditations, I identified four common principles underpinning the meditation process:

  1. Stay grounded, relaxed and focused
  2. Manage distractions through an anchor such as your breath or sounds
  3. Start small with something that is manageable and recent (limited history or replaying)
  4. Adopt a healing perspective – show loving kindness to others and yourself.

We can develop a mindful disposition in multiple ways , not just through meditation.  As we grow in mindfulness we can more readily adopt the perspective of others and understand their hurt.  We can own up to and name our own feelings, however negative or challenging. Over time, our disposition to forgive and our capacity to offer forgiveness to others and ourself will grow almost invisibly.

Reflection

Forgiving ourself can be a lifetime pursuit as I have found in trying to forgive myself for my part in my marriage breakup which occurred more than 40 years ago.  This is something I am working towards.  I find that forgiving others and forgiving ourself are interwoven activities – not discrete, independent steps.

I have also been reflecting on my long-standing anger towards my Father for his alcoholism and its major impact on my childhood and my family.  I recently started crafting a poem called Paternal Forgiveness which I will publish soon in this blog.  In the poem, I offer forgiveness to my father, seek to forgive myself for my harsh judgments and express my sorrow for the hurt that I had caused him when he was alive.  In writing the poem, I have drawn inspiration from Kim Rosen’s book, Saved by a Poem: The Transformative Power of Words.  In the book, Kim describes how poetry has helped people to deal with challenging situations, including the need to forgive others and themselves, and provides insight into the transformative elements of a poem.

____________________________________________

Image by Pete Linforth from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Creative Meetups: Action Learning for Health and Healing

Creative Meetups are provided by the Health Story Collaborative (HSC) to enable participants to reflect, connect and gain support from other people who are also living with chronic illness or disability or are carers.  The free Meetups, currently facilitated by Jennifer Harris on the Zoom platform, provide a stimulus for writing “to access and release emotions, personal stories and creative spirits”.  They form an avenue for healing through the mechanism of narrative therapy.

Alice Morgan, author of What Is Narrative Therapy?, maintains that narrative therapy can take many forms.  For instance, she suggests that it can involve “particular ways of talking with people about their lives and the problems they are experiencing”.  In essence, it involves people sharing their stories orally and/or in writing to gain insight into the meanings they ascribe to events, experiences and current situations (such as a physical or mental health condition).  Jodi Clarke points out that we carry multiple self-stories including those related to “self-esteem, abilities, relationships and work.”  She maintains that the process of “putting your narrative together” (however, this is created) enables an individual “to find their voice” as they explore  their life experiences and the meanings they attribute to them.

What is action learning?

Action learning can be described in simple terms as a cycle – planning, taking action and reflecting on the outcomes (intended and unintended).  It is used worldwide in public, private and not-for profit organisations and communities to create positive change and empower people to be the best they can be.  It can be undertaken by an individual by themselves (as I have done with my tennis playing over the years) or, more often, as part of a group or “action learning set”.

Creative Meetups and Action Learning

Creative Meetups and action learning have a core assumption in common.  Alice Morgan expressed this well when she maintained that narrative therapy assumes that “people have many skills, competencies, beliefs, values, commitments and abilities” to resolve their own challenging situations – an assumption that underpins the process of Creative Meetups.  This is also a fundamental assumption of action learning (AL).  

Reg Revans, the “Father of Action Learning”, charged with improving the mining industry in the UK, got mining managers together to solve their “here and now problems” in the mines.    He also got nurses in Intensive Care Units together to work on their challenging situations.  In an action learning context, participants are often described as “personal scientists”.  Some academics in universities, tied to the concept of universities as the sole repository of “expert knowledge”, had great difficulty accepting this core assumption and would actively oppose the uptake of action learning – it challenged their firmly held beliefs about knowledge creation and dissemination.

Creative Meetups and action learning have a number of other elements in common and, in the final analysis, both seek to create positive change in a situation (either individual or collective).  Some of the shared elements are as follows:

  1. Peer support – a fundamental principle is to treat each other as peers – with no acknowledged hierarchical difference.  There is a recognition that we are “all in the same boat” – each facing challenging situations.  Reg described this element as “comrades in adversity”; more recently, people have termed it “comrades in opportunity”.  In essence, it involves providing mutual support irrespective of our work role, status, social position or experience level.
  2. Collaboration – participants work together towards a common goal (e.g. health and healing or team improvement) and willingly share stores, resources, and insights for mutual benefit.  People are unstinting in their sharing – often recommending or loaning books, highlighting helpful websites or identifying relevant expert people.
  3. Don’t know mind – participants adopt a “don’t know mind”, not presuming to know and understand another person’s situation.  Reg suggests that if you think you understand something fully, you are not only going to get yourself into trouble but other people as well.   Adopting a don’t know mind – not jumping to conclusions or interrupting another’s story with your own (erroneously assuming they are same or similar) – enables a person to tell their story in an unfettered way, opening up the path to healing and recovery. 
  4. Honesty – the conscious exploration of what it means to be honest with oneself (owning up) and with others.  This opens the way for improvement and change.  The process of writing in Creative Meetups helps participants to identify false self-stories and unearth truer and richer stories that open up new avenues for their lives and their relationships. Action learning, too, enables the development of honesty.  Reg, for example, recounts an action learning program involving industrial executives in Belgium who, after 18 months of action learning, identified “What is an honest man and what do I need to become one?” (they were all men) as the most significant question they wished they had asked at the start of the program.  He maintained that the pathway to learning and change involves “admitting what you do not know”.  Reg also maintained that if you are going to do “something significant about something imperative”, you will come up against how you define yourself and your role.
  5. Reflection – reflection is assisted by writing and sharing.  The more we reflect, the more it becomes a way of life.  Frequent reflection-on-action can result in the ability to reflect-in-action.  Reg suggests that reflection is best done in a group because when we reflect alone we can tend to reinforce our existing assumptions and maintain our blindspots.  He argues for diversity in the reflective group – diversity of culture, nationality, profession and orientation (business/not-for-profit/community).  The Creative Meetups provide a rich diversity in terms of location (participants are from different countries and cultures) and health/caring situation.   Participants can gain insight gratuitously when others share their reflections from their different perspectives.
  6. Questioning – the willingness and ability to ask “fresh question” to open upinsight into a challenging situation.  Reg describes this as “questioning insight”.  This approach involves “supportive challenge” – challenging assumptions to enable a person to be the best they can be.  Alice Morgan highlights the role of questioning in narrative therapy because we can often develop negative self-stories.  Both action learning and Creative Meetups (narrative therapy) cultivate curiosity.
  7. Action taking – action learning involves learning through action undertaken with others where possible.  Creative Meetups promote writing as taking action to become open to  the healing power of storytelling.   The writing can take any form, e.g. prose, poetry, dot points.  Action is also reflected in the changes in behaviour undertaken by participants as a result of insights gained through writing and sharing.
  8. Facilitation – to design and manage the process of sharing.  In Creative Meetups, the facilitator provides stimulus material (e.g., a story, music or poem) to enable participants to write and share.  In action learning, the facilitator guides the process of planning, acting, reflecting and sharing.  In both situations, the facilitator is not a teacher.  Their role is to create an environment that promotes safety, trust, openness and sharing – their metaprocess goal is to develop a learning community.   

Creative Meetups, in promoting writing and reflection, are helping participants to grow in mindfulness which is described by MARC (UCLA) as “paying attention to present moment experiences with openness, curiosity and a willingness to be with what is”.   Both action learning and mindfulness contribute to positive mental health because they increase self-awareness and heighten a sense of agency (belief in the capacity to have some control over our inner and outer environment).  In cultivating mindfulness, both approaches help people to develop resilience, compassion and creativity. 

Reflection

I initially joined the Meetups with a view to writing my stories in prose but have found that the stimulus provided by the discussions and my recent reading of Kim Rosen’s book,  Saved by a Poem: The Transformative Power of Words, has led me to write several poems about my health story and the process of the Meetups.  Kim’s identification of the transformative elements of a poem continues to provide a pathway for my poetic expression.   I used her elements to analyse a poem I had written called For the Love of Tennis that enabled me to express my gratitude for being able to continue to play tennis despite a diagnosis of “multiple-level spinal degeneration”.

Following a recent Meetup, I unearthed my feelings about my chronic condition of food sensitivity/allergy resulting from Long Covid-induced Mast Cell Activation Syndrome.   I was surprised about the intensity of my feelings of frustration and alienation that I had not previously given voice to.   The poem, The Inflammatory Thread in My Life, provided a creative outlet and release for emotions I had kept “under wraps” and not expressed to anyone, including myself.

In a previous post, I shared a poem, Compassionate Listening, that I wrote following a Creative Meetup where the stimulus input included an excerpt from Joni Mitchell’s performance of Both Sides Now at the 2024 Grammy Awards.  To me the poem reflects the stance of participants of the Creative Meetup in being able to engage in deep listening, provide active support of the storyteller and reflect back not only the feelings expressed but also the intensity of those feelings. 

Compassionate listening strongly reflects the ethos of HSC where Healing Story Principals (such as Micheal Bischoff) sought to support people “to tell and listen to stories in ways that are healing, connected and empowering”.  The support and connection underpinning Creative Meetups and action learning promote health and healing.

Reflecting on the process of Creative Meetups and my long-standing experience with action learning in multiple contexts, I was inspired to write the following poem:

Where is “There”?

When you share your innermost secrets

and I say, “I’ve been there!”,

where is “there”?

It’s not where you have been

with your unique experience and perception.

I’m not inside you looking out,

I’m outside you looking in.

It’s like the glimpse of the Bay

that I get from my back deck.

It’s not the Bay!

It’s only a tiny window

on a complex ecosystem.

____________________________________________

Image by Xavier Lavin Pino from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

The Benefits of Positive Beliefs About Aging

In a previous post, I discussed the pervasive impact of negative beliefs about aging.  Highlighted in that discussion is the research evidence that negative age beliefs can impact every aspect of our aging process and our quality of life.  In that discussion, I drew on the work of Dr. Becca Levy, a pioneer in the area of successful aging and a world-renowned researcher and Yale Professor.  In her book, Breaking the Age Code: How Your Beliefs About Aging Will Determine How Long and Well You Live, she contends that it is critical that we address ageism in our society both as individuals and as a collective.  

Becca has a section in the book where she identifies the widespread influence of ageism and calls for “an end to structural ageism” in education, Governmental systems, medicine, mental health, advertising and media, science and the arts.  Ageism prevents people from effectively adapting to the aging process, from taking proactive action to maintain their quality of life, from achieving their potential both mentally and physically, and from realising the benefits that can accrue with age.

The benefits of positive beliefs about aging

In her book, Becca draws on her own research and that of researchers worldwide to demonstrate the numerous benefits of positive age beliefs and illustrates these benefits with stories of outstanding achievements by numerous people in multiple fields of endeavour.  Ageism is based on the assumption that all people who are old experience decline in mental and physical capacity at the same rate and that this decline is inevitable.  Becca’s research and stories of individual achievements demonstrate that each of us can arrest decline, or at least reduce the rate of decline, in our capabilities as we age.  Our beliefs about aging are a key determinant of the choices we make and how long and well we live.

In providing research-based claims about the benefits of positive age beliefs, Becca identifies a number of findings that challenge prevailing myths about the aging process.  Her research demonstrates the following benefits of this positivity:

  • Pattern recognition improves with age so much so that neuroscientist, Daniel Levitin, suggests that radiologists past 60-years old should be preferred to younger people for reading and interpreting X-Rays.  Daniel is the author of the book, Successful Aging: A Neuroscientist Explores the Power and Potential of Our Lives
  • Indigenous knowledge and memories held by elders in Indigenous communities that have been passed down in communities around the world to ensure the health and continuity of these communities such as in the Indigenous Australian culture.  This aspect of Indigenous aging was documented by anthropologist Margaret Mead in her book, Culture and Commitment: A Study of the Generation Gap.
  • Functional health is enhanced by positive aging beliefs.  Becca demonstrates that her research and that of her colleagues disprove the assumption of the “stereotype of debility and decline” as the natural outcome of the aging process.  She draws on the example of Sister Madonna Buder, who at the age of 52 undertook her first triathlon with borrowed running shoes – now, at over 90 years old, she continues to compete and has completed in excess of 350 triathlons.  Sister Madonna’s view of aging is that it represents “wisdom and grace” and “opportunity”.
  • Irreplaceable knowledge and understanding can accrue to anyone in a specialised field with experience developed as they age.  Becca illustrates this by discussing the experience of a 75-year-old paediatrician called Jonas who had retired from clinical practice “when he was most skilled”.   A young colleague asked him for his opinion on what was ailing a baby because he could not work it out.  Jonas figured it out “right away”.  His young colleague had an instant insight and asked, “Teach me Doc, how’d you do that?”  Jonas now teaches “medical diagnosis” at a university and participates in group diagnoses of patients in a teaching hospital.  Jonas’s career transition highlights the opportunity for older people to make a significant contribution to society even after retirement – all that it requires is a positive view of aging and a willingness to make adaptions in their career role. Jonas has also acquired new interests and hobbies such as cultivating rare orchards, French cooking, close-up photography and amateur aviation. 
  • Mental health growth – during a placement at a psychiatric hospital, Becca found (contrary to her expectations) that more younger, adult patients suffered from mental illness than older patients and that the latter “can be successfully treated”.  Her own research, confirmed by others around the world, also showed that age beliefs heavily impact the nature and quantity of stressors experienced psychosomatically.  She found that positive age beliefs helped to mitigate the impact of stressors (even in PTSD cases), while negative age beliefs acted as a “barrier to mental health”.
  • Longevity – in a significant research study, Becca found that participants who held positive age beliefs “lived an average of 7.5 years longer” than those who held negative age beliefs. ` Other research has demonstrated that non-biological factors such as age beliefs (and social/cultural environments) “determine as much as 75% of our longevity”.
  • Creativity – contrary to the prevailing stereotype, “creativity often continues and even increases in later life”.  Throughout the book, Becca mentions people who achieved “their most creative work at an older age”, e.g., Matisse, Hitchcock, Einstein, Picasso, Bernstein, Lerman and Dickens.  She also noted that 65 is the average age of a Nobel Prize winner.  Becca also reported the comment of actress Doris Roberts that actresses/actors “get better and better in their craft as they get older”.  Michael Caine CBE is just one example.  Starring in 160 films over 8 decades, he produced an outstanding performance at age 90 in his last film before retirement, The Great Escaper.

In the above discussion of the benefits of positive beliefs about aging, I have only “scratched the surface” of Becca’s research and findings.  However, it is very clear that positive age beliefs can impact us in multiple, beneficial ways – opening up opportunity and the realisation of our true potential.

Reflection

I can relate to Jonas’s experience (recounted above) when applied to a recreational context rather than a professional one.  I have continued to play social tennis in my late seventies and recently I played a half-volley, drop shot that left my much younger partner “gobsmacked”.  He responded, “Wow, how did you do that? Can you teach me to do that shot?”  At the time, I just shrugged but felt like saying:

I can’t teach you as I have never learnt to do that shot – it was purely instinctive, as I was caught “in no man’s land”.  When you have achieved in tennis what I have done – played 10,000 sets of tennis over more than 60 years, practised Tai Chi for years (for balance and coordination), and spent numerous hours doing tennis drills – you, too, will be able to do instinctive tennis shots that surprise others (as well as yourself).

Becca’s comment that creativity can increase in later years also resonates strongly with me.  I started this blog in 2016 (at the age of 70) and have now written more than 740 posts on this blog alone (my fifth blog).  I have reduced my output from three posts per week to one post to enable space and time to conduct manager development workshops (hybrid mode) and to co-author a book with my colleague of 16 years (as our legacy to younger managers and organisational consultants).  I am finding that connections and patterns come to me more rapidly and profusely  as I read and write and I now write an average of 1,000 words per post (compared to the 300 words per post, I started with in 2016).

In her book, Becca recounts the comments of 69 year old creative dancer Liz Lerman who observed that as we grow old we “don’t need  to make major life change to activate creativity’.  In her view, “expanding our connections to people” can create life changes for us and spark renewed creativity.  I have certainly found this with my active participation in the Creative Meetups hosted by the Health Story Collaborative.  

Additionally, I am finding (in terms of creativity) that, as I age and reflect, I am writing more poems that are longer and more complex in structure and scope.  In three days, inspired by Kim Rosen’s book Saved by a Poem,  I have written three poems – previously I wrote four short poems over five years.   One of my recent poems relates to the theme of this blog post and its predecessor about negative age beliefs:

Beliefs About Aging

To be positive, is to see opportunities

To be negative, is to deny potentiality.

Positive age beliefs open new horizons

Negative beliefs hold us captive and inert.

Positivity is openness to reality

Negativity is a closed mindset.

In being positive

Our full potential is possible.

With a grateful heart

I live my positive beliefs.

Reflecting and writing poetry enables us to grow in mindfulness. We come to realise that negative beliefs hold us back.  Through mindfulness practices, we can grow in self-awareness, concentration, creativity and resourcefulness – we can become increasingly aware of what is around us each day and what it is possible to achieve.

Photo Credit: The photo incorporated in this post was by Steve Buissinne, aged 74, from South Africa.  He joined Pixabay in 2014 and has had 556 photos accepted, 148 of which have been singled out as “Editor’s Choice” – a sign of excellence.  His photos have been viewed 32.83 million times, resulting in 19.39 million downloads. Steve’s comment on his Pixabay site demonstrates his mindful awareness of the beauty that surrounds us:

Everything has beauty – photography teaches you to see it

__________________________

Image by Steve Buissinne from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.