Exercising Agency When Living with a Chronic Illness

There is a story in chronic illness – it’s evolution, it’s manifestation, our proactive attempts to manage it and its resolution (whatever form that takes).  Managing chronic illness invariably involves the three “As” – acceptance, accommodation and agency. 

Agency refers to our capacity to have some control over our internal and/or external environment.  Typically, chronic illness reduces our agency in various areas of our life because it creates some form of disability which can be far reaching or limited in its manifestation in our day-to-day lives.  The challenge for people with chronic illness is to limit the loss of agency where possible and increase its presence in other areas of our life.

How to develop agency as a writer with a chronic illness

In a previous post, I discussed ways to develop agency when we are trying to write while having a chronic illness.  In that post, I discussed specific strategies relating to writing such as setting your own pace, finding a comfortable location for writing, writing a reflective poem and starting small.

I have developed agency in my own writing despite having MCAS, a chronic disease affecting the immune system.  One form of accommodation I have adopted is to reduce my expectations about the frequency with which I produce a blog post.  I have also written a series of reflective poems to help me manage the symptoms and feelings associated with MCAS.  I have also started a new writing enterprise in the form of a co-authored book on management (now in its first draft stage).  I have had to exercise self-compassion with this project because of the setbacks I have experienced during my writing efforts – setbacks such as the bankruptcy of our contracted publisher, the loss of data, the serious illness of my coauthor, and a week-long cyclone and associated anxiety and disruptions.

Developing agency through research and education

In an earlier post when I discussed a holistic approach to MCAS and histamine intolerance, I mentioned the work of Beth O’Hara, FN, a sufferer from multiple chronic illnesses.  Beth used her illness to motivate herself to research her own health solutions and to create the Mast Cell 360 facility which offers paid, holistic health interventions as well as  free resources.  Her research and her own clinical practice highlighted the role of the nervous system in the development and expansion of MCAS. 

Beth’s proactive approach to understanding the role of the nervous system in MCAS was to provide a specialised, online course to help MCAS sufferers gain control of their nervous system which is variously dysregulated with MCAS.  Her self-help program, Master Class to Reboot the Mast Cell Nervous System, gives sufferers some degree of agency over their own health improvement.

Through this Reboot Course I came to better understand the components of the nervous system and how the nervous system interacts with other systems of the body (e.g. the digestive system).  The Roadmap incorporated in the course gave me insight into the vagal nervous system, factors impacting it and manifestations of damage to the vagal nerves.  More importantly, the Roadmap provides strategies to address vagal nerve excitation based on the level involved.  In other words, through this Reboot Course I have a way of exercising agency over my own nervous system and its level of excitation.  This provides a proactive way of managing the nervous system element of MCAS which according to Beth represents 50% of the recovery protocol.

Typically, a chronic illness will have a pattern – good days, bad days; good periods, bad periods (of variable duration).  Once we understand the pattern of our chronic illness (how it manifests itself from day to day), we can exercise agency by utilising the “good” times to undertake what we consider to be important and productive.  This can involve writing prose or poetry, engaging in social work or undertaking part-time employment as Jennifer Crystal did with her part-time teaching while she experienced the difficult aspects of Lyme Disease.

Exercising agency in our recreational activity

Agency can also extend to our recreational activity – we can shape our activities to fit our physical, emotional and/or mental ups and downs.  I play social tennis despite having MCAS which often means that my ankles and legs are swollen and I have arthritis in one of the fingers I use to hold a tennis racquet. 

I have found that swelling in my ankles reduces my mobility.  I find that the lack of mobility is very frustrating as this used to be a strength of my tennis game (I was a champion sprinter during secondary school).   Now with the swelling I feel anchored on the spot, not able to accelerate forward.

As the inflammation is caused by sensitivity to some foods and drinks, it is within my control to limit these to reduce the swelling and improve my mobility.  This, however, is easier said than done as it severely restricts what I can eat and drink.

Another related area of agency with regard to the quality and enjoyment of my tennis game is undertaking exercise on a daily basis – including walking, a daily exercise routine (designed by my exercise physiologist) and my Tai Chi routine.

I re-learnt recently that most of the power of a tennis shot comes from your legs, not your arms or hands. I was getting very frustrated with the arthritic pain in my fingers which caused me to lose power in my arms and hands.  However, I have found that by bending my knees with each shot (as I used to do), I can restrict the pain in my fingers and hands and increase the accuracy and power of my tennis shot.

An added benefit of this form of agency is that by bending my knees I unconsciously activate my body memory so that I can access a wider range of tennis shots than I would normally play without the knee-bending. You only have to watch Grand Slam tennis to see how much players, both male and female, rely on bending their knees to gain power and to play a wide range of tennis shots (some even kneel at times to absorb the power of an opponent’s shot).  So the simple act of knee-bending gives me a form of agency that increases both the quality and enjoyment of my social tennis.

Reflection

The challenge with chronic illness is to identify areas for increased agency and to experiment with particular strategies to activate whatever agency we can find in whatever window of opportunity reveals itself.  Mindfulness practices such as meditation, conscious breathing, reflection and Tai Chi can help us to be open to opportunities for agency and to act on them.  As we grow in mindfulness, we can gain insight, heighten creativity and develop the courage to act on our increased self-awareness.

The story of Lucy, a 13 year old blind girl who is also neurodiverse, is an outstanding example of what is possible when we focus on our strengths rather than our deficits. Lucy is a prodigal pianist who has wowed audiences in places such as Leeds Train Station with her rendition of the extremely complex Chopin piece “Nocturne in B-flat Minor Op.9 No.1”.  She competed in a public piano competition with three other gifted pianists who were selected by Lang Lang, world famous pianist who was “speechless” with her performance and chose Lucy as the best of the four pianists. 

Lucy achieved agency in the form of her creativity and musicality, playing complex classical pieces for audiences, by utilising her strengths despite her obvious disabilities.  She has highly developed hearing and an incredible sense of touch – she learned to play the piano by placing her fingers under the fingers of her piano teacher as he depressed each key.  Her sensitivity in playing the classical pieces astounded Lang Lang.  She played at the Coronation Concert at Windsor Castle on 7 May 2023.  Lucy has since produced a classical piano CD, simply called Lucy – The Album.  Lucy’s story and her training through the Amber Trust and her teacher, Daniel, is available on video.

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By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)      

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

On Death and Dying

Elise Esther Hearst, in her novel exposing the day-to-day reality of people experiencing inter-generational trauma, makes the unequivocal statement in the title of her book, One day we’re all going to die.   This is an undeniable aspect of the human condition.  Buddhists remind us of the impermanence of everything and the need to prepare ourselves for the inevitable reality of our dying and death.  They strongly urge us to savour the preciousness of life and nature and to meditate on death.

The recent Death and Wisdom Summit offered free recently is now available on a paid, upgrade basis.  During the Summit, a number of presenters addressed the issue of preparing for dying and death.  They shared the lessons from their own research and work in the hospice arena and in providing grief counselling.  One of the keynote speakers Frank Ostaseski, author of The Five Invitations: Discover What Death Can Teach Us About Living Life Fully, spoke of the similarities between dying and meditation.

Similarities between the dying process and meditation

In an interview with Steve Heilig, Frank shared his lessons about living from accompanying over 1,000 people in the dying process. In the Death and Wisdom Summit, he focused on sharing his personal insights into the similarities between the dying process and meditation or other spiritual practices such as retreats.  Frank, himself, had been a meditation practitioner over many years.

Frank identified the following aspects as similarities between the dying process and meditation:

  1. Withdrawal from daily life – there is a peeling back of identity and a re-focus on the present moment and experience.  Roles and ego identity are stripped away – the face we present to the world is no longer needed or relevant.  In dying, as with meditation, distractions are reduced, habituated responses removed and other parts of our life are left behind, including our wide circle of friends.  We are either left alone or engage, sometimes silently, with an intimate few.
  2. Breaking down of conventional boundaries – there is a move away from duality towards wholeness.  Elements previously experienced as separate are gradually integrated – such as mind and body, I and  others.  On a different level, the barrier between persona (projected or perceived ideal image) and the shadow (the unconscious, emotional blind spot) is broken down.  So someone who is normally gentle and soft-spoken can suddenly appear as aggressive and loud (or vice versa).  The shadow can emerge from behind the mask as the unconscious seeps into conscious life.
  3. Increasing silence and appreciation of being silent – there is new-found comfort with, and valuing of, silence.  People can experience a coma-like state before dying and, as a result, savour the silence.  Frank noted, for example, that one person who emerged from a brief coma before dying stated, “If I had known that quiet was so beautiful, I would have spent a lot more time in silence”.  There is a gradual process of “turning down the noise” – both the external interactions and the internal dialogue.  There is an emergent clarity about our inner landscape.
  4. The realisation of ordinariness – the progressive acceptance that we are all subject to the human condition, there is awareness that there is a naturally occurring “unfolding” of causes and conditions.  This leads to humility and a sense that we are “no better or worse than anyone else” – we are all conditioned by our humanity and its fragility, its foibles and its impermanence.  It can lead to the breaking down of “constructed protection” that results in “self-limiting identity”, thus allowing a fuller, more humane identity to emerge.
  5. Emergence of a state of “not knowing” – a recognition that our fixed ideas about ourself, other people and the world around us are limited and limiting.  Not knowing frees us to embrace the unknown and the uncertainty of death.  Frank notes that “we all carry stories about our death” and these not only “shape the way we die” but also can shape how we live and love.  Self-stories can blind us and their progressive release in meditation and dying can create openness to emergent possibilities.
  6. Surrender – flows from “not knowing” and often follows a state of exhaustion.  Frank describes it as a form of expansion, moving beyond our limiting self-stories to a “kind of spaciousness”.  It is beyond struggling, beyond fighting with ourselves and our death and beyond acceptance. 

Frank was adamant that “surrender” was not the same as “acceptance” and was “infinitely deeper than acceptance”.  He explained that having been mentored by Elisabeth Kubler Ross he was convinced that many people, including those working with the dying, misunderstood what she was talking about in her book, On Death and Dying, when she identified the “five states of dying” – denial, anger, bargaining, depression and acceptance.  He maintained, that contrary to popular belief, Elisabeth never saw the stages as linear or sequential, but sought to identify some of the defence mechanisms employed by people who were dying.   Frank also explained that later in her life, Elisabeth mentioned to him that she had come to realise that the “five stages” did not represent the full picture of the dying process.  Part of Frank’s unique contribution to our understanding of the dying process is his elaboration of the stage of “surrender”.

According to Frank, “acceptance” is a conscious act of “letting go”  – removing attachment to, or constraint by, objects, people or false ideas.  He suggests that, in contrast, surrender is an “effortless, easeful, non-doing” state that enables realisation of our basic nature without internal or external interference.  He likens it to the experience of “time standing still” that some people experience in a car accident situation.  In grappling to find the words to describe “surrender” fully, Frank resorted to telling the story of his near-death experience in a whirlpool while rafting in the Grand Canyon and how surrender followed exhaustion.  He provides further elucidation of this elusive concept in his podcast, Surrendering to Death.

Frank maintained that we could develop qualities that enable us to be more ready to achieve the state of “surrender’ when dying.  He suggests, for example, that a sense of wonder and awe, religious conviction, love or confidence in our acquired wisdom (achieved through mindfulness), can “engender surrender”.   He further likens “surrender” to an initiation process involving prioritising the essential over the dispensable.  Frank stated that our natural reaction is to resist and fight death through fear, but that “the essential is so magnetising, the surrender so compelling, that fear does not stop us”.

Reflection

Frank provides a very strong exhortation.  He maintains that it is a “ridiculous gamble’ to assume that when dying “we will have the physical strength, emotional stability, the mental clarity to do the work of a lifetime”.  He argues that NOW is the time for personal transformation – to grow in mindfulness through meditation, silence, developing wonder and awe, cultivating love and compassionate action and strengthening belief. 

In the process we can let go of limiting self-stories, misconceptions about death and dying, attachment to externalities, and fear of losing control.  We can develop a “not knowing” state, realise the reality of our human condition and our own ordinariness and increase our sense of connectedness to nature and others.

Jack Kornfield and Tara Brach provide a Power of Awareness Course online with 21 hours of teaching. The Course helps you to develop a daily practice of mindfulness mediation and provides ways for you to sustain this practice. It enables you to live life more fully, break free of self-limiting thoughts, increase your sense of wonder and joy and enrich your relationships at home and at work.

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Image by Nicky from Pixabay.com

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site and the resources to support the blog.

Self-Care When Exploring Long Covid Symptoms

I mentioned in a previous post that I had thought initially that the peripheral neuropathy that I was experiencing was a symptom of Long Covid.  However, as explained in a previous post, I had discovered on investigation with my doctor that there was a structural explanation for these symptoms.  In that post, I encouraged persistent exploration of symptoms with our medical practitioner because our assumptions about symptoms may be misleading.

Self-Care in the face of disinterest or denial

One of the problems in discussing Long Covid with doctors is that there is no general agreement amongst medical practitioners as to what constitutes this condition (or even that the condition exists at all) yet doctors readily accept “fibromyalgia” as a condition.  Fibromyalgia, like Long Covid, involves a set of symptoms  such as muscular pain, cognitive disturbance and fatigue and, in common with Long Covid, symptoms vary with each individual.  In one sense, today’s patient experience with Long Covid diagnosis and treatment is similar to the experience of Lyme Disease sufferers who are faced with ignorance or denial.   This experience is eloquently described in case studies by Allie Cashel in her book, Suffering in Silence: Chronic Lyme Disease in the Age of Denial

In her book, Allie also recounts her own experience with Lyme Disease and other chronic conditions.  She strongly encourages patients experiencing any form of chronic illness that is typically denied by the medical profession to persist in sharing our symptoms with our doctor until we achieve a satisfactory outcome in terms of adequate diagnosis and effective treatment options.  Interestingly, she also shares her story and advice in one of the “stories shared for health” on the Healing Story Collaborative platform.  Her storytelling, which includes practical hints on how to approach your doctor with difficult symptoms, is presented in her recorded conversation with Val Walker, Being Fair Reporters: Self-advocating about Chronic Illnesses with Doctors.  Sometimes, self-care may require finding a medical practitioner who really listens and demonstrates that they do the necessary medical research and are across chronic health conditions such as Long Covid.

Reflection – my story to date

Previously, I discussed healing through storytelling as a way forward to recovery from chronic illness or disability.   This is in addition to qualified medical treatment that may take the form of medication and/or physical intervention.  As identified earlier, the problem with chronic illnesses such as Long Covid is that they contribute to a sense of isolation and can lead to depression, anxiety and other mental health issues.  Suzy Bolt’s Programme, Rest, Relax, Recover, addresses the emotional and psychological aspects by providing social support and healing modalities such as mindfulness practices, breathing techniques and group discussion.  In line with the healing power of storytelling, I am continuing my own story of exploration of my chronic symptoms such as peripheral neuropathy.

When searching for a medical practitioner who could help me diagnose my symptoms and suggest appropriate treatment, I came across a local doctor, David Eaton, who has dual qualifications as a General Practitioner and as an Occupational and Environmental Physician.  The breadth of his qualifications was a clue for me in terms of his willingness to explore complex, chronic symptoms and openness to the potential influence of Long Covid.  I have since discovered that he has several special interests that are relevant to my situation:

  • Musculoskeletal medicine, physical impacts of ageing and sports injuries
  • Skin conditions
  • Diagnosing and managing chronic and complex medical conditions.

David initiated a comprehensive investigation of my symptoms including blood tests.  Through David (via X-Ray and CT scan) I acknowledged a structural explanation of my ongoing experience of peripheral neuropathy in the form of spinal degeneration (including spinal stenosis and arthritis).   

The diagnosis of my symptoms is ongoing.  Compounding my current health situation is a group of symptoms that I have assumed are a consequence of Long Covid.  Gez Medinger in his Long Covid Handbook identifies three sets of Long Covid symptoms experienced by people categorised as experiencing mild disease but not hospitalised when suffering Covid initially (my experience as well).   The three sets of Long Covid symptoms that Gez identifies can be categorised loosely as: (1) increased intolerance to foods, (2) cognitive and physical exhaustion (including brain fog), and (3) increased heart rate (palpitations) and associated health issues.  I still experience unexplained symptoms of post-exertion malaise (Category 2) and increased intolerance of certain foods (Category 1 – what was previously experienced as “food sensitivity” is now being experienced as “food allergy” with the attendant aggravation of symptoms (changing from mild to severe).

David was aware that research has supported the observation that Long Covid can increase intolerance to specific foods.  He has also demonstrated that he is continuing to research the emerging literature on Long Covid – a criterion that is very welcome when seeking medical assistance with chronic and complex health conditions in our pandemic era.  David also reinforced the three elements of the health triangle – physical, psychological and social – and their interdependence.

Unfortunately, many patients experience an unwillingness of their doctor to acknowledge the existence of Long Covid or to make the effort to explore the growing research and anecdotal evidence of its existence and pervasive health impacts. 

As I grow in mindfulness through mindfulness practices and reflection, I can continue to challenge my assumptions, gain increased insight into my habitual behaviours, adopt appropriate self-care techniques and move to develop a new personal narrative that reflects my current situation of chronic disability.  In the process, I hope to gain the acceptance that Alexia Chellun describes in her song Allowing:

I’m allowing everything to just be
As it comes to me

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By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group, and the resources to support the blog.

Mindfulness: A Pathway to Wisdom

Recently Tami Simon of Sounds True interviewed Dr. Dilip Jeste, Professor of Psychiatry and Neuroscience, on the theme of wisdom and how to be wiser, faster.  Dilip’s research interests are aging and the neurobiological basis of wisdom.   His exploration of wisdom and the related personality trait of compassion is presented in his book, Wiser: The Scientific Roots of Wisdom, Compassion, and What Makes Us Good.

During the podcast interview, Dilip focused on his obvious passion, the neurobiological basis of wisdom.  While stating that the research is in the early stages in terms of completeness and application, he did suggest that people who are wise are guided by the neocortex part of their brain (our logical, analytical capacity), while those who are unwise are more driven by their amygdala (responsible for the fight/flight/freeze response).

In the interview, Dilip explained that to undertake research into wisdom he had to first establish the measurable components of wisdom.  His research led him to identify the common elements in multiple published definitions of wisdom in scientific journals.  This enabled him to isolate six of the more commonly used components of wisdom.  What I wanted to do here is explore how mindfulness can help to develop each of these components – thus serving as a pathway to wisdom.  By way of corollary, I would suggest that the  journey towards mindfulness is a journey into wisdom and its many components.

Mindfulness and the components of wisdom

Dilip made the point that wisdom is not a single trait but a collection of of traits – like the personality trait of emotional intelligence, it has several components.  In the section below, I will explore the relationship between mindfulness and each of the six components of wisdom identified by Dilip.

  1. Self-reflection – this covers the ability to explore your inner landscape and analyse your behaviour in terms of responses to stimuli.   There are many mindfulness practices that cultivate this capacity, especially those that encourage exploration of thought patterns, including harmful negative self-stories.  Another example is the process of reducing resentment through reflection that I described in detail in an earlier post.  Additionally, Acceptance and Commitment Therapy (ACT) is a highly developed mindfulness approach designed to guide self-reflection.  Dr. Russ Harris, a prominent practitioner and proponent of this approach, has made ACT accessible to individuals who are experiencing self-doubts and negative self-evaluation.  His humorous illustrated book, The Happiness Trap Pocketbook, provides a range of exercises that makes self-reflection accessible to anybody.  
  2. Prosocial behaviour – where the focus of attention is on the needs of others rather than being totally self-absorbed.  This component of wisdom is manifested in displaying empathy and/or taking compassionate action.   Listening mindfully to the stories of others can be a form of compassionate action.  As we grow in mindfulness, we can become more aware  of how our mindfulness positively impacts others, leading to a realisation that we are also engaging in mindfulness for others.  Loving-kindness meditation is another form of mindfulness practice that enables us to reach out to the needs of others.   More recently compassionate leadership has emerged as a prominent trend in leadership development, driven by the global pervasiveness of mindfulness practices.
  3. Emotional regulation – being able to control your emotions.  One of the more consistent outcomes identified in mindfulness research is self-regulation.  In their book, Altered Traits: Science Reveals How Meditation Changes Your Mind, Brain, and Body, Daniel Goleman and Richard Davidson highlighted the traits that are altered and sustained through meditation practices.   These included not only self-awareness and social awareness (leading to empathy and compassion)  but also what they call “self-management” (another term for emotional regulation).  Mindfulness practice can help us overcome our habituated behaviour and our typical response to negative stimuli. 
  4. Acceptance – being able to cope with uncertainty, ambiguity, and differing perspectives.  Acceptance according to some schools is a defining characteristic of mindfulness, e.g. Diana Winston in her meditation podcasts for MARC UCLA explains that mindfulness involves “paying attention to our present moment experiences with openness and curiosity and a willingness to be with what is”.  Mindfulness meditation has been used to reduce anxiety in times of uncertainty.  Through mindfulness practice we can also unearth assumptions about differences in perspectives that create walls between us and other people we encounter in our daily lives.
  5. Decisiveness – making decisions despite uncertainties and adversity.  Mindfulness meditation can help us to address procrastination.  It can also improve our decision-making capacity by highlighting the thoughts and emotions behind our decision-making,   exposing our negative thoughts and helping us to maintain focus and achieve clarity.  The Mindful Nation UK report states that one of the benefits of mindfulness in the workplace is “improved comprehension and decision-making”.
  6. Spirituality – defined as “continuous connectedness” with something or someone.  The focus of connection could be the Bhagavad Gita, Buddha, God, nature, or soul.  Connectedness to nature and other people can be enhanced through mindfulness meditation.  Allyson Pimentel offers a mindfulness meditation designed to overcome the sense of separateness and strengthen connectedness.  Christine Jackman, in her book Turning Down the Noise: The Quiet Power of Silence in a Busy World, offers the view of a Benedictine monk that prayer itself is a form of meditation – by praying you are connecting with God or some other deity through mindfulness (p.72).

Reflection

This discussion highlights some of the ways that mindfulness can provide a pathway to wisdom – approaches to developing the components of wisdom.  As we explore each of these components within our mindfulness practice, we can move closer to wisdom.  We could focus on a single component to overcome a deficiency – e.g. Dilip stated that he was working on strengthening his “prosocial behaviour”, specifically compassion.  Alternatively, we can aim to grow in mindfulness and wisdom more broadly by adopting different mindfulness practices.  The research by Davidson and Goleman confirm that mindfulness meditation can alter our brains, our minds, and our bodies.

Dilip’s research confirmed that some people grow in wisdom with age through the recently identified facility of neuroplasticity.  He maintained that people who are active as they age – combined with an openness to new experiences and making changes in their life – can grow in wisdom.  In speaking of activity in this context, he referred to being “active physically, psychologically, socially, and cognitively”.  As we use different forms of mindfulness practices – e.g. mindful walking, mindful listening, mantra meditations, Tai Chi or yoga, journalling, loving-kindness meditation and mindfulness  research – we can increase our level of activity across the dimensions that Dilip identified.

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Image by Gerd Altmann from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Enhancing Receptivity through Mindfulness

Jamie Bristow and Rosie Bell maintain from their research that mindfulness enhances our receptivity thus enabling us to reclaim our attention and sense of agency – our sense of the ability to positively influence our relationships and our external environment.  According to their research, mindfulness increases our receptivity in a number of ways – widening the “bandwidth of perception”, overcoming unhelpful habituated responses, reducing our distorted perceptions,  improving our relationships, and developing our “don’t know mind”. 

Widening the bandwidth of perception

Mindfulness increases our capacity to take in information through its emphasis on acceptance of “what is”, consciously noticing bodily sensations and heightened development of our senses.  Acceptance is a precondition for action, not inaction – if we cannot accept what is happening to us (e.g. through internal dialogue such as “Why me?”, “What have I done to deserve this?” or “This can’t be happening to me”), then we cannot move forward and take constructive action to redress our situation. 

Mindfulness meditation often focuses on our bodily sensations – we are encouraged to notice what is happening in us bodily when we experience difficult emotions.  By noticing our bodily sensations, we are better able to name our emotions and tame them. Our bodies are windows to our feelings – by paying attention to them we widen the bandwidth of our perception and gain better access to our inner landscape.

Mindfulness expert Jon Kabat-Zinn, in his book, Coming to Our Senses, shows us how to access all our senses – e.g., our seeing,  touchscape, soundscape, smellscape, tastescape – to enable us to heal ourselves and act positively on our world.  Being open to our senses enhances the depth and width of our perception and increases our sense of connection with nature – developing a sense of empowerment and resulting in healing ourselves.

Overcoming unhelpful habituated responses

As we come to understand our inner landscape through mindfulness, we gain insight into our negative triggers and their origins. This leads to awareness of our reactivity and habituated responses.  Often, we are triggered by our distorted perceptions that arise because of our bias, projections, prejudice, and unfounded assumptions.  As we unearth these distortions in perception through mindfulness meditation, we are better able to understand their influence over us and what we perceive, and to exercise control over our reactions.

Improving our relationships

Through mindfulness, we not only reduce our perceptual distortions but also emotional baggage that can destroy relationships.  We are able to bring to the relationship increased self-awareness and self-regulation.  For example, by reflecting on any resentment we carry towards another person, we can come to see their side of the story, understand where they are coming from and reduce our self-absorption and hurt – thus healing our relationship.  Through mindfulness we can also bring to the relationship an increased consciousness of our inner landscape, a sense of personal empowerment (not disabling dependence) and a growing capacity to feel and express empathy.  We are better able to engage in active listening because we can be present in the moment of the conversation, attentive to non-verbal cues and less defensive and self-protective.  Mantra meditations, as one form of mindfulness, can increase our capacity for deep listening.

Developing our “don’t know mind”

Jamie and Rosie write about the “beginner’s mind” developed through openness and curiosity  – which are hallmarks of mindfulness according to the Mindful Awareness Research Center (MARC).  In discussing the lessons from death and dying, Frank Ostaseski encourages us to develop what he calls, the “don’t know mind” which has the same characteristics of openness and curiosity and he suggests that these characteristics can be developed through mindfulness meditation.  The result is that we are able to enter conversations with others not trying to be “interesting” but demonstrating being “interested in” the other person – a stance that enhances trust and relationships.  Mindfulness enables us to listen for understanding rather than attempting to always persuade others to our point of view – in the process, developing our influence and strengthening our relationships.

Reflection

As we grow in mindfulness, we can strengthen our sense of agency by developing our receptivity – to information and to others.  We can gain better awareness of our distorted perceptions and their impacts, develop greater self-control over our reactions to negative triggers, improve our relationships and grow our influence through our curiosity and openness.  Our enhanced perceptual bandwidth developed through paying attention to our senses gives us uncluttered access to our inner landscape and the healing power and sense of empowerment of our natural landscape.

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Image by yamabon from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Self-acceptance and Overcoming Negative Thoughts

Tami Simon of Sounds True interviewed Professor Steven Hayes co-founder of Acceptance and Commitment Therapy (ACT).  In the interview podcast, Steven focused on Self-Acceptance and Perspective-Taking.  Fundamental to the ACT approach is the capacity to “step Back” from the inner critic, notice the negative thoughts that are being generated and listening to those thoughts with a sense of curiosity to understand what is going on.  It involves being vulnerable to, rather than hiding away from, the hurt entailed in negative self-evaluation.  Added to this facing up to the inner critic are defusion techniques, such as perspective-taking, designed to create distance from the thoughts by seeing that they are not facts, only “streams of words” or momentary sensations.

Acceptance of thoughts and sensations

Steven explains that “acceptance” in the context of ACT involves acknowledging these negative thoughts as a gift to be explored, not something to be accepted passively or tolerated as if they were true and readily verifiable.  It involves recognising the wisdom embedded in our difficult emotions because they serve to illuminate something that we care about deeply. 

This involves the flexibility to acknowledge the gap between our thoughts and our inner awareness of them and the capacity to take what is useful in those thoughts to motive us to act on them to achieve a positive outcome that we value.   It is about regaining control over our inner world so that we can live our life “with meaning and purpose” – the core theme of Steven’s latest book, A Liberated Mind: How to Pivot Towards What Really Matters.

Steven illustrates this acceptance approach by discussing negativity around body image and how to turn this into effective problem solving – rather than being trapped in the unfounded message of the inner critic that relates body weight to ugliness or lack of attractiveness.  He suggests as a starting point to revisit your past to see where the mental connection between body weight and ugliness originated, e.g. it might have had its origins in bullying at school by other students who were jealous of your academic or sporting success.  Following this exploration, you can use one of the many defusion strategies in ACT that can take away the power of this autosuggestion.  Russ Harris, ACT practitioner, provides a great set of defusion strategies in his humorous, illustrated book, The Happiness Trap Pocketbook – a very readable and accessible guidebook for personal change. 

Perspective-taking: a defusion strategy to create space and disempower the inner critic

Steven highly recommends “perspective-taking” as a defusion strategy to enable you to step back from negative thoughts and create enough space to disempower them.   There are many ways to undertake perspective-taking.  Steven describes one process in his interview podcast that he asserts will work even when you lack knowledge of mindfulness, ACT or any other related modality.  The steps he describes are as follows:

  1. Picture yourself struggling with the negative critic you are confronting (with your eyes closed or looking downwards to reduce distractions)
  2. Notice that it is a part of you that is noticing your struggle
  3. Now take that part of yourself that is noticing and tune into your body seeing yourself watching the struggle (you can even tune into the earliest occurrence of these negative thoughts) – in the process show self-compassion towards yourself
  4. Then ask yourself, “Is this person loveable, wholesome or empathetic?’ 
  5. Picture yourself sitting there observing this loveable, wholesome person from a short distance – as in a movie
  6. Imagine remembering 10 years from now how you looked as you struggled with the inner critic – picture yourself sitting in a chair or on the floor still struggling the same way
  7. You can ask yourself then, if you were observing this struggle in this future time, “What words of wisdom would you offer yourself?”
  8. Then bring yourself back to the present by grounding yourself in your body.

In this interaction, your wisdom will emerge, and you can offer yourself encouraging words such as “you can move on”.  According to Steven, research shows that “human intelligence in inherently self-compassionate” – the thought processes above enable you to tap that self-compassion.  He maintains that this form of perspective-taking is itself “very healing”.

Reflection

We can become overwhelmed by our inner critic if we give it free play, without challenge.  So often, we avoid facing up to what is painful.  The Inner MBA, developed by Tami Simon and colleagues, provides one avenue to explore our inner landscape, and defusing strategies offer many ways to break the hold of our inner critic.  Mindfulness practices provide a further avenue for facing up to our negative thoughts and related disabling beliefs.

As we grow in mindfulness through these processes, we can break the hold of the inner critic, gain a truer self-awareness, embrace self-compassion and emerge with a sense of freedom and alignment with our life purpose.

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Image by NickyPe from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Meditation as Preparation for Dying

Meditating on death helps us to appreciate both the preciousness of life and its precariousness. Thinking about death and the dying process serves to motivate us to live our lives more fully and more aligned to our true purpose in life.  Much as we might like to, death is not something to be swept under the carpet – it is an every life reality.  Meditation itself can help us to prepare for death by helping us to face up to its reality and consciously build the capacity to die peacefully, with acceptance and equanimity.

The reality of our death

Irrespective of our belief about the existence of an afterlife, there are some inescapable facts about death and dying that we each have to face (not deny or ignore, despite cultural “taboos”):

  • The certainty of our death
  • The uncertainty of the timing of our death
  • The unknown about how we will die – there are so many potential internal and external causes of our death
  • The remaining span of our life is decreasing with each day (we are getting closer to death with each day we are alive – our life is inevitably running out, like the waters in an outgoing tide).

We can live our  life in the light of the lessons from death and dying or continue to ignore death’s reality.  One of the lessons Frank Ostaseski learned from observing the dying and practising meditation is that meditation is itself like the dying process.

What meditation and the dying process have in common

Frank identified a number of common elements between the dying process and meditation:

  • Stillness and silence
  • Being fully in the present moment
  • A focus on our inner life – “profound inquiry into the nature of self’
  • Accessing our inner wisdom
  • Progressive release from attachments
  • Deep sense of humility
  • Deep sense of expansiveness and connection to nature and everyone

The benefits of meditation for the dying process

The dying process is a solitary event – no external person or possession or power or wealth or physical beauty can assist us in the process of accepting the inevitable.  What can help us to make the transition easier at the time of death is release from all attachment, comfort with deep self-exploration and reconciliation with ourselves and with others.  What will help too are the positive states that we have formed through meditation – compassion, self-forgiveness and forgiveness of others, patience, wisdom and peace.  The more positive our life has been, the better we will be able to accept all that is happening to us at the time of death. 

Frank suggests that we should aim to replace guilt with remorse – not drowning in our guilt but expressing remorse for having hurt others.  Remorse then motivates us to do better and avoid hurting the people we interact with.  Forgiveness meditation is a powerful aid in this transformation.

Reflection

Once we accept that life is running out like the tide, we can value and appreciate every moment that we are alive, develop loving-kindness and build positive experiences where we contribute to the welfare of others.  As we grow in mindfulness through meditation, and especially by meditating on our death, we can create the positive states of acceptance, peace, tranquillity and compassion that will assist us in the dying process.  Meditation helps us to understand and accept the reality of our death and to prepare us for the inevitable (but uncertain) end to our life.

Frank’s book, The Five Invitations: Discover What Death Can Teach Us About Living Life Fully, can provide us with insights into the dying process and the lessons we can learn and, in the process, build our motivation to develop and sustain a daily meditation practice.

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By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Understanding Death and the Process of Dying

Rheanna Hoffmann recently interviewed Frank Ostaseski on healing grief through compassion and love.  Frank founded the Metta Institute whose mission is to provide innovative educational approaches to developing skills in “mindful and compassionate end-of-life care”.  Rheanna herself is the founder of The Whole Practitioner, dedicated to helping nurses move beyond frustration and burnout to “rediscover, health, balance and their core values”.

Frank and many other writers on the process of dying maintain that it is not just a medical event but is much broader and more holistic than this form of the mechanical model.  Increasingly, research is confirming too that consciousness is more than our physical brains.  Frank argues that the unwillingness in our culture to talk about death and the dying process is preventing us from learning the lessons that the dying can teach us and our children.  He contends that if we learn about the dying process and face the reality of our inevitable death, we can better appreciate the “preciousness of life” and live our lives more fully and in alignment with our values and purpose.

The process of dying

Frank describes dying as a process of “stripping away”.  It’s as if everything that is associated with our “ego” – our sense of self – is peeled away.  Undoubtedly, our mental and physical capacities decline, and this begins with the aging process.  But the stripping away is much more than that – it is losing attachment to everything including our spouse or partner, our home, our roles, our possessions, and the animals in our life.  Frank also talks about dying as a “sacred process of transformation” through which we see things in a new light, have a deeper understanding of the meaning of life and the value and true purpose of our own life – in other words “an awakening”, no longer limited by our concept of a “small separate self”.

Peter Fenwick, when talking about What Really Happens When We Die, suggests that the more we hold on to our ego needs and refuse to let go, the more difficult is the dying process.  Living our life in a selfless way – not totally self-centred — makes the process of dying easier because we are not absorbed in holding on to our attachments.  Being “other-centred” in the pre-transition phase of our life makes dying easier and enables the final transformation that Peter describes as entering a “spiritual domain” where you lose your identity as a separate self and become identified with the total cosmos – the universal whole.

Peter discusses the change in our level of consciousness in the light of research into Near Death Experience (NDE).  He maintains that consciousness research focused around NDE experiences confirm a “widening of consciousness” that manifests in:

  • Losing the self-narrative – the self-talk that we employ to boost or deflate our egos
  • Being just in the moment – not absorbed in the past or anxious about the future
  • Experiencing “unbelievable” happiness
  • Tending to be transcendent – losing a sense of duality (our self and others) and becoming merged with the cosmos.

Peter has co-authored The Art of Dying with Elizabeth Fenwick which provides personal accounts from those who have been dying and people (healthcare professionals, carers and family) who have been with them and supported them in the process of dying.   The accounts discussed, as well as other research into NDE experiences, confirm that consciousness is much more than our physical brains.  Monica Renz, author of Dying: A Transition, provides a process-oriented approach to end-of-life patient care that incorporates confirming the dignity of the patient, understanding the transition process of dying and being able to sensitively engage in the symbolic journey described by dying patients.  Her observations and detailed accounts are based on attending 1,000 cancer patients during the process of dying.  Monica describes the dying process as both an archetypal and a spiritual process and contends that, in the process of transition, patients move through fear into a “space of peace, acceptance, dignity and tranquillity characterised by connectedness and even luminosity”.

Reflection

Our cultural blinkers blind us to the reality of the dying process and the nature of our own inevitable death.  As we become more aware of the dying process through our own research and study, we can learn to appreciate how precarious our life is and how precious is the process of both living and dying.  As we grow in mindfulness through meditating on death and reflecting on its implications for how we live our life, we can progressively come into more alignment with our life force, our values and our life purpose.

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Image by Hans Braxmeier from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

What it Means to be a Tough Male Today: Strength through Adversity and Vulnerability

In a recent interview podcast, Tami Simon spoke to former NBA star Lance Allred about his book which focuses on changes to what it means to be a “tough” male in times of adversity.  Lance is the author of The New Alpha Male: How to Win the Game When the Rules Are Changing.   As the first legally deaf player in the NBA, Lance missed hearing a number of plays but he brought to the game a keen sense of sight and intuition – he was able, for example, to develop heightened peripheral vision and the capacity to read body language through intuition rather than analysis.

Lance explains in his interview (as part of the Insights at the Edge podcast series) that he was raised as a child in America to become the classical Alpha Male – dominant, powerful and focused on the external signs of success that were associated with materialistic values (what you possess) and “superior conceit” (“better than” or “superior to”).  The catalyst for his change of perspective on what it means to be male was the sudden end to his NBA career (precipitated by the Global Economic Crisis) and nervous breakdown which resulted in thoughts of suicide.

Characteristics of males who successfully persevere despite adversity

In the interview, Lance describes the seven characteristics of what he terms the “New Alpha Male”.  The characteristics are strongly aligned to mindfulness and Lance describes them as the “seven principles of perseverance” when faced with today’s life challenges:

  1. Accountability: Lance argues that we need to own our feelings and avoid hiding them through “false bravado”.   He maintains that to be accountable we have to cast off those embedded self-stories that lead to envy and aggression and own our real feelings, instead of playing the victim or the child throwing a tantrum.
  2. Integrity: Speaking your “authentic truth” – not showing one side to a valued audience and another worse side to people viewed as lesser in importance. This entails working towards personal integration as a lifetime pursuit and being congruent as a leader.
  3. Compassion: Understanding that others are in pain and can often cause you hurt as a result of their pain (e.g. pain resulting from adverse childhood experiences).  It entails being willing to forgive others and show compassion towards them and their suffering.
  4. Intimacy: Being able to have the “intimate conversations” that express how you really feel but also being able to “own your side of the street” – what you have contributed to the conflict.  Lance talks about “self-intimacy” which is effectively a very deep level of self-awareness along with the courage to own up to what you are thinking and feeling.  The resultant vulnerability becomes a strength, not a weakness.
  5. Adaptability: Being able to deal with “extreme discomfort” including feeling alone because you are not conforming to other people’s expectations – people who do not see you for “who you truly are” and what you are capable of.
  6. Acceptance: This is the precursor to surrender.  Acceptance entails acknowledging mistakes but working to overcome them for your own benefit as well as that of others affected by your mistakes or inadequacies.  Surrender goes one step further in accepting “what is” after you have given your all to a particular pursuit or dream.  Lance explains that acceptance and surrender in turn involve both heartbreak and gratitude – willingness to learn through heartbreak and gratitude for what you have achieved.
  7. Choice: A fundamental principle underlying perseverance. This involves showing up in your life – choosing to start again after some “failure”, not being afraid of failure.  In the final analysis it means to “be a leader of your own life”.

Reflection

Lance puts forward the challenge of conscious choice and mindful action – being willing to overcome our self-stories, moving beyond our comfort zone, being truly accountable and authentic about our thoughts and feelings and being compassionate and forgiving towards others.  As we grow in mindfulness, we can develop the self-awareness and self-intimacy that underpins his principles of perseverance and progressively move towards personal integration.

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Image by Pete Linforth from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Ways to Accept What Is

Diana Winston reminds us that part of mindfulness is “accepting what is” – being able to deal actively and constructively with our present situation, however unwelcome.  Diana, Director of Mindfulness Education at MARC, UCLA, defines mindfulness in her podcasts as paying attention to our present moment experiences with openness and curiosity and a willingness to be with what is.  Tara Brach argues that acceptance of what is begins with radical acceptance – overcoming feelings of not being good enough and fully accepting ourselves so that we can live life more fully.  Shamash Alidina stresses the proactivity involved in accepting what is – he argues for a growth mindset which entails being willing to learn from our experiences and to change what we can change.

Ways to develop acceptance of what is

There are many times in life when things do not turn out according to our plans, our anticipation or our expectations.  These experiences can often lead to persistent negative and destructive feelings that undermine our ability to live life fully and be present for others.  Below are some ideas on ways to develop the requisite acceptance of what is:

  • Begin with self-acceptance – Tara’s book mentioned above has resources, exercises and meditations that can help to develop self-acceptance.  Tara also provides a wide range of free and paid resources on her web store – books, videos, e-books, audios, online courses – that provide insights and meditations to help us in the lifelong pursuit of radical self-acceptance.
  • Break the cycle of complaining – complaining reinforces our dissatisfaction through its negative focus.  It also contaminates the emotional wellbeing of those we interact with.  Mike Robbins reminds us that “what you resist, persists” – that what we complain about, what we focus on as unsatisfactory in our life, will become increasingly aggravating.   
  • Get it out of your head – Mike suggests that one way to do this is to make a list (preferably written) of all the things that cause you angst in your life – people, work, disappointments, anticipated or actual changes to your health or wealth.  As you review each item, reflect on whether you can accept the reality of this aggravation in your life.  He argues that acceptance of what is provides the pathway to internal peace and constructive change to make things better in some way. 
  • Get in touch with your feelings – reflect on what you are feeling and why you are feeling this way.  The more you can name your feelings and understand their source, the more you can tame and manage them.  For example, if you can identify envy as a source of personal dissatisfaction (however unpalatable acceptance of this negative emotion is), you can work towards being joyful for the good fortune and success of others in your life.
  • Keep things in perspective – no matter how upsetting or dissatisfying your current situation is, it pays to reflect on what other people are experiencing (and managing) that is considerably worse than your situation.  Sometimes little aggravations can become so large and dominating in our lives that we lose perspective on what we are experiencing – we fail to appreciate its insignificance in the greater scheme of life experiences.
  • Practice loving kindness meditations – it is possible to regularly extend loving kindness to others who are experiencing severe, adverse events in their lives such as the devastation of homes and livelihoods through wildfires or the daily physical and/or emotional abuse from domestic violence.  Loving kindness not only helps us to keep our own dissatisfactions in perspective but also enables us to move beyond self-preoccupation and reach out to others in our thoughts and actions.
  • Read about or listen to stories of people who have overcome extreme adversity – you can encounter such stories in your daily or weekly newspapers, email newsletters or blog posts about overcoming adversity.  A really good source of inspiration is TED Talks©.  You can search the database of over 3,000 videos by using key terms such as “inspiration” or “loss”.

Reflection

It is so easy to get into the negative spiral of complaining about how things are in our life (the “negative bias” of our brains feed this orientation).  However, we can be proactive to avoid moving into a cycle of dissatisfaction and depression.  There are ways to accept what is, develop peace in our lives and become open to the possibility of creating positive change.  As we grow in mindfulness through meditation, reflection and self-observation, we can learn to name our feelings, keep things in perspective, develop a growth mindset, build resilience and extend loving kindness to others.

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Image by Gerd Altmann from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.