The Healing Power of Storytelling

Autumn: A Time for Reflection and Shedding

The Health Story Collaborative sponsors a monthly, online Creative Meetup for people anywhere in the world who are experiencing chronic illness or disability. The Meetup via Zoom is facilitated and is designed to enable participants to spend time writing while in a supportive community and, in the process, “to access and release our emotions, personal stories, and creative spirits”. The Health Story Collaborative was created by Dr. Annie Brewster, author of The Healing Power of Storytelling: Using Personal Narrative to Navigate Illness, Trauma and Loss.

During our Creative Meetup session in September, Jennifer Harris (our facilitator) guided us in reflecting on Autumn and the significance of the season in terms of harvesting and shedding. By way of stimulus, Jennifer quoted Mary Oliver’s Fall Song and the words of F. Scott Fitzgerald, “Life starts all over again when it gets crisp in the fall”. This led to a session for our creative writing around the themes of “harvesting” and “shedding”.

Autumnal reflections

The four seasons of the year are often used to represent times of transition. Vivaldi’s Four Seasons – “four violin concerti giving musical expression to a season of the year” – epitomises the seasonal transitions we can observe in temperature, the migration of birds, changes in landscapes and in human behaviour. Autumn is associated with harvesting, the gathering of food and growing fur by animals to prepare for the impending winter and significant temperature/weather changes. Many cultures celebrate the arrival of autumn with rites and rituals, especially the Autumnal Equinox (when day and night are equal in length) occurring at the start of Fall (Autumn).

Autumnal rites and rituals often signify change and harvesting. In Japan, the National Autumnal Equinox holiday is a time dedicated to paying respect to “deceased parents, grandparents, and other family members”. In India, Autumn is a time of cleansing. There are various rituals involving shedding to reflect the falling of leaves and regeneration during this season.

Reflections on harvesting

Harvesting is a time of reaping what you have sown. Our reflections focused on the metaphorical meaning of harvesting in terms of abundance or achievements realised throughout the year. We were asked to reflect on blessings we experienced, tending/nurturing received, projects accomplished, and personal growth. Associated with these reflections was encouragement to express gratitude for what we had harvested in our personal life.

I noted the following in terms of my “harvest” during the 2024 year:

Joined the Creative Meetup group of the Health Story Collaborative and participated in the monthly sessions
Integrated the themes and discussion of the Meetups into my blog posts
Wrote poems that reflected the themes of the Meetups and related blog posts – giving creative expression to my feelings
Conceived and structured a book on management – for co-authoring with my colleague (co-facilitator of 80 longitudinal manager development programs, conducted over 16 years)
Organised a publisher for our book and signed a contract for assisted self-publishing
Completed the first draft of 20 chapters of our book on management
Wrote the following posts exploring ways to express gratitude and sharing my gratitude for what I have experienced and am experiencing:

In our discussion of harvesting we acknowledged that it was okay to “harvest less”, given that all participants in the Meetups are people suffering from chronic illness or disability who often experience setbacks in their recovery.

Reflections on Shedding

During autumn we can observe the trees and plants shedding their leaves and fertilising the soil with the decaying material – death generates new life.

There are many things that we can shed if they are holding us back from realising our potential – e.g. identity, old beliefs or expectations. During the Creative Meetup I became aware of the unrealistic expectations I was placing on myself in terms of output for my co-authored book on management. The expectations were not coming from my co-author who is currently consumed by her caring role for an ill relative. The expectations are my own – setting a timeline and trying to determine a daily output.

What I realised is that my personal output expectations needed to be shed in the light of the continuous disruption I am experiencing in relation to health-related issues and medical testing. I have been losing momentum in my writing because of the continuous need to undertake important health-related tasks. I have to accept that this is my current situation and shed my expectations about high levels of output in my writing. I have already changed my expectations of the frequency with which I produce a blog post. However, to date, I have failed to adjust my expectations concerning writing my co-authored book.

My participation in the Creative Meetup with the focus on the autumnal shedding theme, highlighted the need for me to shed my current expectations about output for our book in order to create the freedom and space for other important things such as maintaining good health and my connections with family and friends.

Reflection – a poem

The seasons can help us to grow in mindfulness by enhancing our observation of what is changing around us and cultivating gratitude for what we have experienced and achieved. Autumn promotes reflection on what we have harvested and what we need to shed. I wrote the following poem to reflect the process of shedding:

Autumnal Shedding

Autumn leaves falling softly
Silently seeking the soil.
Shaken from their anchor
Shrivelled, shrunken, distorted shapes.
Shedding, signalling rebirth
Death begets new life.
New growth, new possibilities
Transcending the past.

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Image by Sven Lachmann from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Fearlessly Sharing Your Story: Jelena Dokic’s Exhortation

Jelena Dokic shared her story of paternal abuse in the second of her memoirs, Fearless: Finding the Power to Thrive. Her no holds barred account is disarmingly honest but replete with positivity and gratitude.

Jelena indicated that she first gave a glimpse of her family situation in an interview with journalist Jessica Halloran, who subsequently co-authored her two memoirs. The first memoir, Unbreakable, told of her challenges as a refugee from Yugoslavia, her life of poverty and the brutality of her father, Damir Dokic.

The first physical abuse she suffered at the hands of her father was when she was six years old. He slapped her hard in the face three times because she had laughed and joked with her tennis coach. In Damir’s view, tennis was not for enjoyment but sheer hard work that had to be taken seriously. Beyond that first abuse, she suffered continuous beatings as a teenager, especially when she lost a game. Jelena often played with bruises all over her body. On one occasion he beat her unconscious with a shoe.

Jelena highlighted in her memoirs the fear and physical suffering she experienced at the hands of her father. She explained in detail how his behaviour diminished her self-esteem and intensified her sense of shame. Despite her trauma from this physical abuse, Jelena became one of the greatest Australian female tennis players, reaching the rank of number 4 in the world in singles. She was noted for her nerve and fearlessness on court and her ability to fight back when behind in a match – a resilience born of combating her trauma.

The power of storytelling

Jelena discussed her personal battle with shame when trying to share her story. From the interview with Jessica to her Fearless memoir, she had progressively revealed more about her life and personal challenges. In the process she has become a very strong advocate for the healing power of storytelling. Jelena indicated that not only was she able to heal from her trauma through storytelling but she found that other people drew inspiration and healing from her personal battles and her capacity to rise above them.

Jelena used her memoirs to tell her story with increasing levels of disclosure. She found too that her book tours and public presentations enabled her to share more about her life and how she dealt with her trauma, which often left her feeling helpless, anxious, depressed and exhausted.

Jelena has continued to do public presentations to share her story and the positive value of her storytelling has been reinforced by the number of people who have expressed gratitude for her talks. She strongly advocates for people to share their stories of sexual abuse and domestic violence.

In Fearless, Jelena has a section on the “the power of story” and reinforces the positive changes that can accrue from narrative therapy (offered by her psychologist). She states that through storytelling she moved from a victim mindset to “survivor”. Her story suggests that she became a “victor”. Jelena continuously encourages people experiencing trauma to speak up:

I have said it many times in this book speaking up creates change, saves lives.

The healing effects of social support

In a section on “having the right people around you”, Jelena highlighted the importance of supportive people (social support) for the process of healing from trauma. Her earliest positive experience was being coached by Australian tennis great, Lesley Bowrey, who she described as a “no-nonsense, fair, tough coach with the warmest heart”. Jelena appreciated Lesley’s strong work ethic, a shared trait that was a source of mutual admiration.

Lesley showed kindness and an unshakeable belief in Jelena which became a profound source of happiness for her. While Lesley was her coach, she won the Junior US Open, reached World Number 1 Junior and won the Hoffman Cup with Mark Philippoussis

Jelena waxes lyrical about the unconditional support provided by Tod Woodbridge in her transition from tennis retirement to commentator. He had encouraged her to write the Unbreakable memoir and mentored her “tirelessly” about the process of commentating tennis matches.

Jelena also mentioned the very positive influence of her psychologist who helped her explore the impact of her trauma on her thoughts and behaviour and to challenge false beliefs about herself. Her psychologist supported her to progressively make changes in her life to initiate and sustain the healing process.

Reflection

The physical abuse Jelena experienced was demoralising and exhausting. Jelena showed tremendous courage to share her story, seek social support, work with a therapist and eventually overcome her fears and loss of self-esteem. She is now very much a role model for dealing with trauma and an encouragement to many people worldwide.

As we grow in mindfulness through our own efforts to increase our awareness of the impact of significant events in our life, we can develop deeper personal insight and the courage to take the actions necessary to achieve personal healing.

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Image by brian teh from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Healing Through Creative Storytelling

I have previously written about the Health Story Collaborative created by Dr. Annie Brewster M.D. The Collaborative provides an online platform for individuals to share their story (through any medium) about their health challenges and their road to recovery. The stories provide healing for the storyteller and ongoing inspiration for others to overcome the challenge of ill-health in whatever form it takes. Annie Brewster is the author of The Healing Power of Storytelling: Using Personal Narrative to Navigate Illness, Trauma and Loss.

Creative Meetups

One of the programs offered by the Health Story Collaborative is Creative Meetups that are designed to cultivate “writing for expression and connection”. They are based on the firm belief that artistic expression of a person’s story can help them “find hope and healing”. These free workshops are offered every second Wednesday via the Zoom platform – they only require prior registration through the website.

The Creative Meetups are currently facilitated by Annie Robinson, who has completed a Masters in Narrative Medicine and is a qualified meditation, mindfulness and yoga teacher. In her private practice, Annie helps health professionals, including nurses and doctors, by training them in wellbeing, reflection and resilience. She also assists individuals in various life transitions and is co-curator of the podcast for health professionals, Thriving in Scrubs.

My experience of a Creative Meetup

I recently participated in my first Creative Meetup – initially with some uncertainty, not knowing what would be involved and how vulnerable I would feel. The Meetup facilitated by Annie had about 12 participants, both male and female. The process usually involves Annie providing some form of stimulus for reflection followed by a period for individual creative writing that can take any form a participant desires, e.g., a poem, picture, narrative or dot points.

Annie explained at the outset that she was departing from her usual practice of having two participants read out a piece of writing, e.g. a poem, that can act as a stimulus to reflection. On this occasion, she shared an abstract painting that featured a number of colours with a pattern that suggested “reflection” to me.

Our Meetup process involved an initial two minute writing task where we reflected on what the painting meant for us as individuals, there being “no right answer”. This was followed by a brief sharing by some people who wished to share with the larger group. We were then assigned the task of taking a sentence from our earlier reflection and expanding on this over a period of 20 minutes of individual creative writing (with no restrictions on form or length).

When we had completed our creative writing, Annie placed us into Zoom “rooms” of three or four people to share at another level. Participants were encouraged to share only what they felt comfortable sharing with no pressure for full disclosure. The small group environment enabled rapid rapport building and a degree of openness that was disarmingly honest (destroying any erroneous first impressions that may have been formed).

As one participant commented in the larger group, there was a common bond amongst participants in that we were all dealing with a health challenge (however varied in nature and complexity) and were seeking healing through writing and sharing. Reg Revans, the Father of Action Learning, would describe us as “Comrades in Adversity” (or as others put it, “Comrades in Opportunity”).

The environment created through the Creative Writeup process was one of trust that facilitated openness and vulnerability by participants. There was a shared sense of journeying towards healing with the aid of the understanding, empathy and mutual support offered by fellow participants. Annie’s low-key facilitation style and active listening modelled appropriate behaviour for participants.

I was blown away in the small group by the creative writing that was shared. In one case, this involved a poem that expressed the meaning for the participant of each of the colours in the painting – an insightful and revealing piece of writing that we asked the storyteller to read a second time because it was so rich. Another involved an allegorical story that was emotive and self-disclosing and left us all feeling loving kindness towards the person who shared so vulnerably.

One of the features of the small group was the way that one person’s shared reflection stimulated reflection by another person and achieved a deeper level of self-disclosure. Participants could relate to some aspect of a shared situation, response or recovery approach. We were each able to learn from the storytelling.

Reflection

During the small group sharing, I was able to share with others how expressing gratitude for what I am able to have and do was a recovery mechanism for me following my diagnosis of multi-level spinal degeneration. It also empowered me to seek alternative medical assistance in the form of an exercise physiologist who helped me return to tennis when my doctors told me that I would never play again.

The painting that Annie shared reminded me of the art of reflection – having spent most of my working life in studying, teaching and practicing action learning. Reflection underpinned the way I played tennis, conducted workshops, managed people and interacted with others.

More recently, through reflection, I came to understand that one of my personal barriers to active listening was my need to come from an “I know” perspective rather than what Frank Ostaseski recommends as a “don’t know mind”. The “don’t know” approach is foundational to action learning, so my listening behaviour was not congruent with what I espoused about action learning. Reg Revans reminds us that, ”If you think you fully understand something, you are not only going to get yourself in trouble but others as well.” Reg encourages us to “ask fresh questions” and to develop “questioning insight”. He frequently quoted Isaac Newton’s comment about studying some interesting shells and pebbles in his lifetime “whilst the great ocean of truth lay all undiscovered before me”.

At the time, I attributed this personal barrier to active listening to my many years as an academic. I realised, too, that the “I know” perspective accounts in part why I had so much resistance when trying to introduce action learning into my university. It also explains why in the first year of an action learning program that I was facilitating in another university, the hierarchy insisted on removing “become a learning organisation” from the vision statement for the program (they re-inserted it after their experience of the first year of the program and its outcomes).

As I grow in mindfulness through reflection and activities such as the Creative Meetups, I am better able to develop resilience to deal with life’s challenges, gain increased self-awareness and cultivate deep listening to enrich my relationships.

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Image by Peter H from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Dealing with Guilt and Shame on the Death of a Son or Daughter

In the previous post, I wrote about how storytelling helped Tiffany Barton deal with grief and loss on the suicide death of her son, Cosmo. She talked about her letter and poem, Young Death, that Nick Cave published in his book, Faith, Hope & Carnage. She expressed gratitude that Nick’s wife, Susie Cave (née Bick), allowed him to share her “guilt and shame” in his book because it helped Tiffany “so much to know I wasn’t alone”. Tiffany also stated that in sharing her own story publicly in the Weekend Magazine, she felt “some relief from pain” and “some forgiveness”. Her experience and that of Nick reinforces the wisdom of Annie Brewster in her book, The Healing Power of Storytelling: Using Personal Narrative to Navigate Illness, Trauma and Loss.

Forgiveness: Release from guilt and shame

The latter part of Nick’s book is devoted to forgiveness and the idea of making amends. He indicated that he and Susie were “looking the wrong way at the wrong time”. He suggested that everything they do now is designed “to seek forgiveness by making amends”. Tiffany related to that statement and indicated that her public storytelling was designed to help anyone else who is also wrestling “with guilt, shame and self-loathing” as a result of the suicide death of their son or daughter. Nick devotes a whole chapter (chapter 15) of his book to the theme of “Absolution”.

Nick found recording the Skelton Tree album in Brighton particularly challenging as he had to drive each day past the cliffs were his son Arthur died and past the Church where he was buried. Even moving to Paris to finish the recordings did not assuage his sadness or sense of guilt. What did effectively provide some form of “exoneration” and inner peace was the Andrew Dominik’s documentary, One More Time with Feeling. The documentary captures the final recording sessions of Skeleton Tree by Nick and his band, The Bad Seeds, following the death of his son. It also incorporates Nick’s reflections and those of his wife, Susie. Nick explains that the documentary seemed like it did something for Arthur – “bring him back into the world”. It served as a form of release for his own sense of helplessness and guilt and enabled him to experience “a kind of peace, an internal silence and calmness”, even when driving past the cliffs where Arthur died.

Finding forgiveness in working with clay

Nick found his way to forgiveness not only through his music but also through working with clay and developing figurines “in the Staffordshire style”. He became obsessed with this project pursuing it intensely because he was totally absorbed by it and experienced flow through the deep concentration involved. Nick found the process therapeutic, permeating his dreams and consuming much of his time when he was awake. He indicated that part of the attraction of working with clay was that the process was “something very direct and elemental”. Nick found that the medium “felt liberating, also very healing”.

Sean O’Hagan, Nick’s interviewer for the Faith, Hope & Carnage book, was intrigued by Nick’s compulsion with the clay figurines and asked about the portrayal of the epic journey involved, a seeming allegory. Nick responded that the figurines were not intended to be directly about Arthur but, in the final analysis, had something to do with his death – there is a gesture of atonement involved in the final sculpture that is titled “Devil’s Forgiveness”. When asked directly whether the figurine epic is “an allegory about forgiveness”, Nick found it difficult to articulate exactly what the figurines meant. However, despite himself, the figurines, and the story they portrayed, spoke to him “directly and explicitly”. He found that the “plain and explicit nature” of the figurines related to him “the larger and unambiguous meaning of his predicament”.

Nick explained that the theme running through each of the sculptures, and the underlining story, is “the need to be forgiven” which he maintains is at the centre of his life and that of Susie and, as such, acts as a “motivating force”. Nick stated that the Faith, Hope & Carnage book, his live performances, albums (Skeleton Tree, Carnage and Ghosteen), The Red Hand Files, and his In Conversations events, are all asking for absolution – “to be released from my own personal culpability”. He also maintained that all the work that they do – he (with his creative works) and Susie (with her “ghost-like dresses”) are asking for forgiveness and saying that they are sorry for what happened to Arthur. In his own words, Nick asserts, “There is not a song or word or a stitch that is not asking for forgiveness”.

Reflection

It is not possible to fathom the depth of grief and feelings of guilt and shame experienced by a parent on the death of a son or daughter. Grief expresses itself in unique ways – for some it is totally consuming and takes over their life. For others, it seems to be a passing feeling that becomes buried before it can become an all-consuming pain. Some retreat into isolation , others “party on” while attempting to “drown their sorrows”.

The road to self-forgiveness and absolution is a long and winding road, and often a tortuous path. It is highly individualised as reflected in Nick’s figurine epic and Susie’s dress designs. Each person has to find their own way through the darkness of grief, guilt and shame. For Nick and Susie, the road to release was paved with creativity – but never dissolving the underlying sadness.

Nick mentioned that meditating enabled him to access his better, sympathetic self. In contrast, when he stopped meditating, his life tended “to slip back into chaos, low level depression and anger”. As we grow in mindfulness through meditation, we can progressively deal with our challenging feelings of grief, guilt and shame and find a way to support others through empathy and compassionate action, whatever unique form that takes. Through his pain, Nick reminds us to savour the “the precious nature of things” and the world at large.

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Image by Sergio Cerrato – Italia from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Managing Life Transitions through Storytelling

Many writers and podcasters highlight the challenges involved in life transitions. Some focus on specific transitions such as aging, menopause for women, or transitions precipitated by organisational change. Their discussions frequently highlight the need to reframe specific transitions such as aging or job loss as periods of growth and creativity rather than decline – this means changing our mindset and our narrative about these transitional periods. As William and Susan Bridges point out in their book, Managing Transitions: Making the Most of Change, many people become stuck in the “endings” phase of transitions because they focus solely on what is being lost, rather than appreciating the potentiality of “new beginnings”.

Bruce Feiler, in his TED Talk©, The Secret to Mastering Life’s Transitions, contends that one of the core problems people have in managing life’s transitions is that they have a linear mindset, a perception that life is always “onwards and upwards” with a predictable forward-moving pattern – schooling, job, home purchase, marriage, and children, and career promotion. We are thus ill-prepared for “setbacks” or deviations that occur through job loss, ill-health, loss of a partner, or physical disability. Bruce, who was diagnosed with cancer when he was a new father of twin girls, suggests that when we are “side-tracked” or things go “offtrack”, we can feel as though we are “living life out of order” – living a life that is totally unexpected. In his TED Talk© and his book, Life is in the Transitions: Mastering Change at any Age, Bruce maintains that life is a series of “disruptors” and some of these are “lifequakes” that involve massive change and demand managing the transition to a new state.

The role of storytelling in managing life transitions

Bruce, along with many other writers, podcasters and public speakers, offers tips for managing life transitions that we encounter. He maintains that a key to transition is to explore our “life story” – this is the narrative we create about our own life. The solution to mastering transitions is often in our own narrative – false assumptions, self-deceits, delusions or denials (e.g. “it can’t happen to me”!). Bruce maintains that a life transition, especially a “lifequake”, is an invitation to “revisit, rewrite and retell our life story”. He offers a catalyst for this process through his Life Story Online Interview which provides an interactive form for reflection on, and recording of, our personal narrative. Bruce’s insights on life transitions have been gained through his own life experiences as well as through over 1,000 interviews with people about their life story.

Jon DeWaal, in his TED Talk©, Two Factors that Make or Break Every Messy Life Transition, stresses the need, when exploring our life story and the associated narrative, to adopt two practices to ensure that the exploration leads to a constructive outcome. Firstly, he contends that we need to be honest with ourselves – to own up to our own part in contributing to our side track or offtrack experience. This requires deep reflection, total honesty, self-awareness and avoidance of the tendency to blame others rather than look at ourselves. Associated with this is what he calls “community support” – not the gentle, warm kind that confirms our invalid self-assessment, but the kind that offers “supportive challenge” which makes us confront our weaknesses, unfounded assumptions or persistent mistakes/oversight. Jon is a learning facilitator and life transition guide at Liminal Space – a team of transition experts who can help us grow and thrive through difficult transitions. Jon is also the creator of the podcast, Life Through Transitions, drawing ideas and inspiration from interviewees who have been able to make life’s “formative transitions” into opportunities for personal transformation.

Dr. Annie Brewster, MD, and journalist Rachel Zimmerman, in their book, The Healing Power of Storytelling, focus on the personal narrative as a way to “navigate illness, trauma and loss”. Annie shares her own life experiences and transitions and, together with her co-author, offers specific guidance in the process of using storytelling for healing. She is also the founder of the Healing Story Collaborative which provides shared stories and resources through a collaborative blog – processes that are open to anyone to engage with personal storytelling for the purpose of healing.

Reflection

We are continuously controlled by the narrative in our head and this is particularly true in times of significant life transitions. We can become embroiled in negative self-stories, get stuck in the endings phase or be blind to the creative options open to us in a life transition. We need to break this destructive cycle especially when confronted with what Bruce describes as a “lifequake”.

Using reflective storytelling, meditation and other related practices enables us to grow in mindfulness and can help us to increase our self-awareness and insight, to have the courage to move beyond our “comfort zone” and to creatively explore options to manage difficult life transitions and move forward to a new personal identity and reality.

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Image by Cristhian Adame from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group, and the resources to support the blog.

Self-Care When Exploring Long Covid Symptoms

I mentioned in a previous post that I had thought initially that the peripheral neuropathy that I was experiencing was a symptom of Long Covid. However, as explained in a previous post, I had discovered on investigation with my doctor that there was a structural explanation for these symptoms. In that post, I encouraged persistent exploration of symptoms with our medical practitioner because our assumptions about symptoms may be misleading.

Self-Care in the face of disinterest or denial

One of the problems in discussing Long Covid with doctors is that there is no general agreement amongst medical practitioners as to what constitutes this condition (or even that the condition exists at all) yet doctors readily accept “fibromyalgia” as a condition. Fibromyalgia, like Long Covid, involves a set of symptoms such as muscular pain, cognitive disturbance and fatigue and, in common with Long Covid, symptoms vary with each individual. In one sense, today’s patient experience with Long Covid diagnosis and treatment is similar to the experience of Lyme Disease sufferers who are faced with ignorance or denial. This experience is eloquently described in case studies by Allie Cashel in her book, Suffering in Silence: Chronic Lyme Disease in the Age of Denial.

In her book, Allie also recounts her own experience with Lyme Disease and other chronic conditions. She strongly encourages patients experiencing any form of chronic illness that is typically denied by the medical profession to persist in sharing our symptoms with our doctor until we achieve a satisfactory outcome in terms of adequate diagnosis and effective treatment options. Interestingly, she also shares her story and advice in one of the “stories shared for health” on the Healing Story Collaborative platform. Her storytelling, which includes practical hints on how to approach your doctor with difficult symptoms, is presented in her recorded conversation with Val Walker, Being Fair Reporters: Self-advocating about Chronic Illnesses with Doctors. Sometimes, self-care may require finding a medical practitioner who really listens and demonstrates that they do the necessary medical research and are across chronic health conditions such as Long Covid.

Reflection – my story to date

Previously, I discussed healing through storytelling as a way forward to recovery from chronic illness or disability. This is in addition to qualified medical treatment that may take the form of medication and/or physical intervention. As identified earlier, the problem with chronic illnesses such as Long Covid is that they contribute to a sense of isolation and can lead to depression, anxiety and other mental health issues. Suzy Bolt’s Programme, Rest, Relax, Recover, addresses the emotional and psychological aspects by providing social support and healing modalities such as mindfulness practices, breathing techniques and group discussion. In line with the healing power of storytelling, I am continuing my own story of exploration of my chronic symptoms such as peripheral neuropathy.

When searching for a medical practitioner who could help me diagnose my symptoms and suggest appropriate treatment, I came across a local doctor, David Eaton, who has dual qualifications as a General Practitioner and as an Occupational and Environmental Physician. The breadth of his qualifications was a clue for me in terms of his willingness to explore complex, chronic symptoms and openness to the potential influence of Long Covid. I have since discovered that he has several special interests that are relevant to my situation:

Musculoskeletal medicine, physical impacts of ageing and sports injuries
Skin conditions
Diagnosing and managing chronic and complex medical conditions.

David initiated a comprehensive investigation of my symptoms including blood tests. Through David (via X-Ray and CT scan) I acknowledged a structural explanation of my ongoing experience of peripheral neuropathy in the form of spinal degeneration (including spinal stenosis and arthritis).

The diagnosis of my symptoms is ongoing. Compounding my current health situation is a group of symptoms that I have assumed are a consequence of Long Covid. Gez Medinger in his Long Covid Handbook identifies three sets of Long Covid symptoms experienced by people categorised as experiencing mild disease but not hospitalised when suffering Covid initially (my experience as well). The three sets of Long Covid symptoms that Gez identifies can be categorised loosely as: (1) increased intolerance to foods, (2) cognitive and physical exhaustion (including brain fog), and (3) increased heart rate (palpitations) and associated health issues. I still experience unexplained symptoms of post-exertion malaise (Category 2) and increased intolerance of certain foods (Category 1 – what was previously experienced as “food sensitivity” is now being experienced as “food allergy” with the attendant aggravation of symptoms (changing from mild to severe).

David was aware that research has supported the observation that Long Covid can increase intolerance to specific foods. He has also demonstrated that he is continuing to research the emerging literature on Long Covid – a criterion that is very welcome when seeking medical assistance with chronic and complex health conditions in our pandemic era. David also reinforced the three elements of the health triangle – physical, psychological and social – and their interdependence.

Unfortunately, many patients experience an unwillingness of their doctor to acknowledge the existence of Long Covid or to make the effort to explore the growing research and anecdotal evidence of its existence and pervasive health impacts.

As I grow in mindfulness through mindfulness practices and reflection, I can continue to challenge my assumptions, gain increased insight into my habitual behaviours, adopt appropriate self-care techniques and move to develop a new personal narrative that reflects my current situation of chronic disability. In the process, I hope to gain the acceptance that Alexia Chellun describes in her song Allowing:

I’m allowing everything to just be
As it comes to me

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Image by iqbal nuril anwar from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group, and the resources to support the blog.

Healing through Storytelling

A challenging medical diagnosis can turn your life upside down, make you question your self-image and increase feelings of isolation, particularly if it prevents you from actively engaging with your social or sporting network. Dr. Annie Brewster M.D., who experienced these challenges when she was diagnosed with multiple sclerosis in 2001, found that medical practitioners lacked understanding and compassion for her situation – they were ill-equipped to help her deal with the internal fallout that accompanies a chronic illness diagnosis. Annie is now Assistant Professor of Medicine at Harvard Medical School while actively engaged as a practicing physician in Boston at the Massachusetts General Hospital.

Annie, who had been quite athletic, found that her sense of identity was challenged by her diagnosis. She discovered that by storytelling – writing her own story addressing her identity confusion, accompanying anxiety and resultant trauma – she was able to move towards recovery reframing her identity, restoring her own power in the healing process and building resilience to handle uncertainty and fear. She recounts her story, and offers storytelling techniques with co-storyteller and journalist Rachel Zimmerman, in their book, The Healing Power of Storytelling: Using Personal Narrative to Navigate Illness, Trauma and Loss.

Healing through storytelling

Through her book, Annie helps chronic sufferers to process their challenging emotions, create their own healing story, reframe their identity narrative and reconnect with people close to them as well as the wider supportive community. She encourages us to utilise whatever medium we are comfortable with – whether art, music audio, video or writing – to share our healing journey and accompanying story. The techniques she and Rachel offer can help us in that process.

Inspired by her own positive experience of healing through storytelling, Annie created the Health Story Collaborative which acts as a platform for people to share their stories of health challenges and recovery. The Collaborative offers a medium for overcoming the isolation of chronic illness and is “patient-centered and research based”, drawing on the research providing evidence of the therapeutic power of storytelling. The Health Story Collaborative enables people to share their stories of illness and healing and offers multiple modes for doing so. There are videotaped Healing Stories Sessions (accessible to anyone), as well as Audio Stories (available for public consumption). You are encouraged to share your story of illness and recovery and the options also include music, art, poems, written stories or alternative media. Some of the more helpful stories are featured on the collaborative blog.

Storytelling about my own diagnosis of a chronic disability

I have recently started writing my memoir, inspired by Jeff Brown’s online course, Writing Your Way Home. One of my motivations has been the opportunity provided by storytelling to work through my personal experience of trauma. Almost simultaneously, I have received a diagnosis of spinal degeneration resulting from “wear and tear” over my 76+ years. A contributing factor was a serious car accident when I was 12 years old, with the undiagnosed injury aggravated by playing competitive and social tennis over 65 years.

I am now confronted by the challenge of rehabilitation and the loss of my capacity to play tennis, cutting me off from the game I love and my social tennis network (one of my few social activities). I can relate especially to what Annie calls the need to “integrate a traumatic health event into a new and evolving identity”. I have to reframe my identity from my self-image of a fit, competent tennis player, which has been an integral part of my life to date.

Reflection

Ash Barty has provided me with inspiration and encouragement through her own life story. She has also made me realise again why I loved the game of tennis. I’ve been reading Ash’s memoir, My Dream Time – A Memoir of Tennis and Teamwork, which could alternatively be called Developing Resilience through Adversity (as she documents her multiple injuries, mental health challenges and recovery strategies). Ash, the smiling assassin, who achieved World Number 1 WTA singles ranking for 114 weeks, shares openly her battle with negative self-messages, including the inexplicable negative self-talk about “not being good enough”.

I can relate deeply to what Ash describes as the pleasure she developed in playing tennis – enjoying the game for its own sake and finding “love in the marriage of movement and timing and speed and strength and guile and nerve” (the willingness “to go for your shots”). I found sheer enjoyment in my competence at tennis and my ability, even in my seventies, to surprise my opponents with unpredictable shots (such as a backhand half volley drop shot, a shot down the line or a half volley backhand lob). I would often mentally record the competent shots that I played and still to this day can replay some of them mentally as if on videotape. I undertook this process of recall and replay of my best tennis shots to build my sense of self-efficacy in playing tennis.

It is interesting that Ash talks about her slice backhand as her competitive advantage. In her words, the slice backhand produces “ an unpredictable low bounce” and is created by hitting the ball “with enough angle and speed to generate a fade”. Ash, through her slice, changed women’s tennis game at the elite level. In the mid 1970’s, I used to employ a slice backhand as my main attacking shot when playing competitive tennis … and I would follow it in to the net to complete an attacking volley as my opponent would have to hit the ball up to clear the net. However, over time while playing social tennis, after my competitive tennis days were over, I stopped using my slice backhand – for unknown reasons at the time. On reflection, I discovered that what had got in the way of my using this particular shot was a form of cognitive blind spot – I had unconsciously begun to view it as “not a real shot”. Ash’s resurrection of the slice in women’s tennis made me realise that I had unwittingly discontinued a shot that gave me a competitive advantage.

Ash at one stage in her book talks about “acceptance” – everyone is imperfect and “we’re all unique, all fallible and all with our own foibles”. It is the nature of being human that we are prone to making mistakes and subject to life-changing mental and physical challenges. We need to acknowledge the fragility of the human condition, accept what we can’t control, and act on what we can change for the better. Mindfulness can help us to develop resilience in personally challenging times.

As I grow in mindfulness through reflection, meditation, writing and storytelling, I hope to develop a new narrative about my evolving identity, grow in self-awareness, and strengthen my courage to undertake the necessary, ongoing rehabilitation. Life’s challenges can “make or break us” – mindfulness can help us to remain grounded, develop resilience and explore creative options.

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Image by Chen from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

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