Managing Chronic Illness

The November Creative Meetup was facilitated by Jennifer Crystal, author of One Tick Stopped the Clock.   Jennifer is a “story coach” with the Health Story Collaborative which hosts the online Meetups.   She also conducts the Writing to Heal Immersive at the Grubb Street Center for Creative Writing.   Jennifer has a long history in writing about her experience with Lyme Disease and sharing her knowledge with others who have contracted the disease and other tick-born illnesses.  Since 2013, she has been the writer of a weekly column for the Global Lyme Alliance and her enlightening and inspiring blog posts can be found on the Alliance website.

Jennifer’s medical journey

Jennifer was bitten by a tick on a camp when she was 19 years old but had to experience many frustrating years of misdiagnosis.  At 25 years of age, she was finally diagnosed with Lyme Disease which led to the Epstein-Barr virus (EBV) infection that causes Mononucleosis.   Jennifer was bed-ridden and experienced multiple symptoms that doctors had not been able to explain.  In her period of misdiagnosis, she was variously told “to rest”, “eat things close to the ground” (e.g. chicken and turkey),  and “talk about your feelings” (assuming that the illness was psychosomatic, not real). Grace Currey from Australia (bitten by a tick in the US) provides a vivid description of what it was like to have Lyme disease that was not recognised by medical professionals in her home country.

Jennifer Crystal had a five-year journey to wellness and remission of the Lyme disease.  However, she then had to experience a “searing relapse” and eventually found a new balance and developed her teaching-coaching career.  Earlier, she was unable to commit to relief teaching because of her inability to guarantee that she could manage physically or emotionally.  She is now a leading proponent of the multiple benefits of sharing your health story and teaches people how to write-to-heal.

Stimulus questions during the Creative Meetup

Typically the Creative Meetups begin with a writing stimulus of some kind such as a poem, article or book extract.  Jennifer introduced herself to the group and read a few brief sections from her book which served as a basis for creative writing by group members and story sharing in the group.  Jennifer’s stimulus questions flowed naturally from her book extracts:

  1. Write about a time when you felt brushed off and what you wished that person could have seen on the inside, or
  2. Pick a single object related to your story and write about it in a poem or prose – see where it takes you!

These were both challenging and fruitful questions that led to some insightful, creative writing by the group and follow-on sharing and discussion.  The level of creativity, resilience and insight in the group always amazes me.  The Creative Meetup process illustrates the healing power of storytelling and demonstrates the benefits of this approach to “narrative medicine”.

Jennifer’s healing strategies

Besides the medical solution of months of antibiotics, Jennifer identified the need to change her mindset about her chronic illness.  She adopted a number of strategies to achieve this:

  • Integrating chronic illness into her life – she established a “new normal” which addressed the question, “How to live well in the context of a chronic illness?”.  This very much involved self-acceptance and avoiding denial.  It also meant acknowledging that there was “no going back”.
  • Shedding an identity made impossible by the chronic illness – Jennifer’s dream was to become a skiing instructor – a role very much tied up with her self-image and personal goals.  This identity was no longer possible given her disabilities precipitated by her chronic illness.  She had to shed her ”skier instructor identity” and find a new sense of self.  She asked herself the question, “if I can’t [follow this dream], who am I?”.  This required her to value herself for who she was, not who she might be or could become.  She recognised that she was still a caring person, who had friends that she connected with, and was still a writer.
  • Pacing herself – slowing down and recognising that she needed frequent sleep and suffered from brain fog and other debilitating symptoms.  It meant napping each day, taking on freelance writing, listening to her body and sharing the load by moving in with her parents.  It also meant building stamina gradually, not trying to achieve her previous “workaholic” status.  It required her to accept that things would take much longer than previously to complete and that healing from chronic illness is not a  linear process, but an undulating journey of indeterminate length.
  • Learning to say “no” – part of self-care during chronic illness is to being able to say “no”.  Jennifer reiterated the view that “No is a complete sentence”.  Saying “no” enables us to set personal boundaries.  Jennifer encouraged us not to fall into the “explanation trap”, which itself consumes energy and can lead to exhaustion and frustration.  We don’t have to explain everything or give a reason for our “no”.  She suggested that we could use her phrase, “No, that would not be healthy for me now”.
  • Writing – the process of writing enables our inner landscape to become outer, to express the feelings that are hidden inside us.  Writing can change our mindset and create freedom.  Initially, Jennifer could not write about her illness and all that it entailed, so she concentrated on writing to her friends and family.  Eventually, she was able to address the issues of her chronic illness, including the challenge of “not being seen” or understood.  She found that writing enabled her to be more honest and vulnerable. It helped other people to see the effects of chronic illness and to become more compassionate in their interactions with others.
  • Joining a community – the Health Story Collaborative (HSC), for example, provides a community where people are encouraged to share their health stories either verbally or in writing.  Their Creative Meetups are one form of regular online interaction in a community that provides social support and encouragement.  Jennifer found that undertaking a course in creative writing enabled her to share her chronic illness with her classmates who did not judge her, were in a learning mode too and were exploring making the “inner world” visible.  She also noticed that people were better able to assimilate information about an individual’s chronic illness when it was shared in written form.

Reflection

In the discussion that followed the creative writing of participants, one major issue emerged.  This involved people not understanding the hurt that their well-intentioned words can cause to someone who is suffering from chronic illness.  Comments such as “You look good” or “You don’t look ill to me” can be particularly hurtful when someone with a chronic illness has gone to the trouble (despite the difficulty involved) to “dress up” or put on a “façade” when they are going out in public (leaving their bed and track pants behind)! 

The well-intentioned comments can be experienced as “devaluing” the experience of a person with a chronic illness.  It can also trigger memories of mistreatment by the medical practitioners who were unable to relate the presenting symptoms to their “medical cookbook”.   Annie Brewster (founder of HSC) contends that many patients with chronic illness experience “frustration, invalidation and exhaustion” when their ongoing symptoms don’t fit neatly into the “diagnostic algorithms” of medical practitioners.

As we grow in mindfulness through reflection and sharing our stories, we can increase our sensitivity to the situation and needs of others and experience what Jennifer describes as developing “greater compassion for others”.

During the creative writing segment of our Meetup with Jennifer I wrote the following poem to reflect some of the earlier sharing and my own experience of dealing with medical professionals who consider the existence of MCAS (Mast Cell Activation Syndrome – my chronic illness) as controversial as the concept of Lyme disease:

Validation and Accommodation

There’s no place for me in cookbook medicine –
so I don’t have an illness,
it’s all in my head.

Until something happens that is considered serious –
then perspectives change.

I appreciate my body –
the millions of daily decisions,
the miracle of breath,
the ability to write, walk, run and play tennis.

Now my body seems to be letting me down –
treating good food as invaders,
hypervigilant, ever on the alert.

My new bodily reality –
reflecting the dark and light of nature,
creating a challenge to accommodate the “new normal”,
with its remissions and relapses,
enabling and disabling in unpredictable ways.

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Image by Márta Valentínyi from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

A Journey Into Sobriety

Seana Smith in her memoir, Going Under, graphically describes her journey into sobriety – a state achieved for four years at the time of publishing her book.  Her memoir tracks her early childhood, addiction to alcohol and multiple attempts to escape both physically and mentally.  For each step forward, there was always a backward step until she found the solution to her addiction.  Her insightful, inspiring and humorous account traces the ups and downs of a life burdened by alcohol addiction.

Early childhood

Seana had adverse childhood experiences as a result of her father being a violent alcoholic and the inability of her mother to cope with his addiction and the physical and mental abuse against her. The verbal abuse by her father extended to Seana and her siblings, especially to Callum who had a serious mental health issue.  Seana’s home environment lacked consistency and warmth and was constantly unpredictable, despite some happy childhood moments with her parents individually or together.

Year of sobriety

Seana was able to achieve a year of sobriety when her twins were seven years old. The catalyst was a period of heavy drinking that resulted in her trying to pick a fight with her husband, Paul.  She was mean to him but fortunately he did not react to her” sarcasm and barbs”.  The twins had started school and Seana had a strong sense that her drinking was undermining “her urge to feel healthy and bright and well”.  She joined AA and took up ocean swimming which gave her challenge , excitement and a modicum of fear.

Despite this outstanding sobriety effort, Seana dropped back into her old ways, moving from drinking once a week to drinking a bottle a day.  Alcohol provided an escape from the mind-numbing routine of motherhood and the associated domesticity.  This led her to her endless cycle of “thinking and thinking and thinking about drinking”.  She described herself as “white knuckling” as she fought to regain control and overcome the very real physical and mental urge to drink…and drink to excess. 

The ever-present opportunity for free drinks from social events added to her pain and temptation, and ultimately resulted in her submission to the impulse to lose control over her drinking habit.  While Seana did not consider herself to be an alcoholic, she acknowledged that she engaged in “gray area” drinking, leading to morning hangovers and severe headaches impacting her ability to function fully.  She often alternated between moderate drinking and risky drinking.

Trauma and addiction

Gabor Maté contends that addictions, in multiple cases, originate from the pain of adverse childhood events.  The addiction, in whatever form it takes, is often an ineffective attempt to remove the trauma-induced pain.  The experience of trauma evokes negative self-stories and Seana’s book is replete with continuous self-deprecation.  Seana was in the grip of the “need to please” and believed that if she did not drink with others in social settings, she would not be “accepted”.  She also acknowledged that in her twenties, she was addicted to sex – another form of failed attempt to escape from trauma pain.

As part of her journey to sobriety, Seana discovered that her father’s “drinking story” continued through her. It impacted her need to “keep moving and moving”. She sought help from a therapist to assist her in “letting go of old trauma”.  The therapist employed EMDR therapy to great effect.  Seana was able to progressively move beyond the past, focus on the present, express gratitude for the “positive gifts my family and upbringing have given me” and to remember “all the good parts of Dad and Mum” and the adventures they took her and her siblings on.

The journey to sobriety

There are many perspectives on, and paths for, recovering from trauma and its muti-dimensional impacts.  The road to sobriety is complicated by trauma-induced beliefs and behaviour.  Seana like many others who have achieved sobriety found that it was a very long journey with many setbacks to recovery.  She also recognised that recovering from alcohol addiction required multiple pathways which served to positively reinforce each other.

She took up pool swimming that, along with the social encounters and new friends, provided her with release from the physical tension of trying to overcome her alcohol addiction. She also bought a dog, “a wee black poodle called Maisie” – which reduced her urges to escape and travel.

A key to her recovery was listening to sobriety podcasts constantly.  From Janey Lee Grace’s podcast, Alcohol Free Life, Seana discovered a solution, “keep the ritual – change the ingredients”, that she was able to implement by substituting “alcohol-free wines, cocktails spirits and mixers” for alcoholic drinks whenever she had a ritual of drinking, e.g. at 5pm.  She listened to multiple sobriety podcasts including Annie Grace’s podcast, This Naked Mind.   Seana also devoured Annie’s book, This Naked Mind: Find Freedom, Discover Happiness and Change Your Life.

A key factor for Seana in her journey to sobriety and freedom was the use of the affirmation, “My life will be better if I never drink again”.  This mindset shift refocused her belief and energy because she had always valued health, fitness and happiness but had pursued these goals in the wrong areas such as social drinking.

Reflection

Going Under is a courageous memoir recording a history of childhood trauma and the constant physical and mental battle to overcome alcohol addiction.  It makes you realise what is happening “on the inside” when someone is struggling with such addiction. Seana approaches her story with incredible insight and resilience.  Her humour adds character to her insightful tale.

As I read her book, I found that some parts triggered the memory of my father who was an aggressive alcoholic, physically abusing my mother and creating fear for myself and my siblings.  Seana’s book helped me to appreciate his internal struggle and the inability of my mother to cope with his alcoholism, sometimes aggravating the situation by berating him when he was drunk.  Seana recounts how her own mother learnt a little too late how to relate to an alcoholic partner.

There are multiple social support groups such as The Sober Club  developed by Janey Lee Grace which Seana refers to.  I have found that the Creative Meetup group hosted by the Health Story Collaborative is a strong support for me while I experience chronic illness and deal with my adverse early childhood experiences as a result of my alcoholic father.

Following one such Creative Meetup on Zoom, I reflected on my father’s war experience and resultant PTSD.  It helped me to better understand what he was going through and his daily challenge of just coping with life and family.  I wrote a blog post and a reflective poem titled, Paternal Forgiveness, to express my thoughts and feelings at the time.

I found that meditation and prayer helped me immensely to deal with my adverse childhood experiences and gave me the strength to overcome the tendency to addiction.  As we grow in mindfulness, we can unearth our negative self-stories, express gratitude for the positive aspects of our life and progressively build courage and resilience.

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Image by Alicia from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

The Trauma-Disease Connection – Lessons Learned

Dr. Aimie Apigian recently conducted a masterclass on the theme, How to Help the Body Live, Love and Let Go.  Her guest speaker for the interactive session was Dr. Gabor Maté, world-leading trauma physician and author of In the Realm of Hungry Ghosts: Close Encounters with Addiction.   Together they shared their clinical experiences and research and highlighted the lessons learned about the trauma-disease connection.

Gabor highlighted the impact of trauma on the body, reflecting the unity of mind and body.  He emphasised that the body is inseparable from all aspects of human existence, including the ecological and social environment.  He maintained that his new book, The Myth of Normal, provides insight into the lessons he has learned from “working with trauma in the body”.  In writing the book he also drew on thousands of articles and newspaper reports.  

Gabor contends that everyone has experienced some form of traumatic experience and that trauma embedded in the mind and body contributes to chronic illness.  In his view, healing begins with waking up to the body’s sensations as well as to “what the mind is suppressing”.  It is increasingly acknowledged that trauma is not the precipitating experience/event itself but the negative impact on a person’s mind, body and emotions – how the experience/event is internalised. 

The early experience of Aimie

In responding to Gabor’s question about what motivated Aimie to study diverse medical fields and to get into trauma healing, she told the story of her early experience in adopting 4 year old Miguel from the foster care system.  He had extreme behavioural problems and in his rages would try to kill Aimie.  Caring for Miguel and undertaking her third year residency as a doctor resulted in “severe fatigue”.   It was then that Aimie came across Gabor’s book, When the Body Says No: The Cost of Hidden Stress – the title of his YouTube presentation where he discusses the trauma-disease connection resulting from the unity of mind and body. 

Aimie’s response to her own trauma-induced health issues was to try to understand Miguel’s behaviour and her own mind/body response.  She undertook training in trauma healing and somatic healing through her functional medicine studies.  Aimie also completed master’s degrees in biochemistry and public health as well as “specialized training in neuro-autoimmunity, nutrition, and genetics for addictions, mental health, mood, and behavioural disorders”.  Her book on The Biology of Trauma looks at trauma’s impact at the cellular level and explores approaches to holistic healing from trauma.  The title of her book is also the theme of her podcasts and the focus of her training for other health professionals.   

Trauma’s impact

Both Aimie and Gabor stressed the holistic impact of trauma on a human being.  They described how someone who has experienced trauma develops a disconnection from themselves and their bodies.  In their view, trauma leads to a degeneration of the nervous system, a loss of energy and emotional issues such as depression and anxiety.  They point out that the various systems of the body are interconnected and interdependent – so trauma can affect the gut, the cardio-vascular system and the emotional system.

Reflection

As Aimie points out, trauma may result from adult experiences, not just adverse childhood experiences. She emphasised that given trauma’s influence on the whole person – body, mind and emotions – a range of healing modalities may be necessary.  For this reason she has undertaken extensive trauma training including Somatic Experiencing, Sociometric Relational Trauma Repair, NeuroAffective Touch and the Instinctual Trauma Response Model.

Mindfulness has a key role to play in healing from trauma.  As we grow in mindfulness, we can calm our nervous system, reduce our negative self-stories, get in touch with our bodies and  build the resilience to restore our health – thus, gradually breaking the trauma-disease connection.

Aimie offers a 6 week online program, The Foundational Journey, designed to provide a safe way to open up “stored trauma”.   The evidence-based program has a strong emphasis on the mind-body connection and provides tools that include somatic healing.

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Image by Daniel R from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Expressing Gratitude Daily

Kim Armstrong provides a meditation on the theme of Cultivating Gratitude Daily.  In the 12-Minute Meditation podcast on 21 March 2024, she takes us through a process of reviewing our day (or the previous day) at micro-points to reflect on instances, interactions or events that brought us joy, happiness or contentment.  She encourages us to reflect on these moments to express appreciation for them.  They don’t have to be big happenings, but by reflecting on the small positive moments in our life, we can cultivate gratitude on a daily basis.

Kim is co-founder and facilitator of Space Between, a not-for-profit organisation dedicated to bringing the benefits of mindfulness to teachers and school-aged youth.  She has a Master’s Degree in Child and Adolescent Psychology and is a certified meditation and yoga teacher.  Fun-loving Kim is a strong advocate and practitioner of deep listening and draws inspiration from Thich Nhat Hanh’s quote, “Live the actual moment. Only this actual moment is life”.   

Space Between draws its name from Viktor Frankl’s book, Man’s Search for Meaning, and his observation that:

Between stimulus and response, there is a space.  In that space lives our freedom and our power to choose our response.  In our response lies our greatest happiness.

Guided meditation process

In her guided meditation, Kim helps us to explore the minutia of daily life and to learn to savour each moment that has enriched our lives in small and significant ways.  Her process begins with encouraging us to take two deep breaths, inhaling through our nose and exhaling through our mouth, as a way to become grounded for the meditation practice.  This initial breathing process could be accentuated by vagal toning.  She then leads us to reflect on different stages in our day.  The reflections below are my own recollections of moments I appreciated as I progressed through her “Cultivating Gratitude Daily” practice:

  • Waking up –  the warm morning hug from my partner; the sound of birds greeting the morning light (especially the Kookaburras and their raucous “laughter”); the red and yellow glow of the sunrise spreading across the horizon and being reflected in the waters of Moreton Bay; the view of Green Island and its sandy beach from my lounge room and deck; the sand dunes of Moreton island providing a very white backdrop; the early morning silence punctuated by the calls of birds and the sea breeze.
  • Moving from the bedroom – appreciating having the water and toothpaste to brush my teeth; the opportunity to shower and freshen up for the day in a bathroom (instead of in a lake or river); observing the sunlight spreading throughout the rooms of the house I share with my partner and one of my sons; having a house to live in that is spacious and open to views of the Bay.
  • Beginning the day – being able to make a cup of coffee on our Expresso machine; having access to Almond Milk (to avoid dairy milk intolerance);  savouring the foam and taste of the cappuccino I made; providing a coffee for my partner; having distilled water and vitamins to energise my day; enjoying gluten-free toast and avocado for breakfast; watching the birds feeding off the nectar from our native Bottlebrush trees; enjoying the colour and shape of the Bottlebrushes.
  • Transition to work, play, or  exercise – having a focus and a purposeful task such as my blog and book; being able to write well; having a talent for integrating ideas, concepts and practices from multiple sources; having focus and clarity (not encumbered by “brain fog”); being able to form an intention and pursue it; being able to create poems to reflect my thoughts and emotions.
  • Transition to home life – being able to walk on the Esplanade beside the Moreton Bay;  seeing pelicans gliding gracefully across the water at the creek’s edge and resting contentedly on rocks beside the seagulls as they survey the surrounding Bay waters glistening with sunlight; having access to shops to buy a wide assortment of foods; having food to prepare for dinner; preparing the dinner meal for my partner and son;  the pleasure of eating and sharing; the taste of food and drink (peppermint herb tea).
  • After dinner – sharing a favourite TV show with my partner; being able to watch the Olympics and European soccer (having the resources to fund streaming services such as Stan and Kayo).
  • Sleeping – being able to sleep (not suffering from insomnia); having a comfortable and warm  bed to sleep in (not sleeping in the street on our Winter nights); the stillness of the night.

Kim points out that the “cultivating gratitude practice” has many benefits.  She maintains that it offsets the negative bias of our brains and the tendency to focus on what is unpleasant or dissatisfying.  Kim argues that gratitude builds resilience, displaces envy and resentment and builds a positive mindset. In her mindfulness training with teachers and school-aged youth, she aims to help them to achieve “integration and wholeness”.  Cultivating gratitude helps us to get in touch with ourselves.

Kim and her colleagues at Space Between employ trauma-informed mindfulness training to help members of the school community to use the space between stimulus and response to make better choices for the benefit of themselves and their community.   Research supports the organisation’s observation that undertaking mindfulness practices intentionally provides “systemic support for the mental health and well-being of students, teachers and families”.

Reflection

The “Cultivating Gratitude Daily” practice helps us to grow in mindfulness and experience the benefits of heightened creativity, greater calm and clarity, and improved focus and productivity.   It assists us to see more clearly what we have in life – the things that bring us happiness and joy and builds positivity that contributes to increased resilience.

It also helps me to appreciate the opportunity to pursue a purpose, the creation of this blog, that is helpful for other people as I contribute to awareness of what resources are available to develop mindfulness and the multiple benefits that can accrue from pursuing mindfulness intentionally.

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Image by John Hain from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Managing Adult ADHD

Recently BrainWorx launched a virtual interview series that they called the ADHD Toolbox Live with more than 20 speakers involving both live and prerecorded interviews.  Some of these highly informative interviews are available on the BrainWorx blog.  The Mayo Clinic explains that Attention-Deficit/Hyperactivity Disorder (ADHD) is a chronic condition in some children and adults that cannot be cured but can be managed through behavioural interventions and medication.

Mel Robbins in her podcast, Six Surprising Signs of Adult ADHD, draws on her extensive research and interviews with leading ADHD experts to explain that ADHD is “a chronic neurobiological disorder” that has an impact on the brain both structurally and chemically and can affect how the brain communicates amongst its various parts.  

Duane Gordon, President of the Attention Deficit Disorder Association (ADDA), explained in his BrainWorx Toolbox presentation that ADHD results in “differences in brain development” that can negatively impact capacity to pay attention, to exercise self-control and to remain inactive (“being hyperactive” – a description often given to “naughty children” at school).

Misconceptions about ADHD

Duane was at pains to explain that there are many misconceptions/myths surrounding ADHD.  These misconceptions include:

  • The belief that ADHD is only a children’s disorder – increasingly adults are diagnosed with it when an adult (however, research shows that ADHD is formed before 12 years of age)
  • The assumption that people with ADHD “lack intelligence” (the opposite is often true)
  • The exhortation that people with ADHD should just “try harder” (which Duane explains is the most damaging of all misconceptions because it attacks a person’s self-esteem as they are already doing everything in their power to “keep afloat” with everyday demands).
  • The perception that ADHD is a “little inconvenient” (Duane explains , however, that ADHD can deeply affect every facet of your life – such as financial health, career and relationships).  Duane, who himself has ADHD, comments that it “digs into every aspect of your life”.

Symptoms of Adult ADHD

In her podcast of the six surprising signs of adult ADHD, Mel Robbins identifies the following key characteristics:

  1. Hyperfocus – ability to focus intensively in particular settings (e.g. when working on a creative project or writing) despite an inability to focus in other settings (e.g. with children, hyper-focus on computer games but inability to pay attention in class at school)
  2. Difficulty controlling emotions – can be impulsive, easily frustrated and reactive
  3. A tendency to shop impulsively and over-spend – Mel cites Dr. Amen who explains that the compulsive shopping or drug and alcohol abuse can be an attempt to “stimulate the brain with a dopamine rush” (a chemical that has a role in learning, attention & mood)
  4. Time management problems reflected in lateness, being the last person to arrive
  5. Capacity to function at a high level – workaholism (including “all-nighters”) and entrepreneurial success
  6. Highly self-critical – constantly “beating up” on oneself for “disappointing everyone”.

Mel, however, drawing on the work of Dr. Ellen Littman and others who co-authored the book, Understanding Girls with ADHD, points out that the ADHD symptoms of girls are often different to those of boys.  She explains that this contributes to the fact that adult women are often diagnosed with ADHD later than men.  Mel herself was diagnosed with ADHD at the age of 47 (by accident when her son was formally diagnosed with the same condition).  She explains that the major difference between women (girls) and men (boys) with ADHD is that the symptoms are typically internal rather than external. 

Boys, for example (like her son), express their symptoms physically such as impulsive physical behaviour, fidgeting, inability to keep still, inability to pay attention and concentrate, easily distracted, continuous leg movement and a tendency to interrupt proceedings (such as classes).  Girls/women (like herself) tend to daydream and are disorganised and forgetful, and are hard on themselves, seeing their ADHD as a “character flaw”. 

Mel notes, again drawing on the work of Dr. Littman and colleagues, that the outcomes for girls tend to be worse than those for boys – resulting in low-self-esteem, self-loathing, eating disorders, and suicidal ideation.  In common with boys, girls can experience “overwhelm” but Ellen Littman contends that outcomes for girls (and women) can be “horrendous”.

Managing Adult ADHD

Duane argues that a starting point is to “embrace” your ADHD.   By this, he means to “look for aspects that make you special” such as storytelling, leadership capability, capacity for public speaking and creativity.  He points out that some of the world’s leading entrepreneurs have been diagnosed with ADHD as adults.  He explains that when people are first diagnosed as adults they tend to experience shock, feel shame, resist the diagnosis and tend to become absorbed in regret.  He notes, however, that many of the forward-looking organisations are seeking out people who are neuro-divergent because they “think outside the box”.

Duane was diagnosed with ADHD as an adult in similar circumstances to those of Mel – his own diagnosis was accidental when his daughter was diagnosed with ADHD.  He explained that when he was first diagnosed with ADHD he did not have a phone number on his business card because he could not talk to people – now as President of ADDA he talks to people all over the world about the condition and its personal and social impacts. 

Duane strongly advocates for self-compassion, which involves not only self-acceptance but also self-forgiveness.  He explains that there is often a stigma attached to ADHD because “neuro-typical” people tend to attach negative meanings to the ADHD condition, they are blind to the unique talents of those people who are “neuro-divergent”.  Kevin Bailey, a Certified ADHD Coach, argues in his ADHD Toolbox interview, that we should acknowledge that “we’re all perfectly imperfect” and suggests that adults with ADHD could employ his strategy of acting “as fast as I can, as slow as I need”.  His interview with the Wired for Winning video podcast relates his experience of “otherness” as a neuro-diverse, black person with ADHD and Autism.

Duane counsels us that everyone’s ADHD is different – he comments that his daughter’s ADHD “is different to mine”.  Accordingly, it is not possible to offer a precise solution for an individual adult for managing their condition, there is, in his words, a “group of solutions” that others have found helpful and can be used as personal experiments to see what works for you.

Duane strongly recommends the social support offered by a community of people with adult ADHD such as that offered by ADDA, the largest such organisation in the world.  Not only does ADDA provide resources but it also facilitates exchange between members so that people can share their stories, the manifestations of ADHD in their lives and the solutions that have worked for them.  This is similar to the healing power of storytelling embraced by the Creative Meetups hosted by the Health Story Collaborative (HSC).  Duane suggests that organisations such as ADDA help adults to “take your ADHD and discover it for yourself” – facilitating the process of learning, experimentation, making adjustments and continuously applying new learning.

ADDA provides a free monograph which offers what it calls, 5 Pillars to Manage Your ADHD:

  1. Learn self-acceptance
  2. Take control of your life
  3. Get enough sleep
  4. Avoid over-committing
  5. Engage a support system

Duane’s interview for the ADHD Toolkit, Why Entrepreneurship is a Great Match for ADHD, can be found here.

The metabolic approach to managing adult ADHD

Mel in another podcast interview with Dr. Chris Palmer, Harvard psychologist and author of Brain Energy, explored the metabolic approach to managing adult ADHD.  In the podcast, The Truth About ADHD in Adults, she delved into metabolic health issues as the root cause of mental health disorders.  This led her to a discussion with Chris about key elements impacting metabolic health such as nutrition, sleep , exercise and other lifestyle elements – all of which can negatively impact brain functioning when they are lacking or inadequate.

Chris argues that an elimination diet over two weeks could help to identify what foods you are sensitive to, e.g. dairy and gluten (which could lead to brain inflammation).  He contends that metabolic health (and associated brain functioning) can be improved by increasing protein intake, lowering carbohydrates, eliminating alcohol and smoking (vaping) and undertaking daily exercise (even Cardio 2 level exercise – e.g.,  light jog, hiking, swimming).  

Chris maintains that children with ADHD internalise the messages they receive at school and elsewhere, e.g., “you are a “problem child”, and this negatively impacts their self-esteem, both in childhood and adulthood.  From his research, he contends that 50% of people with ADHD have “more than one diagnostic label”, e.g., Autism, Bipolar Disorder, and 10% will develop Schizophrenia.

Reflection

Gaining knowledge about ADHD helps us to understand better the challenges faced by adults with this condition.  It can help us to develop greater tolerance of their hyperactivity, messiness, disorganisation, inability to concentrate, poor time management and incapacity to “remain on task”.

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Image by Chen from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Shedding an Identity

In a previous post, I discussed surrendering to the process of shedding old beliefs.  There are also times when we need to shed an identity or an aspect of one of our identities.  In this context, identity relates to the way we conceive of ourselves as being different to others – it can encompass a set of specific skills or trade (e.g. an architect); a level of achievement in sport, art or literature (e.g. a writer); and/or represent identification with a particular group such as a cultural or ethnic group.  There are times, however, when assuming an identity ceases to work for us owing to outside influences, often beyond our control.

Elite sportspeople, for example, who suffer a career-ending injury are confronted with the need to reframe their identity.  Others may find that chronic illness or a disability makes it impossible to pursue the activities that they once saw as part of their identity.  It may mean that they can no longer teach, write or act in the theatre, so they need to rethink how they define themselves or suffer ongoing frustration and, potentially, depression.   People who suffer from the debilitating effects of Long Covid often find that they can no longer entertain an identity that has been a large part of their life – brain fog, fatigue, inability to concentrate and endless pain can preclude activities that they once saw as part and parcel of how they viewed themselves and their capability.

Shedding an identity is a long but rewarding process

 Shedding an identity takes time and self-care.  It involves acknowledging a declining competence, recognising a loss of self-efficacy and a need to address self-esteem issues.  While there can be residual elements of an identity retained in the event of major life changes, there needs to be acceptance that you are no longer like you used to be in relation to the identity being shed.  The challenge is to handle the change not only at an intellectual level but also on an emotional and physical level, particularly where a life time of competence building has been involved.

However, the rewards of shedding an obsolete identity are a sense of freedom, the opportunity to pursue other creative outlets, and build a new sense of identity.  One participant in a recent Creative Meetup noted that leaving her corporate job (and related corporate identity and trappings) provided space for her to pursue her artistic talents – she indicated that it had felt very constraining to be “an artist in a corporate suit”.

A personal example of the process of shedding an identity       

I prided myself as an “A” Grade tennis player, having won a number of team competitions at that level.   I enjoyed the feeling of competence and control that I could gain from playing great tennis shots and winning games (including my own serve).  Associated with this identity was a sense of agility, speed and endurance over many games and sets of tennis.  I would pride myself for being able to chase down a drop-shot and play a winning shot from this position (I was a school champion sprinter in secondary school).

However, more recently I have been diagnosed with multi-level spinal degeneration, exercise asthma and arthritis in my “trigger finger” (used to hold the racquet firmly).  The combination of these disabilities means that I can no longer use my “first serve” without causing injury to my back (because of the need to bend sideways), no longer play singles tennis (as a result of the exercise asthma) or hit the ball hard for a sustained period (because of the pain from the arthritic finger).  I have also had to avoid net play to reduce the risk of falling or being hit in the face (where I have had multiple surgeries for skin cancers, including a melanoma – a vestige of playing summer competition in the Queensland heat).  The challenge for my self-esteem is that I have gone from being a tennis player that people want to partner because of my proven competence to an aged player that some people resent playing with.

Over many years I have built up my sense of self-efficacy in playing tennis by recalling good shots that I have played during a match.  I would go to sleep at night replaying different shots in my head.  The net result is that I have virtually a video-tape library stored in my head that I can sort by tennis shot (e.g., backhand, volley, lob) covering shots that I have played over many years in both competitive and social contexts.  The challenge to my self-esteem now is that while I can envision these shots, I can rarely execute them.  As an opponent said on one occasion when I missed while playing a top-spin forehand shot down the sideline, “You must be playing from memory”.  He was right, but little did he know that I had spent many hours by myself just practising that shot when I was younger.

So I have had to make adaptions including shedding the image of being a very competent “A” Grade tennis player.  My adaption has involved making changes at three levels:

1. Mental
  • Giving up the goal of winning each shot/game (I no longer have the “weapons”)
  • Focusing on achieving shots that surprise my opposition as well as my partner (because of residual skills associated with my original tennis identity, e.g., being able to play different spin shots, able to “read the play”, sound positioning on the court, and an array of shots that I have learned and practised over more than 60 years).  The ingrained skills acquired through conscious effort have enabled me to retain the capacity to play instinctive shots in some situations (shots that I have never practised but just do intuitively in a rally, e.g., backhand, half-volley lob).
2. Physical
  • No net play or running down drop shots
  • No smashes or first serves
  • No lengthy rallies involving a lot of running
  • No singles play
  • No playing in daylight (because of UV radiation and the risk of more skin cancers/melanomas)
3. Emotional
  • Overcoming the worry about what people ‘think” in terms of my tennis prowess (or lack of it)
  • Being able to rise above my mistakes when playing tennis
  • Dealing with my tennis partner’s expectations and/or disappointment
  • Coping with the frustration of not being able to play a shot that I used to play with ease.

Reflection

Shedding an identity is a multi-layered affair that takes time – sometimes it is two steps forward and one backward, particularly on the emotional level.  At least I am only dealing with an identity in a recreational/sporting arena.  A lot of people are dealing with shedding an identity (or multiple identities) that are core to who they perceive themselves to be, and by how they are recognised by others.

Progressively shedding the identity of a competent “A” Grade tennis player has made room for me to develop a new creative outlet in the form of poetry.   Over the past few months, I have written at least eight poems of reasonable length that have caused one observer to comment, “You are a talented poet” – so something lost, something gained.   This provides a new arena for me to build a new sense of competence and self-efficacy – by writing poetry and researching this writing genre as I have done through books such as Kim Rosen’s book, Saved by a Poem: The Transformative Power of Words.

As we grow in mindfulness through reflection, writing, and sharing in community, we can develop new creative outlets, build stronger emotional regulation and develop resilience to manage life’s challenges and setbacks that lead to the need to shed an identity.

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Image by John Hain from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Surrendering to the Process of Shedding Old Beliefs

There are times when we have to shed something of ourself that we hold dear – our beliefs, our self-stories, or an aspect of our identity.   Sharon Salzberg, in her new book Real Life, describes this shedding process as “the movement from constraint, narrowness and limitation to openness, connection, and freedom”.   Shedding was the topic introduced by Jennifer Harris, the facilitator of our recent Creative Meetup.

Jennifer introduced the theme of shedding by sharing Harryette Mullen’s poem, Shedding Skin.  Harryette likens the process of shedding to stripping off “old scarred skin” and “sloughing off deadscales”.  In her view, it involves being open to vulnerability by “shedding toughness, peeling layers down”.   Jennifer also introduced the words of a song by Florence and the Machine in which she sings, “And in the Spring I shed my skin”.  These words from Rabbit heart (Raise Me Up) are interpreted to mean “shed timidity and become courageous”.

Shedding old beliefs

Neale Donald Walsch, in an interview with Kute Blackson for the Soul Talk Podcast, spoke at length about the challenge of giving up old beliefs.  He had been told by his father not to talk to black people because “they were trash”.  He sustained this belief for some time because he thought it would be disrespectful to challenge the authority of his parent.  However, his own life experience as a radio host caused considerable cognitive dissonance for him to the point where he had to shed his old belief about black people.  Neale found that when interviewing for his radio show the audience was predominantly black and he found that they were, in fact, “brilliant and incredible…nice human beings” and ended up having lunch with them and seeking a close friendship with one black person in particular.  He had to shed his old, wrong beliefs about black people to overcome his cognitive dissonance and sustain his relationships with members of his audience.

Neale also had to shed his beliefs about women (again taught by his father) – “women should take care of the house and kids and not being paid equally, not being as bright as men”.  This belief undermined his relationships with women and resulted in multiple failed marriages.  His beliefs about women were constraining, limiting and narrow.  It took regular relationship crises for him to challenge his beliefs and to learn to behave differently in his relationships with women.  So, disconfirming evidence and/or life crises can lead to shedding wrong or outdated beliefs.

However, some people continue to maintain firmly held beliefs despite disconfirming or conflicting evidence and will defend them with overt or covert aggression.  I learnt this at my own expense when I was a young manager in the 1980’s.  I participated in a national conference for State Managers of Training held by the Australian Taxation Office in Canberra.  At one stage in the process, an Assistant Commissioner of Taxation (2IC) joined us to provide moral support for the Central Office Training Team (who were “under fire” from the State representatives for trying to centralise all training).  During the Assistant Commissioner’s presentation, I politely challenged his statement that “The Taxation Office is at the forefront of technology in Australia.”  I explained that at a State level the opposite was true – in fact we were years behind the private sector at the time.  I was publicly abused for my challenge to his firmly held belief (which, while no longer true, was true in the 1960s and early 1970s).  His abuse was so memorable that I was stopped in the street 10 years later by a participant from another State who recalled the “abuse”.

I also learnt again painfully that people in authority can protect their beliefs by covert aggression as well as overt aggression   When I was an academic, I was introducing action learning into my university and using it as a basis for my PhD research.  My Dean opposed my endeavours by trying to prevent my appointment as a tenured academic as well as my overseas travel for a World Congress on action learning in Colombia (I was a member of the international organising committee).  He eventually prevented my promotion to a Senior Lecturer – in the feedback afterwards, telling me that “you had the best application [because of my experience and rating as a teacher], but you are using a non-mainstream approach in your PhD research”.  Action learning promotes the view that we are all “personal scientists” building expertise through life experiences and reflection on our experiences – a position that conflicted with my Dean’s belief in the expert role of academics and the role of Universities as being the “repositories of all learning”.  In consequence, he used covert aggression to try to prevent my academic advancement.

Shedding self-stories

Negative self-stories can develop through the influence of our parents, teachers, peers or colleagues.  These self-stories can shape our beliefs about ourself and our worth and influence our behaviours in the face of difficulties and life’s challenges.  Negative self-stories can arise through traumatic experiences and are often at a sub-conscious level.  Self-beliefs such as “I’m not good enough” can arise from behavioural messages of parents (e.g. through neglect, constant criticism, or extended absences).  The “need to please disease” as a hidden motivator can also arise from a belief that “I’m not lovable” and “I have to be nice to be liked and not rejected”.

It is difficult to overcome adverse childhood experiences that are often behind negative self-beliefs.  Tara Brach suggests that mindfulness practices (such as mantra meditation, writing and reflective conversations) can help us to loosen false beliefs about ourselves.  She offers a process for investigating and challenging false beliefs about ourself.   She argues that as we grow in mindfulness we can develop the self-awareness necessary to enable us to identify our habituated behaviour and to name and challenge our false beliefs.  In the process, we can loosen the hold of our false self-beliefs, restore our energy and engage more positively and creatively in everyday life.

Surrendering to the process of shedding

Participants in our recent Creative Meetup discussed the difficulty of letting go of old beliefs.  They suggested that the process takes time, patience and self-compassion.  They discussed the movement from the pain of shedding to the realisation of potential.  They suggested that the process of taking on new beliefs is uncomfortable, moving from the known to the unknown. 

The rewards of surrendering to the process of shedding beliefs were valued and highlighted.  They talked about “a new way of seeing”, removal of blinkers, experiencing release and empowerment, and accessing a “deeper self” and a “a new way of being”.  The challenge of surrender is real, but the rewards are great.

Tara Brach, with Jack Kornfield and colleagues, offers an online course, Power of Awareness, that is designed to help us “break free from negative thoughts” to realise balance, peace and joy.  They offer a mindful approach to achieving a quiet mind by bringing awareness and self-compassion to our “inner dialogue”.   I have undertaken this course and found it highly beneficial.

Reflection

Lulu & Mischka in their mantra meditation, Metamorphosis, capture the essence of surrendering to the process of shedding.  They encourage us to “keep letting go”, “trust in the process”, relax into the present and “stop resisting”.  If we can do this through mindfulness practices such as reflection and mantra meditations we can achieve healing and a metamorphosis that will enable us to spread our wings and fly higher.  This exhortation resonates with Sharon Salzberg’s encouragement to move from constraint to freedom, from narrowness to connection. from limitation to openness.  I have expressed these insights in the following poem:

Surrender to Shedding

There comes a time in our life when we have to shed old beliefs.
Slough off our limiting self-beliefs,
Remove constraints on our thinking,
Break down the barriers of our defence mechanisms,
Let go and stop resisting,
Surrender to the process of casting aside what no longer works for us.

The shedding process is painful.
Discomfort with the new,
Feeling lost,
Leaving behind the known,
Moving to uncertainty,
Open to anxiety.

The rewards of shedding are great.
Releasing from constraints and limitations,
Achieving a new sense of freedom,
Moving from pain to possibility,
Discovering a new creative self,
Flowing like a river, rediscovering “Flow”.

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Image by Jonathan from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

The Healing Power of Social Support

Social support can take the form of having friends, family or other people who can be a source of support in difficult times, such as chronic illness, death of a loved one or ongoing disability.  They can provide emotional, companionship or resource support and enhance our self-image while offering different perspectives on what we are encountering.

Social support can be provided through a formal social network where people with common interests come together to achieve specific outcomes such as fitness, charitable work or a hobby (as with the Australian Men’s Shed).  Alternatively, they can be informal where a number of people come together on a regular basis to share a coffee and have a chat.

The benefits of social support

Julia Baird, author of Bright Shining: How Grace Changes Everything, highlights the mental health benefits of social support and points to the research that shows the “poor mental health” that results from isolation and loneliness.  She refers to a homeless support group organised by St. Vincent de Paul Society that she joined and noted that there was “no pretence”, people “just being who they are”.  The healing power of this transparency and normality was evident in the homeless participants developing a positive self-image and contributing from their perspective and reality.

Social support is one of the three components for sustainable recovery from trauma, along with appreciating the complex nature of trauma and its impacts and adopting a holistic approach.  Research and clinical practice have demonstrated that social support builds resilience in trauma sufferers – they realise they are not alone, are encouraged to pursue their healing process, are reinforced in their healing efforts and learn vicariously from others who are experiencing difficult emotions and challenging situations.   The resultant sense of connectedness contributes to positive mental health.

The GROW organisation over many years has demonstrated that mutual social support has contributed to recovery from many forms of mental illness for hundreds of people (as documented in testimonial stories by participants).  The peer-to-peer support process facilitated by a nominated leader within the “lived experience” group, promotes personal development and ongoing recovery – a process that may take a number of years.

Reflection

Social support helps participants to develop a sense of being cared for as well as feeling that they can seek assistance from others in understanding and managing their challenging situation.  People gain a strong sense of belonging and connectedness through sharing their personal challenges, their success strategies and their progress towards healing.  They grow in mindfulness as they share their stories and write about their insights, gaining increased self-awareness and heightened self-esteem.

Creative Meetups, provided by the Health Story Collaborative, is a powerful social support system in that it combines the healing power of social support with the healing power of storytelling.  Participants feel fully supported by others engaged in compassionate listening or sharing their stories of challenging situations resulting from chronic illness, disability or their carer role.  The following poem expresses the sense of social support that can be gained through the Creative Meetups:

Social Support

When we share our stories of personal challenges, we realise that we are not alone.
We draw strength from others experiencing and managing more difficult circumstances.
We sense that we belong and feel connected to something outside of ourselves and our pain.
We can be ourselves, free of pretence, unencumbered by the need to be “better than”.
We build trust, savour our relationships and look forward to the next encounter.
There is something magical and disarming about the process that leads to changing perspectives and healing.

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Image by John Hain from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Forgiveness: Forgiving Others and Ourselves

Forgiveness is hard to do, whether we are trying to forgive others or ourself.  It’s not a one-off event but is an evolving process which is why experts in the area suggest that we start off small – with a minor incident or hurt.  Forgiveness engages our feelings as well as our mind and body.  It is something that we have to work at consciously if we are to achieve our goal of “letting go”.

Forgiving others

Frank Ostaseski, author of The Five Invitations: Discover What Death Can Teach Us About Living Fully, suggests that one of the lessons from the dying is, “Don’t Wait to Forgive”.  In his extensive hospice experience he found that too many people were consumed by anger and rage on their death bed because they were unable to forgive others.  He argues that we should not wait until we are dying to forgive others and ourself.  Frank maintains that there is a natural resistance to forgiveness because we have a need to maintain our self-image (of goodness/perfection) and find it difficult to acknowledge that we are carrying challenging emotions such as anger, resentment and regret.   However, there is a real cost to ourselves and our relationships when we hold onto these emotions.

Danette May in her memoir, The Rise: An Unforgettable Journey of Self-Love, Forgiveness and Transformation, argues that we need to “cut the rope”, or as Frank puts it, “letting go”.  These difficult emotions can hold us back, causing self-absorption and “emotional stunting”.  There is a real challenge involved in acknowledging our part in an interaction (or multiple interactions) that was hurtful.  We need to be able to see things from the other person’s perspective and understand what was driving their behaviour.   Frank suggests that in the final analysis, we need to be able to honestly face up to “what we don’t like in ourselves”.

Fred Luskin contends that there are three elements of a grievance that contribute to our “maintaining the rage” and sustaining the hurt:

  1. Preoccupation with the ”offence” and exaggerating its negative impact on us
  2. Insisting that others are to blame for our negative/difficult feelings
  3. Developing and perpetuating a “grievance story”.

Fred argues that the real costs of not letting go are extensive.  Not only do we lose our personal power because we are “controlled by emotions”, but also we lose the ability to focus and achieve peace and wellness.  If we are consumed by anger, hatred, resentment or envy we can’t see past our hurt and we use all our energy in sharing our story and maintaining our sense of hurt.

Forgiving ourselves

The starting point for self-forgiveness is acknowledging our part in the hurtful interaction. It is incredibly difficult to forgive ourselves for the hurt we cause to others – it can be a lifelong process.   Part of the challenge is dealing with strong feelings of guilt and shame – feelings that go against the grain and undermine our sense of who we are.  We can blind ourselves to our negative impact on others because it is too hurtful to ourselves to own up to our part in hurtful interactions.

Jack Kornfield in the Power of Awareness Course argues that there are three myths that underpin our reluctance to engage in self-forgiveness:

  1. Self-forgiveness is a sign of weakness – the reality is that it takes a lot of strength and courage to face up to our hurtful words and actions
  2. We can forgive ourselves through a “quick fix”, e.g., a short meditation or exercise
  3. Forgiving ourselves is condoning our hurtful behaviour.

Elisha Goldstein cites Lily Tomlin when discussing forgiveness of others, Forgiveness means giving up all hope for a better past.  This insight can as readily apply to self-forgiveness as to forgiving others.  In self-forgiveness, we have to give up our “grievance story”, let go of wishing that we had behaved better and dismantle our defenses that prevent us from acknowledging our part in a hurtful interaction.

Mindfulness – a path to forgiveness

When we develop a mindful disposition by observing our inner landscape – our thoughts, emotions and bodily sensations – we can reduce our negative thoughts and increase our ability to forgive.  Mindfulness can develop our “disposition to forgive” – it can unearth grievance stories, clarify our part in any interaction, help us to take the other person’s perspective, increase our awareness of negative emotions and related bodily sensations and cultivate compassion.  Ultimately mindfulness can help us to develop self-awareness and emotional regulation so that we are not captive to our strong, challenging emotions and can live in the present rather than the hurtful past.

Forgiveness meditation

There are multiple forms of forgiveness meditation.  Loving kindness meditation, for example, has been shown to cultivate compassion towards others as well as self-compassion.   Sharon Salzberg, experienced mindfulness trainer, offers a three-part forgiveness meditation encompassing:

  1. Seeking forgiveness from someone you have hurt or harmed
  2. Offer forgiveness to those who have hurt or harmed you
  3. Self-forgiveness for the times you have harmed yourself through being judgmental.

Sharon includes an affirmation related to the last point, For all the ways I have hurt or harmed myself, knowingly or unknowingly, I offer forgiveness.  Other meditation trainers, such as Mitra Manesh, focus the self-forgiveness on the harm that we have caused to others, rather than to ourself.  Mitra, in her forgiveness meditation podcast, places a lot of emphasis on becoming aware of our bodily sensations as we deal with the “heavy energies” involved in holding onto grudges, anger or rage.  She also suggests a mantra for seeking forgiveness from others, For all the ways that I have caused you pain and suffering, I ask your forgiveness.

In reflecting on a number of forgiveness meditations, I identified four common principles underpinning the meditation process:

  1. Stay grounded, relaxed and focused
  2. Manage distractions through an anchor such as your breath or sounds
  3. Start small with something that is manageable and recent (limited history or replaying)
  4. Adopt a healing perspective – show loving kindness to others and yourself.

We can develop a mindful disposition in multiple ways , not just through meditation.  As we grow in mindfulness we can more readily adopt the perspective of others and understand their hurt.  We can own up to and name our own feelings, however negative or challenging. Over time, our disposition to forgive and our capacity to offer forgiveness to others and ourself will grow almost invisibly.

Reflection

Forgiving ourself can be a lifetime pursuit as I have found in trying to forgive myself for my part in my marriage breakup which occurred more than 40 years ago.  This is something I am working towards.  I find that forgiving others and forgiving ourself are interwoven activities – not discrete, independent steps.

I have also been reflecting on my long-standing anger towards my Father for his alcoholism and its major impact on my childhood and my family.  I recently started crafting a poem called Paternal Forgiveness which I will publish soon in this blog.  In the poem, I offer forgiveness to my father, seek to forgive myself for my harsh judgments and express my sorrow for the hurt that I had caused him when he was alive.  In writing the poem, I have drawn inspiration from Kim Rosen’s book, Saved by a Poem: The Transformative Power of Words.  In the book, Kim describes how poetry has helped people to deal with challenging situations, including the need to forgive others and themselves, and provides insight into the transformative elements of a poem.

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Image by Pete Linforth from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Creative Meetups: Action Learning for Health and Healing

Creative Meetups are provided by the Health Story Collaborative (HSC) to enable participants to reflect, connect and gain support from other people who are also living with chronic illness or disability or are carers.  The free Meetups, currently facilitated by Jennifer Harris on the Zoom platform, provide a stimulus for writing “to access and release emotions, personal stories and creative spirits”.  They form an avenue for healing through the mechanism of narrative therapy.

Alice Morgan, author of What Is Narrative Therapy?, maintains that narrative therapy can take many forms.  For instance, she suggests that it can involve “particular ways of talking with people about their lives and the problems they are experiencing”.  In essence, it involves people sharing their stories orally and/or in writing to gain insight into the meanings they ascribe to events, experiences and current situations (such as a physical or mental health condition).  Jodi Clarke points out that we carry multiple self-stories including those related to “self-esteem, abilities, relationships and work.”  She maintains that the process of “putting your narrative together” (however, this is created) enables an individual “to find their voice” as they explore  their life experiences and the meanings they attribute to them.

What is action learning?

Action learning can be described in simple terms as a cycle – planning, taking action and reflecting on the outcomes (intended and unintended).  It is used worldwide in public, private and not-for profit organisations and communities to create positive change and empower people to be the best they can be.  It can be undertaken by an individual by themselves (as I have done with my tennis playing over the years) or, more often, as part of a group or “action learning set”.

Creative Meetups and Action Learning

Creative Meetups and action learning have a core assumption in common.  Alice Morgan expressed this well when she maintained that narrative therapy assumes that “people have many skills, competencies, beliefs, values, commitments and abilities” to resolve their own challenging situations – an assumption that underpins the process of Creative Meetups.  This is also a fundamental assumption of action learning (AL).  

Reg Revans, the “Father of Action Learning”, charged with improving the mining industry in the UK, got mining managers together to solve their “here and now problems” in the mines.    He also got nurses in Intensive Care Units together to work on their challenging situations.  In an action learning context, participants are often described as “personal scientists”.  Some academics in universities, tied to the concept of universities as the sole repository of “expert knowledge”, had great difficulty accepting this core assumption and would actively oppose the uptake of action learning – it challenged their firmly held beliefs about knowledge creation and dissemination.

Creative Meetups and action learning have a number of other elements in common and, in the final analysis, both seek to create positive change in a situation (either individual or collective).  Some of the shared elements are as follows:

  1. Peer support – a fundamental principle is to treat each other as peers – with no acknowledged hierarchical difference.  There is a recognition that we are “all in the same boat” – each facing challenging situations.  Reg described this element as “comrades in adversity”; more recently, people have termed it “comrades in opportunity”.  In essence, it involves providing mutual support irrespective of our work role, status, social position or experience level.
  2. Collaboration – participants work together towards a common goal (e.g. health and healing or team improvement) and willingly share stores, resources, and insights for mutual benefit.  People are unstinting in their sharing – often recommending or loaning books, highlighting helpful websites or identifying relevant expert people.
  3. Don’t know mind – participants adopt a “don’t know mind”, not presuming to know and understand another person’s situation.  Reg suggests that if you think you understand something fully, you are not only going to get yourself into trouble but other people as well.   Adopting a don’t know mind – not jumping to conclusions or interrupting another’s story with your own (erroneously assuming they are same or similar) – enables a person to tell their story in an unfettered way, opening up the path to healing and recovery. 
  4. Honesty – the conscious exploration of what it means to be honest with oneself (owning up) and with others.  This opens the way for improvement and change.  The process of writing in Creative Meetups helps participants to identify false self-stories and unearth truer and richer stories that open up new avenues for their lives and their relationships. Action learning, too, enables the development of honesty.  Reg, for example, recounts an action learning program involving industrial executives in Belgium who, after 18 months of action learning, identified “What is an honest man and what do I need to become one?” (they were all men) as the most significant question they wished they had asked at the start of the program.  He maintained that the pathway to learning and change involves “admitting what you do not know”.  Reg also maintained that if you are going to do “something significant about something imperative”, you will come up against how you define yourself and your role.
  5. Reflection – reflection is assisted by writing and sharing.  The more we reflect, the more it becomes a way of life.  Frequent reflection-on-action can result in the ability to reflect-in-action.  Reg suggests that reflection is best done in a group because when we reflect alone we can tend to reinforce our existing assumptions and maintain our blindspots.  He argues for diversity in the reflective group – diversity of culture, nationality, profession and orientation (business/not-for-profit/community).  The Creative Meetups provide a rich diversity in terms of location (participants are from different countries and cultures) and health/caring situation.   Participants can gain insight gratuitously when others share their reflections from their different perspectives.
  6. Questioning – the willingness and ability to ask “fresh question” to open upinsight into a challenging situation.  Reg describes this as “questioning insight”.  This approach involves “supportive challenge” – challenging assumptions to enable a person to be the best they can be.  Alice Morgan highlights the role of questioning in narrative therapy because we can often develop negative self-stories.  Both action learning and Creative Meetups (narrative therapy) cultivate curiosity.
  7. Action taking – action learning involves learning through action undertaken with others where possible.  Creative Meetups promote writing as taking action to become open to  the healing power of storytelling.   The writing can take any form, e.g. prose, poetry, dot points.  Action is also reflected in the changes in behaviour undertaken by participants as a result of insights gained through writing and sharing.
  8. Facilitation – to design and manage the process of sharing.  In Creative Meetups, the facilitator provides stimulus material (e.g., a story, music or poem) to enable participants to write and share.  In action learning, the facilitator guides the process of planning, acting, reflecting and sharing.  In both situations, the facilitator is not a teacher.  Their role is to create an environment that promotes safety, trust, openness and sharing – their metaprocess goal is to develop a learning community.   

Creative Meetups, in promoting writing and reflection, are helping participants to grow in mindfulness which is described by MARC (UCLA) as “paying attention to present moment experiences with openness, curiosity and a willingness to be with what is”.   Both action learning and mindfulness contribute to positive mental health because they increase self-awareness and heighten a sense of agency (belief in the capacity to have some control over our inner and outer environment).  In cultivating mindfulness, both approaches help people to develop resilience, compassion and creativity. 

Reflection

I initially joined the Meetups with a view to writing my stories in prose but have found that the stimulus provided by the discussions and my recent reading of Kim Rosen’s book,  Saved by a Poem: The Transformative Power of Words, has led me to write several poems about my health story and the process of the Meetups.  Kim’s identification of the transformative elements of a poem continues to provide a pathway for my poetic expression.   I used her elements to analyse a poem I had written called For the Love of Tennis that enabled me to express my gratitude for being able to continue to play tennis despite a diagnosis of “multiple-level spinal degeneration”.

Following a recent Meetup, I unearthed my feelings about my chronic condition of food sensitivity/allergy resulting from Long Covid-induced Mast Cell Activation Syndrome.   I was surprised about the intensity of my feelings of frustration and alienation that I had not previously given voice to.   The poem, The Inflammatory Thread in My Life, provided a creative outlet and release for emotions I had kept “under wraps” and not expressed to anyone, including myself.

In a previous post, I shared a poem, Compassionate Listening, that I wrote following a Creative Meetup where the stimulus input included an excerpt from Joni Mitchell’s performance of Both Sides Now at the 2024 Grammy Awards.  To me the poem reflects the stance of participants of the Creative Meetup in being able to engage in deep listening, provide active support of the storyteller and reflect back not only the feelings expressed but also the intensity of those feelings. 

Compassionate listening strongly reflects the ethos of HSC where Healing Story Principals (such as Micheal Bischoff) sought to support people “to tell and listen to stories in ways that are healing, connected and empowering”.  The support and connection underpinning Creative Meetups and action learning promote health and healing.

Reflecting on the process of Creative Meetups and my long-standing experience with action learning in multiple contexts, I was inspired to write the following poem:

Where is “There”?

When you share your innermost secrets

and I say, “I’ve been there!”,

where is “there”?

It’s not where you have been

with your unique experience and perception.

I’m not inside you looking out,

I’m outside you looking in.

It’s like the glimpse of the Bay

that I get from my back deck.

It’s not the Bay!

It’s only a tiny window

on a complex ecosystem.

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Image by Xavier Lavin Pino from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

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