exercise – Grow Mindfulness

Exercising Agency When Living with a Chronic Illness

There is a story in chronic illness – it’s evolution, it’s manifestation, our proactive attempts to manage it and its resolution (whatever form that takes). Managing chronic illness invariably involves the three “As” – acceptance, accommodation and agency.

Agency refers to our capacity to have some control over our internal and/or external environment. Typically, chronic illness reduces our agency in various areas of our life because it creates some form of disability which can be far reaching or limited in its manifestation in our day-to-day lives. The challenge for people with chronic illness is to limit the loss of agency where possible and increase its presence in other areas of our life.

How to develop agency as a writer with a chronic illness

In a previous post, I discussed ways to develop agency when we are trying to write while having a chronic illness. In that post, I discussed specific strategies relating to writing such as setting your own pace, finding a comfortable location for writing, writing a reflective poem and starting small.

I have developed agency in my own writing despite having MCAS, a chronic disease affecting the immune system. One form of accommodation I have adopted is to reduce my expectations about the frequency with which I produce a blog post. I have also written a series of reflective poems to help me manage the symptoms and feelings associated with MCAS. I have also started a new writing enterprise in the form of a co-authored book on management (now in its first draft stage). I have had to exercise self-compassion with this project because of the setbacks I have experienced during my writing efforts – setbacks such as the bankruptcy of our contracted publisher, the loss of data, the serious illness of my coauthor, and a week-long cyclone and associated anxiety and disruptions.

Developing agency through research and education

In an earlier post when I discussed a holistic approach to MCAS and histamine intolerance, I mentioned the work of Beth O’Hara, FN, a sufferer from multiple chronic illnesses. Beth used her illness to motivate herself to research her own health solutions and to create the Mast Cell 360 facility which offers paid, holistic health interventions as well as free resources. Her research and her own clinical practice highlighted the role of the nervous system in the development and expansion of MCAS.

Beth’s proactive approach to understanding the role of the nervous system in MCAS was to provide a specialised, online course to help MCAS sufferers gain control of their nervous system which is variously dysregulated with MCAS. Her self-help program, Master Class to Reboot the Mast Cell Nervous System, gives sufferers some degree of agency over their own health improvement.

Through this Reboot Course I came to better understand the components of the nervous system and how the nervous system interacts with other systems of the body (e.g. the digestive system). The Roadmap incorporated in the course gave me insight into the vagal nervous system, factors impacting it and manifestations of damage to the vagal nerves. More importantly, the Roadmap provides strategies to address vagal nerve excitation based on the level involved. In other words, through this Reboot Course I have a way of exercising agency over my own nervous system and its level of excitation. This provides a proactive way of managing the nervous system element of MCAS which according to Beth represents 50% of the recovery protocol.

Typically, a chronic illness will have a pattern – good days, bad days; good periods, bad periods (of variable duration). Once we understand the pattern of our chronic illness (how it manifests itself from day to day), we can exercise agency by utilising the “good” times to undertake what we consider to be important and productive. This can involve writing prose or poetry, engaging in social work or undertaking part-time employment as Jennifer Crystal did with her part-time teaching while she experienced the difficult aspects of Lyme Disease.

Exercising agency in our recreational activity

Agency can also extend to our recreational activity – we can shape our activities to fit our physical, emotional and/or mental ups and downs. I play social tennis despite having MCAS which often means that my ankles and legs are swollen and I have arthritis in one of the fingers I use to hold a tennis racquet.

I have found that swelling in my ankles reduces my mobility. I find that the lack of mobility is very frustrating as this used to be a strength of my tennis game (I was a champion sprinter during secondary school). Now with the swelling I feel anchored on the spot, not able to accelerate forward.

As the inflammation is caused by sensitivity to some foods and drinks, it is within my control to limit these to reduce the swelling and improve my mobility. This, however, is easier said than done as it severely restricts what I can eat and drink.

Another related area of agency with regard to the quality and enjoyment of my tennis game is undertaking exercise on a daily basis – including walking, a daily exercise routine (designed by my exercise physiologist) and my Tai Chi routine.

I re-learnt recently that most of the power of a tennis shot comes from your legs, not your arms or hands. I was getting very frustrated with the arthritic pain in my fingers which caused me to lose power in my arms and hands. However, I have found that by bending my knees with each shot (as I used to do), I can restrict the pain in my fingers and hands and increase the accuracy and power of my tennis shot.

An added benefit of this form of agency is that by bending my knees I unconsciously activate my body memory so that I can access a wider range of tennis shots than I would normally play without the knee-bending. You only have to watch Grand Slam tennis to see how much players, both male and female, rely on bending their knees to gain power and to play a wide range of tennis shots (some even kneel at times to absorb the power of an opponent’s shot). So the simple act of knee-bending gives me a form of agency that increases both the quality and enjoyment of my social tennis.

Reflection

The challenge with chronic illness is to identify areas for increased agency and to experiment with particular strategies to activate whatever agency we can find in whatever window of opportunity reveals itself. Mindfulness practices such as meditation, conscious breathing, reflection and Tai Chi can help us to be open to opportunities for agency and to act on them. As we grow in mindfulness, we can gain insight, heighten creativity and develop the courage to act on our increased self-awareness.

The story of Lucy, a 13 year old blind girl who is also neurodiverse, is an outstanding example of what is possible when we focus on our strengths rather than our deficits. Lucy is a prodigal pianist who has wowed audiences in places such as Leeds Train Station with her rendition of the extremely complex Chopin piece “Nocturne in B-flat Minor Op.9 No.1”. She competed in a public piano competition with three other gifted pianists who were selected by Lang Lang, world famous pianist who was “speechless” with her performance and chose Lucy as the best of the four pianists.

Lucy achieved agency in the form of her creativity and musicality, playing complex classical pieces for audiences, by utilising her strengths despite her obvious disabilities. She has highly developed hearing and an incredible sense of touch – she learned to play the piano by placing her fingers under the fingers of her piano teacher as he depressed each key. Her sensitivity in playing the classical pieces astounded Lang Lang. She played at the Coronation Concert at Windsor Castle on 7 May 2023. Lucy has since produced a classical piano CD, simply called Lucy – The Album. Lucy’s story and her training through the Amber Trust and her teacher, Daniel, is available on video.

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Image by yoshitaka2 from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Mind Your Brain

In the previous post, I discussed the ravages of Alzheimer’s disease on the mental. emotional and physical capacities of the affected person. I particularly emphasised the importance of self-care for the carer whose life is increasingly disrupted and made more stressful because of the cognitive, emotional and financial drain on their personal resources.

Alzheimer’s disease and the associated disorder of dementia are becoming increasingly prevalent in society as our populations age. The Alzheimer’s Association maintains that there are 342,000 people in Australia living with dementia and 44 million worldwide. The Harvard Medical School notes that Alzheimer’s disease is the major cause of dementia.

When you come into close contact with someone who is suffering from Alzheimer’s disease or other forms of dementia, you begin to realise the need to savour your brain as a source of wonder in everyday life. As you see the progressive loss of key faculties by another person, you begin to realise how much we rely on our brains to live effectively and happily in our day-to-day existence.

It is often only when we lose something, or see others lose something that we value, that we begin to really appreciate what we have. The same is true of our brains. And yet, as Andy Puddicombe points out in a YouTube video, we spend more time looking after our hair or car than we do our brains – the source of our thoughts, creativity, happiness, and practical skills. Andy suggests that all It takes is 10 mindful minutes each day to begin to mind our brains.

Protective measures

The Harvard Medical School, in their publication on Alzheimer’s disease and its treatment, suggest a range of protective measures that people can take to either avoid Alzheimer’s or to slow the progress of the disease. They point out however that scientists have not found a cure for Alzheimer’s or found definitive ways to prevent its occurrence – there are still many unknowns in relation to the disease, including the actual impact of genetic factors. The Harvard Medical School, however, notes that lifestyle factors are a major influence on preventing the disease or slowing its progress.

In line with many other sources such as the National Institute of Aging, the Harvard Medical School recommends exercise, diet, weight reduction, restful sleep and mental stimulation as protective measures. They remind us that what is good for our brain and body is also good for our heart.

The Harvard Medical School provides health reports on the benefits and techniques for different exercise routines. They particularly stress the multiple benefits of walking in their publication Walking for Health, including the positive impacts on blood pressure, memory, heart health and weight. Walking is one of the easiest and most accessible forms of exercise and they suggest that it is a good place to start for people who are not used to exercising. In a related article they identify 5 Surprising Benefits of Walking.

The recommendation re restful sleep accords with the research by Stanislas Dehaene, author of the book How We Learn: The New Science of Education and the Brain. Stanislas highlights the key role of sleep in consolidation of learning – in making our learning explicit and building “unconscious competence”.

Mental stimulation as a way to mind your brain

The Harvard Medical School maintains that while level of education has a positive effect on maintaining a healthy brain (through the process of creating “cognitive reserve” in the form of neurotransmitters and brain cells), what is more important as you age is to engage in activities that stimulate the brain. They suggest, like the Institute of Aging’s recommendations re “cognitive training”, that mentally stimulating activities such as playing music, reading, writing, doing puzzles and playing games, can help to develop and maintain a healthy brain despite physically ageing. There are many very active and inspiring octogenarians who provide testament to this possibility.

Minding your brain through mindfulness

Harvard Medical School, in the previously mentioned publication on Alzheimer’s, illustrates how this disease actually shrinks the physical brain as a result of the ”massive loss of brain cells” – which, in turn, “damages areas involved in thought, planning, memory, mood and behavior”. In contrast, Richard Davidson and Daniel Goleman in their book, Altered Traits: Science Reveals How Meditation Changes Your Mind, Brain and Body, reveal that mindfulness meditation actually increases the neo-cortex area of the brain.

They also contend that mindfulness meditation can shape your brain to build resilience. Drawing on the science of meditation they maintain that focused meditation and aligned action can develop the traits necessary for personal resilience – positive connections, awareness, insight into your inner landscape, clarity of purpose and a permeable self.

One of the positive effects of mindfulness meditation is better use and development of your working memory which is an area negatively impacted by Alzheimer’s disease. The act of paying attention facilitates short term memory thus enabling better retention and use of information for improved decision-making and behavioural choices. Harvard Medical School has a series of articles on improving your memory and a comprehensive report on how to keep your brain healthy in the face of age-related memory loss.

Specific mindfulness activities have particular effects relevant to minding your brain. Tai Chi, for example, enables you to deepen the mind-body connection as well as improve physical health, psychological well-being and overall energy levels (thus facilitating other forms of exercise such as walking).

Reflection

Harvard Medical School emphasises the need to mind your memory to offset the occurrence of memory lapses which are a natural part of the ageing process. Looking after our memory can be one of the many protective measures that we can employ to prevent or delay the onset of Alzheimer’s disease and its multiple debilitating effects.

As we grow in mindfulness, through meditation and other mindfulness practices such as Tai Chi, we can enhance our working memory, build resilience, develop our physical brain, and improve our overall psychological well-being which further reduces the strain on our brain brought on by life’s stressors. Developing the habit of mindfulness is a very sound and healthy resolution for the New Year.

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Image by Mabel Amber from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

How to Release Pain and Reduce Difficult Emotions

Deepak Chopra on discussing how to release pain and difficult emotions stressed the connection between our physical bodies and our emotions and also the interconnectedness of all living things. He maintained that “there is no mental event that doesn’t have a biological correlate” – that is to say, that our every thought and related emotion finds expression in some form in our body. He stressed that our brain serves to integrate everything we experience – our thoughts, feelings, emotions, social interactions and the ecosystems that surround us. Deepak talked too of our entanglement with each other – how we influence each other energetically and emotionally through “limbic resonance”.

In speaking of ways to reduce physical pain in another video presentation, Deepak strongly supported the idea of regular exercise to release endorphins, meditation to take us beyond our limiting perceptions, music to reduce stress and pain and social connection and interactions to provide support. He maintained that, contrary to popular belief, alcohol and smoking increase pain rather than reduce it. He also highlighted the powerful role of biofeedback, employed by various health professionals including the Chopra Center for Wellbeing.

A seven-step process for physical healing and emotional release

In his presentation for the You Can Heal Your Life Summit, Deepak offered a seven-step process for physical healing and emotional wellbeing. The seven steps serve as an integrated approach to individual mindfulness practices that we have previously discussed on this blog.

You begin by reflecting on an interaction that made you upset or left you having to deal with difficult emotions. Then you follow the following seven steps:

Accept responsibility: accept what you are feeling as your own, not blaming others for the way you are feeling. Without accepting responsibility, you cannot gain control over your feelings, nor can you wait for the other person to change so that you can be released from your feelings, because this will not happen.
Feel the feeling in your body: Deepak maintains that any feeling relates to one of the energetic centres of your body, one of the seven Chakras. The location of your pain is an indicator of the Chakra involved and the unfulfilled need finding expression in that Chakra, e.g. pain around the heart region (the Heart Chakra) can signal a need for love and belongingness, while pain in the stomach region (Solar Plexus Chakra) can indicate an unmet need for stability and strength. To feel the feeling you can close your eyes and focus on the area of your body where you feel pain – and bring your awareness to it without doing anything other than being with the pain wherever it is being felt in your body.
Name your feeling: Deepak describes this step as “labelling your feelings”. By naming your feelings accurately, you can learn to tame them. He calls accurate naming “labelling intelligently” – the more specific you can be about what you are feeling, e.g. resentment, anger, shame, the better you are able to deal with it.
Write it down – here the aim is to express what happened from three different perspectives – your own, the other person’s perspective and a third person’s perspective – the independent observer. Deepak maintains that using this 1^st, 2^nd and 3^rd person approach reduces the emotional energy you have invested in the conflict, improves your immune system, and lightens your emotional load because “you are not weighed down by the emotion”.
Share it with someone: here you share both the process you used and the outcome for you with someone that you trust. It is important to accurately share the three perspectives that you have developed – avoid excusing your own behaviour and blaming the other person.
Use a ritual release: Deepak suggests that a ritual activity that symbolises “release” reinforces your new state of equilibrium and equanimity. It can take many forms but needs to be a personal way of expressing release, e.g. using a mantra meditation, scrunching up the paper you have written on or throwing it in the river.
Celebrate the release: again using something that is meaningful to you, e.g. a long forest walk, or mindful walking by the bay – some activity that manifests your joy and the realisation that you are moving on, no longer trapped physically or emotionally.

Reflection

The wisdom of this approach is the recognition throughout of the profound mind-body connection – In releasing our emotions, we can release pain in our bodies. It takes time to develop the self-intimacy and honesty required to defuse these emotions and the related physical pain. Persistence brings its own rewards in this endeavour as in many other endeavours. As we grow in mindfulness through mindfulness practices, meditation and reflection, we can achieve a level of consciousness that creates emotional freedom and physical ease. Deepak maintains that “all healing is consciousness”. To deepen our level of consciousness, we can make a habit of self-observation, naming our feelings and related unmet needs, and exploring creative ways to respond.

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Image by Nika Akin from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Working from Home and Staying Mentally Healthy

Many people have been thrust into the situation of working from home because of the Coronavirus and related Government restrictions on movement and contact. As a result, numerous people are ill-prepared for the challenges and opportunities involved. However, there is plenty of advice available through blog posts, videos and podcasts to help us acquire the necessary information to work effectively from home. There are also specific suggestions for particular groups of people, e.g. teachers working from home and working from home with kids. Many of these sources of information stress the need to stay mentally healthy as well as look after your physical welfare. Here are some strategies to achieve both effectiveness and sound mental health.

Strategies for working from home healthily for mind and body

The pattern you create needs to meet your personal preferences (e.g. a morning person vs. night person), your lifestyle, family situation and location. Here are some suggestions that may help you to make choices that are relevant to your needs and those around you:

Negotiate arrangements – this entails reaching at least a tentative agreement at the outset with other affected parties such as your boss, you partner and your colleagues – having some clear understandings and groundrules at the outset can pave the way for a relatively smooth transition to working from home and avoiding unnecessary conflict at a time when everyone is feeling stressed. If you have a partner living at home with you, it pays to negotiate arrangements about working space, quiet time, coffee buying or making and eating arrangements (e.g. getting your own breakfast and lunch but sharing dinner preparation and eating). It is often the little things that can bring daily angst if they are not sorted out early. If you have had an extended marriage or living together arrangement, groundrules get established unconsciously and it pays to explore how these might change with one or both of you working from home.
Establish a routine: this gives you a sense of agency, the feeling that some aspects of your life are under control when everything else is changing constantly and creating uncertainty and anxiety. It is strongly suggested by many authors that you maintain your daily routine of getting ready for work (e.g. showering, getting dressed well, and beginning work at a set time). I think some flexibility here can be healthy without jeopardising your ability to work effectively and not waste time. You might, for example, wear more comfortable clothes, introduce a morning exercise routine (to take advantage of the time saved in not having to travel to work), occasionally sleep in when you feel tired from the extra stress created by the Coronavirus) and take time for conscious reflection (e.g. writing a journal about what you are experiencing and how you are responding). Sleep is particularly important at this time to enable your body and mind to recuperate from the stresses that you will be experiencing.
Develop an exercise program: physical exercise reduces stress and builds positive mental health. It is wonderful to see so many people making the most of their additional time at home to walk, run or ride in the open (particularly along the bayside where I live). Yoga and Tai Chi, offer physical, mental and emotional benefits in these times of stress and anxiety. Getting some fresh air is important – there can be a tendency with social isolation and safe distancing to become stuck in your home and not take in the benefits of time spent mindfully in nature. Activity is a great antidote to anxiety and depression.
Don’t sweat the news: in times of uncertainty, there is a strong tendency to become obsessive about news reports (via newspapers, emails, social media or podcasts). This not only dissipates your focus but also exacerbates difficult feelings of anxiety, depression and loneliness. Obviously, some information is important to know (e.g. available relief packages for individuals or businesses and Government advice/directives/legislation relevant to the Coronavirus). Experts in the area of mental health suggest that establishing a set time or times during the day for catching up on the news can be a useful way to proceed (do you really have to be the first to know?). It also pays to take note of the positive news, e.g. the many random acts of kindness that are occurring everywhere in the world as people struggle to cope with the present crisis.
Stay connected: with your work colleagues and boss – establish a routine for checking-in (preferably daily) as well as strategies to effectively employ electronic communication for planning, sharing and product/service development. There is a need here to maintain the balance between work and task – not oversharing social information but not being overly focused on work alone. Some work-from-home groups institute a set time each week to share recipes, a virtual lunch experience or happy hour, a sing-along or coping strategies.
Undertake special projects: there are often work-related, home-based projects that have been put off because of lack of time or prioritising. These projects can improve your work-from-home situation and enhance your productivity. They could involve, for instance, clearing up the clutter in your “office”, strengthening the security of your computer system, improving recycling in the home (including disposal of sensitive work information) or establishing a home-based coffee-making machine or a filtered water system such as the Zanzen Alkaline Water System.

Elizabeth Gilbert, author of Big Magic: Creative Living Beyond Fear, recently participated in a Ted Connects© interview and provided deep insight and very sound advice about dealing with the overwhelm of the current Coronavirus crisis. She advices strongly against substituting the busyness of the workplace environment with a new form of busyness in the working from home environment. Elizabeth argues that we spend so much time running away from ourselves, not fronting up to ourselves including our fear and anxiety. She argues that the present situation of enforced or voluntary working from home creates a wonderful opportunity for developing self-awareness and self-regulation through meditation, mindfulness practices and reflection. Often our greatest, unconscious fear is being-alone-with-our-self. We seek distractions and fill up our time with multiple tasks only to find that we have no time to truly find ourselves.

Reflection

The current working from home situation that many of us face has inherent challenges and opportunities compounded by the requirements around social distancing, safe distancing and avoidance of unnecessary travel (local and international). Clarifying working arrangements, establishing a routine, developing an exercise program, avoiding obsessing over the news, staying connected and undertaking special projects that enhance a sense of control over your environment, are all important for a healthy mind and body.

However, the real challenge and opportunity lies in developing self-awareness and self-management through meditation, mindfulness practices and reflection. As we grow in mindfulness, we enhance our focus (at a time of intensified distraction), our resilience (at a time of extreme mental and emotional stress), our creativity (when we appear lost for personal and community solutions) and our compassion (when so many people worldwide are suffering and grieving). In all of this turmoil and uncertainty, there lies the opportunity to truly find ourselves.

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Image by Igor Ovsyannykov from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.

Self-Praise for Health and Wellness and to Make a Difference

In a recent email newsletter, Leo Babauta reminded us of the need to “train your mind with praise”. So often we beat up on ourselves for falling short, for failure to perform to expectations (ours and others) or for an oversight or omission. Our negative self-stories take over and cause us to procrastinate and avoid pursuing what is really meaningful in our life. Leo argues that “shame is a bad teacher” – praise for our self serves to reinforce positive thoughts, emotions and behaviour and leads to good outcomes for others. Leo readily shared how he uses self-praise to strengthen the good habits in his life. Elsewhere he freely shared what enabled him to change his life when he was in a bad place.

Christine Wesson reminds us that the benefits of self-praise include growth of self-confidence. She highlights the fact that what we focus on develops and grows (whether positive or negative) and that, if we appreciate ourselves, others take their cue from our demeanour and appreciate us as well.

What can you praise yourself for today?

You can praise yourself for the numerous positive, small things you do in your day such as:

Stopping what you were doing and attentively listening to your child or partner
Being fully present when you give your partner a “good morning” kiss
Writing that piece for your blog or newsletter or service provider
Reading something about an act of kindness
Expressing genuine appreciation to someone – your partner, child, waiter/waitress, taxi driver
Responding promptly to an enquiry from a friend, relative, client or customer
Genuinely sharing your feelings with someone close to you
Making time to be with a friend
Offering to give someone a lift
Letting someone into the traffic line who was obviously at a disadvantage
Making good use of waiting time to focus on awareness (and not your phone)
Stopping to appreciate the beauty of nature – the ocean, sunset, sunrise, trees, flowers or birds
Helping someone in need
Expressing loving kindness towards someone or a group in your meditation
Taking time to exercise – Tai Chi, walking, gym work, playing tennis, going for a run
Resisting the temptation to do something else while taking a phone call – being fully present to the speaker.

Really, the list is endless – there is so much that you do during any one day that is praiseworthy – that makes life better for yourself or someone else. You do not have to realise major accomplishments to make a difference in the world – it is the small things that add up to significant positive outcomes for yourself (and your capacity to be kind to others), your mood (which is contagious), your interactions with others and your close relationships.

Just as it is important to give ourselves praise, it is also vital to provide positive feedback to others in the form of genuine appreciation that is timely and specific – you can make their day with a simple act of praise.

Reflection

It seems to be anti-cultural to praise ourselves – it is a lot easier to be “down on our self”. Self-praise builds self-confidence and helps to reinforce our positive thinking and behaviour. It serves to push aside our negative self-stories. As we grow in mindfulness, we can learn to appreciate and praise what we do that is healthy for our self and makes a difference (however small) in the lives of people we interact with. It does not take a lot of time to praise our self, but the effect is cumulative and flows over to all the arenas of our life (whether home, work or sports activity).

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Image by Foundry Co from Pixabay

By Ron Passfield – Copyright (Creative Commons license, Attribution–Non Commercial–No Derivatives)

Disclosure: If you purchase a product through this site, I may earn a commission which will help to pay for the site, the associated Meetup group and the resources to support the blog.